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An Introduction :)


Auntie-Manda

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Auntie-Manda Apprentice

Hi, everyone. I just joined today, and thought I'd say hi!

 

I do not have Celiac, but it's becoming more and more obvious to me that I'm gluten intolerant. My friend suggested that I go gluten-free to see if my migraines would go away (after my doctor was unable to find a cause for them). I've had daily headaches for years (since at least middle school, and I'm now 26). Well, recently they switched to daily migraines, and I couldn't function. I saw a doctor and was put on several medications to make the headaches go away, but they stopped working after a few weeks. I went gluten-free on Feb 28th, 2013. I saw an improvement with the migraines right away, but I'm sure there's still gluten still in my body, and I look forward to feeling even better.

 

What confirmed it to me, was last week when I had communion (my pastor said I could have gluten-free communion wafers, but forgot and gave me a normal one). An hour and a half later, I was miserable. I had a stomachache, and I was bloated to looking 5 months pregnant, and I had a horrible migraine. I didn't feel better for 2.5 days.

 

It's quite a project learning about how to eat. It's also a challenge telling others about it, and being faced with everyone thinking it's a fad/ some "thing I'm doing". I haven't been diagnosed by a doctor, but that doesn't make it any less real. I'm not going to reintroduce gluten and feel horrible just for a doctor to tell me what I already know. On the other end of the spectrum, I got some attitude from a guy with Celiac (saying that the reaction probably wasn't due to communion because I still had gluten in my system). He made me feel like since I don't have Celiac, my problems aren't real. Luckily I do have some supportive friends and family members, and that makes a huge difference.

 

I joined this website because it has been so helpful every time I do web searches with any questions. Thanks already for the help! I look forward to becoming an active member  :D


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jhol Enthusiast

hi there,

 

just writing to say hi really, dont worry about not being diagnosed celiac, there are lots of us on here who have gone on the diet out of desperation . and had to work things out for ourselves. ask anything you like, people will always answer. only been on here since january myself .

 

good luck in working out what works for you :)

cahill Collaborator

Welcome Auntie Manda :)

julissa Explorer

welcome, it's nice to meet you

1desperateladysaved Proficient

Hi Aunty Manda,

 

It certainly sounds as if you have a positive dietary response.  Sometimes one even seems to react more than ever as the body recovers.  That is a good think, because it helps one learn the way.

 

I always try to give flowers to those who are new  *** That is my best flowers to date.

 

Get well, I am glad you have support,

 

Diana

  • 3 weeks later...
Life-Of-A-Gluten-Free-Wife Newbie

Hi guys!

 

Just stopping by to say hello! I was looking for a forum online talking about gluten free. My husband recently found out that he has a gluten sensitivity, we haven't gotten tested for celiac, but we know gluten is a problem. He gets very sick whenever he eats anything with gluten, he grew up thinking it was normal. Hoping to connect with a couple of people -

I am also on twitter too will follow you if you follow me. I also update my blog regularly. Looking for some online friends to share glutenfree info with.

jhol Enthusiast

hi there,

 

just saying ,you might be better off introducing yourself in one of the lists on the forum page. theres one for friends of a relative with celiac - or something like that. just click on that then on the start a new thread button. more people will see your post that way.ask any questions you want, even if you think its stupid/dumb - ive asked loads lol. only been here myself since january, ive had the tests - they were all negative. ive gone on the diet anyway and im currently waiting for allergy tests but im going off that im  gluten intolerant.

 

theres also a good read with the newbie 101 thread that will help you and your husband a lot. nice to hear from you - hope that helps :)


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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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