Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

An Introduction :)


Auntie-Manda

Recommended Posts

Auntie-Manda Apprentice

Hi, everyone. I just joined today, and thought I'd say hi!

 

I do not have Celiac, but it's becoming more and more obvious to me that I'm gluten intolerant. My friend suggested that I go gluten-free to see if my migraines would go away (after my doctor was unable to find a cause for them). I've had daily headaches for years (since at least middle school, and I'm now 26). Well, recently they switched to daily migraines, and I couldn't function. I saw a doctor and was put on several medications to make the headaches go away, but they stopped working after a few weeks. I went gluten-free on Feb 28th, 2013. I saw an improvement with the migraines right away, but I'm sure there's still gluten still in my body, and I look forward to feeling even better.

 

What confirmed it to me, was last week when I had communion (my pastor said I could have gluten-free communion wafers, but forgot and gave me a normal one). An hour and a half later, I was miserable. I had a stomachache, and I was bloated to looking 5 months pregnant, and I had a horrible migraine. I didn't feel better for 2.5 days.

 

It's quite a project learning about how to eat. It's also a challenge telling others about it, and being faced with everyone thinking it's a fad/ some "thing I'm doing". I haven't been diagnosed by a doctor, but that doesn't make it any less real. I'm not going to reintroduce gluten and feel horrible just for a doctor to tell me what I already know. On the other end of the spectrum, I got some attitude from a guy with Celiac (saying that the reaction probably wasn't due to communion because I still had gluten in my system). He made me feel like since I don't have Celiac, my problems aren't real. Luckily I do have some supportive friends and family members, and that makes a huge difference.

 

I joined this website because it has been so helpful every time I do web searches with any questions. Thanks already for the help! I look forward to becoming an active member  :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jhol Enthusiast

hi there,

 

just writing to say hi really, dont worry about not being diagnosed celiac, there are lots of us on here who have gone on the diet out of desperation . and had to work things out for ourselves. ask anything you like, people will always answer. only been on here since january myself .

 

good luck in working out what works for you :)

cahill Collaborator

Welcome Auntie Manda :)

julissa Explorer

welcome, it's nice to meet you

1desperateladysaved Proficient

Hi Aunty Manda,

 

It certainly sounds as if you have a positive dietary response.  Sometimes one even seems to react more than ever as the body recovers.  That is a good think, because it helps one learn the way.

 

I always try to give flowers to those who are new  *** That is my best flowers to date.

 

Get well, I am glad you have support,

 

Diana

  • 3 weeks later...
Life-Of-A-Gluten-Free-Wife Newbie

Hi guys!

 

Just stopping by to say hello! I was looking for a forum online talking about gluten free. My husband recently found out that he has a gluten sensitivity, we haven't gotten tested for celiac, but we know gluten is a problem. He gets very sick whenever he eats anything with gluten, he grew up thinking it was normal. Hoping to connect with a couple of people -

I am also on twitter too will follow you if you follow me. I also update my blog regularly. Looking for some online friends to share glutenfree info with.

jhol Enthusiast

hi there,

 

just saying ,you might be better off introducing yourself in one of the lists on the forum page. theres one for friends of a relative with celiac - or something like that. just click on that then on the start a new thread button. more people will see your post that way.ask any questions you want, even if you think its stupid/dumb - ive asked loads lol. only been here myself since january, ive had the tests - they were all negative. ive gone on the diet anyway and im currently waiting for allergy tests but im going off that im  gluten intolerant.

 

theres also a good read with the newbie 101 thread that will help you and your husband a lot. nice to hear from you - hope that helps :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

    2. - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    3. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    4. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    5. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748

    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.