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They Are Refusing To Test For This Based On My Ana, What Do I Do?

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Posted 12 March 2013 - 05:52 AM

They say my ANA is fine so they aren't going to do the test. 


Meanwhile I'm sitting here, looking like death warmed over, having a lot of issues now. If you were to look at me I look like skin and bones. I've been sick for 3 days now, barely been able to get food in me. I need this test done. If I go to the ER at this point they won't run the test cause they'll just tell me to follow up with my GI doc or something, the GI doc I haven't been able to get ahold of for 5 days. I don't think that's going to change. 


How do I convince them to do this test? I did ask if they ran the specific test for it and they said no, cause due to my other tests they are saying I don't have it. 


I guess they could be right but a blood test will be faster at this point than waiting almost a week to get the GI scopes I will not make it a week with how I am. I am tempted to just go off all gluten and forget all of it since none of them are cooperating with me anyway. 


What's the big deal here? Why won't they test me? 

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Posted 12 March 2013 - 06:14 AM

I wish we could answer those questions for you. I already replied to your other thread so I won't repeat myself too much. But if you don't need an official diagnosis, going gluten free now without testing is a viable option.
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Posted 12 March 2013 - 07:38 AM

Honestly at this point if they won't test you can either A. Find a new doctor or B. Do a gluten free trial...
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Posted 12 March 2013 - 07:39 AM

Can you go to a wlak in clinic or see a family doctor to request the test?


Biocard sells home tests for ttg IgA but it would take some time to get to you.


Hang in there.

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Posted 12 March 2013 - 07:58 AM

What were your other tests?  Are you certain you have had a complete antibody profile for Celiac Disease?  Nutrient testing?


Sorry..I'm not sure I read your post correctly -- are you wanting an endoscopy or more blood tests?


Hang in there - diagnosis of Celiac Disease is often very frustrating and unfortunately may necessitate a change of doctors.

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Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

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Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS


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Posted 12 March 2013 - 11:25 AM

They say my ANA is fine so they aren't going to do the test. 


Are you saying they won't test for celiac because your ANA is fine?  This is a nonsense if so.  ANA does not test for celiac.  While it is a general autoimmune screen, it is designed to detect connective tissue AI disorders like SLE, RA, Sjogren's, etc.  It tells you nothing about celiac disease.

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