Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good Doctors Are Hard To Find...but I've Got One ! :)

VeggieGal

By VeggieGal
in Doctors

Recommended Posts

VeggieGal Contributor
VeggieGal
Posted

I'm sooo relieved and happy!

After having hospital appointments for over ten years for my Graves disease and a thyroidectomy ...to put it bluntly, Ive come across some arrogant, uncaring, ditsy doctors/consultants and a surgeon.....

however......

My coeliac Doctor/consulant from day one has been understanding, listens, knowledgeable, explains, is on the ball making sure Im having extra blood tests, vitamins, Dexa, diet etc and is a great advocate for trying to get me prescriptions plus hes incredibly honest saying its all about money and says how he has to fight for his patients to get prescriptions etc, and to top it off he's smilely and respectful!

Finally, my faith in Doctors is being restored!

:) :) :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1desperateladysaved Proficient
1desperateladysaved
Posted

Oh, that's a blessing!

Gemini Experienced
Gemini
Posted

I'm sooo relieved and happy!

After having hospital appointments for over ten years for my Graves disease and a thyroidectomy ...to put it bluntly, Ive come across some arrogant, uncaring, ditsy doctors/consultants and a surgeon.....

however......

My coeliac Doctor/consulant from day one has been understanding, listens, knowledgeable, explains, is on the ball making sure Im having extra blood tests, vitamins, Dexa, diet etc and is a great advocate for trying to get me prescriptions plus hes incredibly honest saying its all about money and says how he has to fight for his patients to get prescriptions etc, and to top it off he's smilely and respectful!

Finally, my faith in Doctors is being restored!

:) :) :)

 

So what you are telling me is that I need to fly across the Pond to find a good doctor?  ;)

 

It is all about money and it really is the same here in the States and is only going to get worse.  I'm happy that you found someone good because I refuse to go to GI docs for anything.  They insulted me for too many years trying to get diagnosed and I haven't found one I can trust.  Pretty sad, huh?

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Brilliant news :)

While the NHS has its problems, sometimes it comes up trumps. Great you will be getting some decent support.

Mw

PS Gemini, it is pretty cool here sometimes :), and it looks like you pop by every now and again..

VeggieGal Contributor
VeggieGal
Posted
  • Author

awww thank you all...

Gemini, ive been in the same position with drs in the past so I fully understand which is why im holding onto this one but youre welcome to fly across the pond!

Got my Dexa scan tomorrow; just nervous now about the radiation cos over the years ive had a few xrays plus I had radioactive iodine two yrs ago ...does it create a build up in the body as an extra risk ?

VeggieGal Contributor
VeggieGal
Posted
  • Author

I had the Dexa scan and think I was worrying over nothing..apparentely its such a small amount of radiation which we'd normally get in half hour being outside! Anyway, they just scanned my back and hips...just awaiting results now.

Gemini Experienced
Gemini
Posted

I understand your concern about radiation but it's  important to get the Dexa done because bone health is crucial to aging well.  You need strong bones so I think the amount of radiation that you will get hit with is minimal.  It's not like the x-ray machines of the past....like when I was a kid.  What I do myself is base radiation exposure to importance of testing.  I do not allow the dentist to just randomly take x-rays anymore of my teeth.  If all looks well at the dentist and I am having no issues with my teeth, I don't allow x-rays.  But I will have the Dexa done because I am working hard at the gym to reverse my osteoporosis in  my spine. No meds for me!  Good luck on your scan results....let us know what happens!  :)

I had the Dexa scan and think I was worrying over nothing..apparentely its such a small amount of radiation which we'd normally get in half hour being outside! Anyway, they just scanned my back and hips...just awaiting results now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted

I love Great Britain.  My family heritage is English, Scottish and Irish so I have all bases covered.  That's probably why I have Celiac too!  I am coming over again this Sept./October for a 2 week trip and can't wait.  I love the history and find the people always welcoming and friendly. We will be returning to the Lakes District to hike.  It is a gorgeous area and we enjoyed ourselves so much the last time we were there.  Then we head off to London for a week because I will never be able to get enough of that city.  I think we have walked over the entire city, collectively, and it's always amazing to see stuff that is a thousand years old!  Every country has their problems but the positive outweighs the negative.....like the US too!

 

 

 

Brilliant news :)
 

 


While the NHS has its problems, sometimes it comes up trumps. Great you will be getting some decent support.

Mw

PS Gemini, it is pretty cool here sometimes :), and it looks like you pop by every now and again..

 

  • 4 weeks later...
solitaire-master Rookie
solitaire-master
Posted

Congrats, way to go on the find

VeggieGal Contributor
VeggieGal
Posted
  • Author

thanks soitaire master.

i never got results of my dexa scan so take it no news is good news! Just awaiting genetic results now.

Gemini...my heritage is also English, Irish and Scottish too. Is there something in it being celiac then?

Gemini Experienced
Gemini
Posted

Northern Europeans have a very high genetic susceptability to Celiac Disease.  Ireland, I believe, has the highest rates in Europe, although Italy comes in at a close second.  Ditto for Scandinavia.  Almost everyone I know with Celiac comes from one of the three area's.  Aren't we lucky?  ;)

VeggieGal Contributor
VeggieGal
Posted
  • Author

Northern Europeans have a very high genetic susceptability to Celiac Disease. Ireland, I believe, has the highest rates in Europe, although Italy comes in at a close second. Ditto for Scandinavia. Almost everyone I know with Celiac comes from one of the three area's. Aren't we lucky? ;)

Hmmm, aren't we just !! pffft !

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      22

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      That is the goal, after all.
    2. Wheatwacked
      - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine. Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years. Doctor recently said to not stop. My 25(OH)D is around 2...
    3. Known1
      - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing your thoughts. I respectfully disagree. You cherry picked a small section from the page. I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on ...
    4. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Here is a link to the spreadsheet I kept to track my nutrition intakes. Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/...
    5. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Hello @catnapt, That's so true. Every person with Celiac Disease has different symptoms. There are over 200 that it mimics. Too many still believe that it is only a childhood disease you outgrow. Or it's psychosomatic or simply a fad. Idiots. It's easy to get angry at all of them. You just have to pick at the answers until you find...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,411
    • Most Online (within 30 mins)
      7,748
    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      That is the goal, after all.  
    • Wheatwacked
      Blood results

      By Wheatwacked · Posted

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Known1 · Posted

      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.