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[NorthernElf]

CVID

 

I have been trying to figure out for 2 years why I hurt, why I am so tired - lots of ups & downs. Sometimes I'm fine, sometimes joints hurt a little (mostly wrists/hands/elbows...then also knees/ankles/feet), sometimes I am in agony. I have seen two different rheumatologists, had an MS scare, had a ton of blood work & astounded my doctor. Within the last year I have had pneumonia confirmed by xray once, been treated for it two more times after that.

 

Last week another round of bloodwork showed low IgG...just completed more bloodwork Friday to measure other Ig levels. Getting a referral to a rare blood disorder clinic. It lookds like CVID because of the joint pain (which bloodwork would confirm if IgA and IgM are low).

 

Finally some answers!

 

Anyway - anyone else heard of this, have this ?

 

Autoimmune....related to celiac ? Doesn't help that I am undiagnosed celiac (ie. don't have a positive test to show on paper)...I have been gluten-free for 11 years after a wicked virus.

[nvsmom]

I had to look it up.
http://en.wikipedia....mmunodeficiency

I don't have it but those symptoms really do sound a fair bit like celiac doesn't it? (I do have a related condition (low platelets) and many of those symptoms myself but I know I am not low in IgA.) I hope you find some answers in this, good luck!