Study For Vaccine.......helpvaccine
Posted 03 April 2013 - 10:51 PM
I have not been on for a long time so I am hoping you all can help me.
I have a chance to do a study for a vaccine so I can eat normal again. I was diagnosed with blood and endoscopy. I really didn't have any symptoms. I found out by accident in 09 and have been gluten-free since.
Any way....this study is for a vaccine and I would have to eat gluten cookies every other day for 4 days, then get a vaccine. Thats pretty much the gist of it. ......I think. And I get $800.00 for doing it.
Can any one please tell me if this is a bad thing to do or safe or unsafe.
Thank you so much for reading.
Posted 03 April 2013 - 11:38 PM
For me - there is no amount of money that will make me regularly consume gluten - hmmm - perhaps there is a figure - but I think it would involve three or more decimal places
Edited to add: Unsafe gets my vote.
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/25/13 - MCAD
Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile
My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free
Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS
Get PROPERLY tested BEFORE REMOVING GLUTEN.
ALWAYS independently research health related information found on internet forums/blogs.
"LTES" a Gem
Posted 04 April 2013 - 03:51 AM
It isn't for me; I do not trust vaccines in general. I would suggest that you look objectively at the ingredients in the vaccine to see if it would be wise to put it in your body.
Posted 04 April 2013 - 07:31 AM
I agree with GottaSki.......I personally would not do it but I have horrible symptoms when glutened. You have been gluten-free for a while so if you decided to take part in this, you might end up really sick because people tend to become more sensitive the longer they are gluten free. You will be damaging your intestines to a point so please take that into consideration and don't do it just for the money. If you do, I wish you the best of luck with everything!
I have one question for you.....do you think Celiacs do not eat normally?
Posted 04 April 2013 - 09:04 AM
My vote would also be no, but it is up to you.
I'd be interested in seeing details of the study? Who is running it? What is the "vaccine" expected to do? (there's been plenty of debate over whether or not a true return to eating gluten is possible, even with drug treatment) Is the risk of weeks/months of being sick worth $800?
There's a lot of questions and a lot of risks there, so do make your choice carefully.
~ Be a light unto yourself. ~ - The Buddha
- Gluten-free since March 2009 (not officially diagnosed, but most likely Celiac). Symptoms have greatly improved or disappeared since.
- Soy intolerant. Dairy free (likely casein intolerant). Problems with eggs, quinoa, brown rice
- mild gastritis seen on endoscopy Oct 2012. Not sure if healed or not.
- Family members with Celiac: Mother, sister, aunt on mother's side, aunt and uncle on father's side, more being diagnosed every year.
Posted 04 April 2013 - 09:12 AM
Sounds like you need to know a lot more before agreeing.
Would I do it? No chance.
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Posted 04 April 2013 - 09:40 AM
I wouldn't do it.
Posted 04 April 2013 - 10:29 AM
I would make sure you really understand what you must do and what the follow- up is. It sounds like you don't really know enough to make a good decision. I'm assuming its a reputable medical center conducting it? Make sure they will give you treatment, at no cost to you, if something goes wrong. What your compensation is if you want to stop. What possible side- effects they have identified, etc. There are actual legal protocols in the US for drug/ medical testing. It is irresponsible for them to accept you into a study with the understanding of the testing you have written here.
Celiac.com - Celiac Disease Board Moderator
Someone told me I was delusional. I almost fell off my unicorn.
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