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An Introduction :)


Auntie-Manda

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Auntie-Manda Apprentice

Hi, everyone. I just joined today, and thought I'd say hi!

 

I do not have Celiac, but it's becoming more and more obvious to me that I'm gluten intolerant. My friend suggested that I go gluten-free to see if my migraines would go away (after my doctor was unable to find a cause for them). I've had daily headaches for years (since at least middle school, and I'm now 26). Well, recently they switched to daily migraines, and I couldn't function. I saw a doctor and was put on several medications to make the headaches go away, but they stopped working after a few weeks. I went gluten-free on Feb 28th, 2013. I saw an improvement with the migraines right away, but I'm sure there's still gluten still in my body, and I look forward to feeling even better.

 

What confirmed it to me, was last week when I had communion (my pastor said I could have gluten-free communion wafers, but forgot and gave me a normal one). An hour and a half later, I was miserable. I had a stomachache, and I was bloated to looking 5 months pregnant, and I had a horrible migraine. I didn't feel better for 2.5 days.

 

It's quite a project learning about how to eat. It's also a challenge telling others about it, and being faced with everyone thinking it's a fad/ some "thing I'm doing". I haven't been diagnosed by a doctor, but that doesn't make it any less real. I'm not going to reintroduce gluten and feel horrible just for a doctor to tell me what I already know. On the other end of the spectrum, I got some attitude from a guy with Celiac (saying that the reaction probably wasn't due to communion because I still had gluten in my system). He made me feel like since I don't have Celiac, my problems aren't real. Luckily I do have some supportive friends and family members, and that makes a huge difference.

 

I joined this website because it has been so helpful every time I do web searches with any questions. Thanks already for the help! I look forward to becoming an active member  :D


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jhol Enthusiast

hi there,

 

just writing to say hi really, dont worry about not being diagnosed celiac, there are lots of us on here who have gone on the diet out of desperation . and had to work things out for ourselves. ask anything you like, people will always answer. only been on here since january myself .

 

good luck in working out what works for you :)

cahill Collaborator

Welcome Auntie Manda :)

julissa Explorer

welcome, it's nice to meet you

1desperateladysaved Proficient

Hi Aunty Manda,

 

It certainly sounds as if you have a positive dietary response.  Sometimes one even seems to react more than ever as the body recovers.  That is a good think, because it helps one learn the way.

 

I always try to give flowers to those who are new  *** That is my best flowers to date.

 

Get well, I am glad you have support,

 

Diana

  • 3 weeks later...
Life-Of-A-Gluten-Free-Wife Newbie

Hi guys!

 

Just stopping by to say hello! I was looking for a forum online talking about gluten free. My husband recently found out that he has a gluten sensitivity, we haven't gotten tested for celiac, but we know gluten is a problem. He gets very sick whenever he eats anything with gluten, he grew up thinking it was normal. Hoping to connect with a couple of people -

I am also on twitter too will follow you if you follow me. I also update my blog regularly. Looking for some online friends to share glutenfree info with.

jhol Enthusiast

hi there,

 

just saying ,you might be better off introducing yourself in one of the lists on the forum page. theres one for friends of a relative with celiac - or something like that. just click on that then on the start a new thread button. more people will see your post that way.ask any questions you want, even if you think its stupid/dumb - ive asked loads lol. only been here myself since january, ive had the tests - they were all negative. ive gone on the diet anyway and im currently waiting for allergy tests but im going off that im  gluten intolerant.

 

theres also a good read with the newbie 101 thread that will help you and your husband a lot. nice to hear from you - hope that helps :)


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    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
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