Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Study For Vaccine.......help
0

8 posts in this topic

Hello

I have not been on for a long time so I am hoping you all can help me.

I have a chance to do a study for a vaccine so I can eat normal again. I was diagnosed with blood and endoscopy. I really didn't have any symptoms. I found out by accident in 09 and have been gluten-free since.

Any way....this study is for a vaccine and I would have to eat gluten cookies every other day for 4 days, then get a vaccine. Thats pretty much the gist of it. ......I think. And I get $800.00 for doing it.

Can any one please tell me if this is a bad thing to do or safe or unsafe.

Thank you so much for reading.

Valerie

0

Share this post


Link to post
Share on other sites


Ads by Google:

In my opinion - this is your call.

For me - there is no amount of money that will make me regularly consume gluten - hmmm - perhaps there is a figure - but I think it would involve three or more decimal places ;)

Edited to add: Unsafe gets my vote.

0

Share this post


Link to post
Share on other sites

It isn't for me; I do not trust vaccines in general.  I would suggest that you look objectively at the ingredients in the vaccine to see if it would be wise to put it in your body.

0

Share this post


Link to post
Share on other sites

I agree with GottaSki.......I personally would not do it but I have horrible symptoms when glutened.  You have been gluten-free for a while so if you decided to take part in this, you might end up really sick because people tend to become more sensitive the longer they are gluten free.  You will be damaging your intestines to a point so please take that into consideration and don't do it just for the money.  If you do, I wish you the best of luck with everything!

 

I have one question for you.....do you think Celiacs do not eat normally?  ;):)

0

Share this post


Link to post
Share on other sites

My vote would also be no, but it is up to you.

I'd be interested in seeing details of the study? Who is running it? What is the "vaccine" expected to do? (there's been plenty of debate over whether or not a true return to eating gluten is possible, even with drug treatment) Is the risk of weeks/months of being sick worth $800?

There's a lot of questions and a lot of risks there, so do make your choice carefully.

0

Share this post


Link to post
Share on other sites




I would want to know if it offers immunity from effects of eating gluten (unlikely) or what they expect the results to be for you. I would be extra wary if there was no follow up testing in the months after to establish if it has 'worked'. Would it be one off or need repeating? Are they early or late stage trials? How many humans have been tested, with what results? Will one group receive a placebo?

Sounds like you need to know a lot more before agreeing.

Would I do it? No chance.

1

Share this post


Link to post
Share on other sites

Ummm... Why are you supposed to eat gluten, and THEN get the "vaccine"? How is that supposed to work? That's like getting the measles vaccine after you've already had the measles??

I wouldn't do it.

0

Share this post


Link to post
Share on other sites

I say go for it, if you want. Someone has to test new meds.

I would make sure you really understand what you must do and what the follow- up is. It sounds like you don't really know enough to make a good decision. I'm assuming its a reputable medical center conducting it? Make sure they will give you treatment, at no cost to you, if something goes wrong. What your compensation is if you want to stop. What possible side- effects they have identified, etc. There are actual legal protocols in the US for drug/ medical testing. It is irresponsible for them to accept you into a study with the understanding of the testing you have written here.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,876
    • Total Posts
      919,431
  • Topics

  • Posts

    • Celiac Sensitivity?
      For dining out, check out the website: http://Www.findmeglutenfree.com.  They list restaurants with gluten free menu's and options in your area and there are reviews from other celiacs on there to help you figure out the better, safe places to eat.  Great web site!   Although it is optimal to not dine out at first, reality sometimes gets in the way.  I had booked a trip months before I got really sick and would have lost a lot of money if I did not go.  A month after diagnosis, I flew overseas and ate out for dinner only every night.  I ate plain foods but they were well prepared so still quite good. I never got sick.  I was careful and it worked. Luckily, Europe was way more gluten free knowledgeable than the US at that time and still is.  So, it can be done if you are very careful!
    • Anyone experience brain fog like this?
      Thanks for the reply, melprkr! Feeling like you're still in a swimming pool moving is a good way to put it. It feels kind of like motion sickness, come to think of it, or a really bad hangover. I was curious because my experience of 'brain fog' in the context of thyroid problems feels so different than brain fog caused by gluten, and I couldn't quite figure out how to explain it. Swimming pool comes pretty close, though. Hope you feel better soon as well!
    • Anyone experience brain fog like this?
      Brain fog is a common symptom.  I had a hamburger patty from a local restaurant and am suffering the effects.  Sometimes mine is bad and sometimes it is mild.  This one feels mild, provided I am not "glutened" again.  I have the exact same feelings when I am contaminated.  I actually had 2 good days this week to ony have to go back through this again.  The first day is just tired and want to sleep, but as each day goes on it seems like all I can do to concentrate and do anything.  TV is OK but for me just standing up or moving sometimes makes me dizzy.  Luckily I don't have the nausea but even sitting still I feel like I am in a swimming pool moving.  You know kind of like when you were a kid and you got in the pool or went roller skating but then got out and and you still felt like you in the pool or skating?  The anxiety and the depression is the worst.  I am taking things to help with it but it doesn't always help.  Only thing that seems to help sometimes is just going in to my room and laying there and not moving and just going to sleep.   It will pass.  Just be cautious about everything.  I have opted to let my family know that I will bring my OWN food when we have gatherings.  I don't mind being the odd man out because I am already the odd ball.  One thing I have learned and that is people mean well but mistakes happen and we are the ones who have to pay the price.   Hope you feel better soon.
    • gluten intolerance, dairy intolerance and fructose
      Look into The Paleo Approach by Sara Ballentyne, PhD.  Great resource and will probably answer your questions.  I have the same problem. You have to really read labels.  The only coconut milk I can use is an organic canned one.  Others have too many ingredients that are problematic.  For now, stay with meat and vegetables as someone else has recommended.  If rice works for you, great.  If not, winter squash is good.  The diet change is overwhelming at first but then it starts to make sense.  The one good thing about an intolerance versus allergy is the possibility of someday being able to add it back into your diet once your gut has healed.
    • Anyone experience brain fog like this?
      I went gluten free about a month ago, and was finally feeling *great* last week when wham -- my well-meaning Dad cooked me dinner and forgot to check the ingredients on the fish sauce he used. The upside of being glutened for the first time is that, after a couple weeks of feeling good, I feel like I can discern the symptoms a lot better now. I've noticed that the worst part, aside from the nausea, is the "brain fog," but I'm curious if my experience of brain fog is the same as or similar to what other people are feeling. For me, it becomes almost physically painful to concentrate on anything. If I try to read a book, or watch a TV show, it makes me feel dizzy, overwhelmed, and nauseous. For a couple days, I feel like all I can do is try to stay still and do as little as possible while I wait it out. It feels similar to anxiety, but not quite the same, and none of the usual tricks for getting through a panic attack help. Do any of you experience brain fog in a similar way? Where it basically makes you feel sick to try and concentrate on anything, even fun and relaxing things?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,913
    • Most Online
      1,763

    Newest Member
    Mamalarge
    Joined