Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

An Introduction :)

Auntie-Manda

Recommended Posts

Auntie-Manda Apprentice
Auntie-Manda
Posted

Hi, everyone. I just joined today, and thought I'd say hi!

 

I do not have Celiac, but it's becoming more and more obvious to me that I'm gluten intolerant. My friend suggested that I go gluten-free to see if my migraines would go away (after my doctor was unable to find a cause for them). I've had daily headaches for years (since at least middle school, and I'm now 26). Well, recently they switched to daily migraines, and I couldn't function. I saw a doctor and was put on several medications to make the headaches go away, but they stopped working after a few weeks. I went gluten-free on Feb 28th, 2013. I saw an improvement with the migraines right away, but I'm sure there's still gluten still in my body, and I look forward to feeling even better.

 

What confirmed it to me, was last week when I had communion (my pastor said I could have gluten-free communion wafers, but forgot and gave me a normal one). An hour and a half later, I was miserable. I had a stomachache, and I was bloated to looking 5 months pregnant, and I had a horrible migraine. I didn't feel better for 2.5 days.

 

It's quite a project learning about how to eat. It's also a challenge telling others about it, and being faced with everyone thinking it's a fad/ some "thing I'm doing". I haven't been diagnosed by a doctor, but that doesn't make it any less real. I'm not going to reintroduce gluten and feel horrible just for a doctor to tell me what I already know. On the other end of the spectrum, I got some attitude from a guy with Celiac (saying that the reaction probably wasn't due to communion because I still had gluten in my system). He made me feel like since I don't have Celiac, my problems aren't real. Luckily I do have some supportive friends and family members, and that makes a huge difference.

 

I joined this website because it has been so helpful every time I do web searches with any questions. Thanks already for the help! I look forward to becoming an active member  :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jhol Enthusiast
jhol
Posted

hi there,

 

just writing to say hi really, dont worry about not being diagnosed celiac, there are lots of us on here who have gone on the diet out of desperation . and had to work things out for ourselves. ask anything you like, people will always answer. only been on here since january myself .

 

good luck in working out what works for you :)

cahill Collaborator
cahill
Posted

Welcome Auntie Manda :)

julissa Explorer
julissa
Posted

welcome, it's nice to meet you

1desperateladysaved Proficient
1desperateladysaved
Posted

Hi Aunty Manda,

 

It certainly sounds as if you have a positive dietary response.  Sometimes one even seems to react more than ever as the body recovers.  That is a good think, because it helps one learn the way.

 

I always try to give flowers to those who are new  *** That is my best flowers to date.

 

Get well, I am glad you have support,

 

Diana

  • 3 weeks later...
Life-Of-A-Gluten-Free-Wife Newbie
Life-Of-A-Gluten-Free-Wife
Posted

Hi guys!

 

Just stopping by to say hello! I was looking for a forum online talking about gluten free. My husband recently found out that he has a gluten sensitivity, we haven't gotten tested for celiac, but we know gluten is a problem. He gets very sick whenever he eats anything with gluten, he grew up thinking it was normal. Hoping to connect with a couple of people -

I am also on twitter too will follow you if you follow me. I also update my blog regularly. Looking for some online friends to share glutenfree info with.

jhol Enthusiast
jhol
Posted

hi there,

 

just saying ,you might be better off introducing yourself in one of the lists on the forum page. theres one for friends of a relative with celiac - or something like that. just click on that then on the start a new thread button. more people will see your post that way.ask any questions you want, even if you think its stupid/dumb - ive asked loads lol. only been here myself since january, ive had the tests - they were all negative. ive gone on the diet anyway and im currently waiting for allergy tests but im going off that im  gluten intolerant.

 

theres also a good read with the newbie 101 thread that will help you and your husband a lot. nice to hear from you - hope that helps :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values. Both are made with sugar, not high fructose corn syrup. I use them as a gluten free substitute...
    2. Theresa2407
      - Theresa2407 replied to chrish42's topic in Doctors
      6

      Doctors and Celiac.com

      I see it everyday on my feeds. They go out and buy gluten-free processed products and wonder why they can't heal their guts. I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field. Some days I would just like to scream. So much better when we had support groups and being able to teach...
    3. Scott Adams
      - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    4. Scott Adams
      - Scott Adams replied to chrish42's topic in Doctors
      6

      Doctors and Celiac.com

      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating...
    5. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,261
    • Most Online (within 30 mins)
      7,748
    Joanne Ham
    Newest Member
    Joanne Ham
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      Doctors and Celiac.com

      By Theresa2407 · Posted

      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Doctors and Celiac.com

      By Scott Adams · Posted

      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.