Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

6 Year Old About To Be Tested


jmrogers31

Recommended Posts

jmrogers31 Contributor

My six year old is going to be tested with a blood sample this week for Celiac.  I was wondering what your thoughts were because her symptoms don't seem celiac related but gluten free seemed to help them.  She had a rash all over her stomach, legs, bottom, back, and forearms.  It isn't the celiac rash and the doctor described it as discoid eczema.  She wets the bed almost every night at age six and has extreme anxiety.  We started a gluten free diet about 3 months ago because I was gluten free and figured what could it hurt?  Well, the rash started to clear up within a few weeks after she has had it for months.  She stopped wetting the bed after about a month gluten free and she used to have a lot of issues at school including shouting matches with other kids, issues with paying attention, to almost panic attacks to dramatic improvement in behavior that the teacher is really stunned by.  Well, we took her to an allergy specialist for the rash and she wants a blood test which means 4 to 6 weeks of gluten again.  It has been a month now and the bed wetting is back, the rash is back, and the anxiety is starting to come back.  We decided we don't really care what the results say, she is back gluten free after this.  My question is, are these symptoms normal for kids?  Bed wetting, eczema, anxiety, attention issues?  She really doesn't have any GI issues at all. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



stanleymonkey Explorer

My then 2 yr old had what we were told was excema, no creams fixed it, gluten free did. Her behavior was odd, she was scared of the stairs one day! That stopped gluten free. We're still,working on the bed wetting, but 2 1/2 yrs of chronic constipation have made it hard. I've read a lot of people on here mentioning anxiety as a symptom. Our youngest didn't have any GI issues beyond mild constipation, but she cried all day long, had bizarre rashes, gluten free she is happier. The eldest was tested at 3 for celiac disease but came up negative, but she had the genes. We went gluten free anyway. Her little sister was aneamic, that was enough for us. If she is obviously better gluten free, go with your gut and go gluten free after the testing.

Cara in Boston Enthusiast

After three months being gluten free, 4 weeks back on gluten might not be enough to get accurate blood tests.  Just know that a positive result means she probably has it but a negative result means the didn't detect it - not that she doesn't have it.  (Does that make sense?)   Don't let a negative result sway you into allowing gluten back into her diet.  

 

My son (diagnosed at age 5) had ZERO GI symptoms.  All we saw was a drastic change in behavior.

 

My symptoms included anxiety . . . .which went away pretty quickly after being gluten free.

 

Trust your instincts - you are doing everything right.

 

Cara

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,201
    • Most Online (within 30 mins)
      7,748

    Sherilyn Smith
    Newest Member
    Sherilyn Smith
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • lizzie42
    • RMJ
      The test result will never be shown as zero because the most negative the result can be reported as is less than the lowest amount the test can detect.  For example, you might see <2. What is the normal range for your daughter’s test?  Antibodies can hang around in the body for a while. Even if her result is not yet in the normal range, going from more than 100 to 9 in a few months is great! Good job, mom.
    • lizzie42
      My daughter has been gluten-free about 4 months. Prior, her tTG was over 100 (test maxed at 100). Her liver, iron, vit d are all normal again and she has grown 2 inches and gained 4.5 pounds in just 4 months! It's amazing. But her tTG is still at 9. Is that normal or should it be zero? Is she still getting gluten? We are SO strict. We don't eat out.  She was previously having tummy pain still. I cut oats completely 3 weeks ago and that is gone.  Can gluten-free oats raise tTG? Would I know based on symptoms? I was going to try her on oats again now that she doesn't say her tummy hurts anymore.  Also, our house is gluten free apart from one loaf of bread my husband uses. He makes sandwiches on a plate then puts it in the dishwasher. Yesterday when my celiac kids weren't home, my youngest and I ate "real" pasta. I was SO careful. All pans went in the dishwasher, I didn't spill any, I cleaned the sink I drained it in. Today my girl has her dermatitis herpetiformis rash back and had a huge hour long meltdown then fell asleep. Just like before diagnosis. Is it that hard to avoid cross contamination? Will one crumb off the plate or me cooking pasta when she's not home get her?  Again, we do not eat out, she's not in school yet, and she doesn't eat anything I don't give her. 
    • knitty kitty
      Hi, @thejayland10, Do you still consume dairy?  Dairy can cause increased tTg IgA levels in some people with celiac disease who react to casein, the protein in dairy, just like to gluten.   You might try cutting out the processed gluten free foods.  Try a whole foods, no carbohydrate Paleo diet instead, like the AIP diet (the Autoimmune Protocol Diet by Dr. Sarah Ballantyne, a Celiac herself). Processed gluten free foods can be full of excess carbohydrates which can alter your microbiome leading to Small Intestinal Bacterial Overgrowth (SIBO).  SIBO is found in some people who are not responding to a gluten free diet.  SIBO can elevate tTg IgA levels.  The AIP diet cuts out sources of carbohydrates like rice, potatoes (nightshades), quinoa, peas, lentils, legumes, which starves out the SIBO bacteria.  Better bacteria can then proliferate.   I followed the AIP diet to get rid of my SIBO.  It's a strict diet, but my digestive tract had time to rest and heal.  I started feeling better within a few days.  Feeling improvement so soon made sticking to the AIP diet much easier. References: Small intestinal bacterial overgrowth among patients with celiac disease unresponsive to a gluten free diet https://pmc.ncbi.nlm.nih.gov/articles/PMC7759221/   Luminal antigliadin antibodies in small intestinal bacterial overgrowth https://pubmed.ncbi.nlm.nih.gov/9260801/#:~:text=Luminal total IgA concentrations (p,response to local bacterial antigens.   Potato glycoalkaloids adversely affect intestinal permeability and aggravate inflammatory bowel disease https://pubmed.ncbi.nlm.nih.gov/12479649/
    • trents
      First, welcome to the forum, @boy-wonder! Second, a little clarification in terminology is in order. Granted, inconsistency is rampant when it comes to the terminology associated with gluten disorders, but it has more or less become settled in this fashion: "Gluten intolerance" is a general term that car refer to either celiac disease or NCGS (Non Celiac Gluten Sensitivity). "Gluten Sensitivity" is the shortened version of NCGS. Third, Celiac disease is not an allergy to gluten. It is an autoimmune disorder characterized by gluten ingestion causing the immunes system to attack the lining of the small bowel, causing damage to it over time due to the constant inflammation that wears down the "villi" (mucosal finger-like projections that make up the lining). Over a significant period of time as gluten continues to be consumed, this generally results in impaired nutrient absorption. There are specific blood antibody tests available to check for celiac disease but the testing will not be valid while on a reduced gluten diet or a gluten free diet. Those already having having begun a gluten free diet must go back to consuming generous amounts of gluten for a period of weeks if they wish to pursue testing for celiac disease. Fourth, NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both. Fifth, you state that you are convince you don't have celiac disease by are just "gluten intolerant" (aka, gluten sensitive). How do you know that? It seems to me you are making a dangerous assumption here. I suggest you consider getting formally tested for celiac disease.
×
×
  • Create New...