Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Fog Is Breaking Up: Memories Of Things That Cleared It.

1desperateladysaved

Recommended Posts

1desperateladysaved Proficient
1desperateladysaved
Posted

Last May I joined the forum and  I had gone gluten free a couple of months before.  I suffered 30+ years and have tried many things to cope with undiagnosed celiac. Now, I know what enemy I am facing, so I can cope much better. I am no longer tired all of the time.  I don't wake up as tired as I was before retiring anymore.  I don't always need a nap.  Thinking back over the years, there are many things that helped.  These will be in order of my recollection:

 

The herb fennel.  I made cookies with these, lost water weight, and gained energy.

 

Exercise:  Sometimes it would perk me up, but alas other times it devastated me.

 

CoEnzyme Q 10 supplement.  (It gave me energy and more alertness.)  In the end of my gluten years, it no longer helped.  I take a little now with my supplements.

 

I cut out sweets

 

I raise my own food. 

 

Sunshine.

 

Naps (Sometimes help)

 

I got mold out of the house. (Except that washing machine)

 

Back adjustments:  Six years back I nearly died.  I began having adjustments and doing exercises for my back.  In the beginning, I noticed I sometimes came out of the fog after doing these exercises.  Sometimes I noticed that I could breath easier.

 

Vitamin Supplements as recommended by my chiropractor.  These were miracle workers for me.

 

Get enough fat.  I get to feeling sluggish without coconut, olive, or butter with 3 meals a day.

 

Gluten Free Diet

 

Grain Free Diet

 

Pancreatic Enzymes

 

Washing nuts and legumes before eating.(This is here Thanks to Steph)

 

Food intolerance test/Rotational diet

 

Herbs for adrenal gland support

 

I will come back and edit this if and when I think of more things.  If you are tired, don't give up until you try all of these and more.  I made much better progress when I had help.

 

IF you have been helped by something put it below.

 

Diana

 

 

 

 

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


w8in4dave Community Regular
w8in4dave
Posted

Sounds like what your doing is working for you!! Someday I want to get where you are!! 

1desperateladysaved Proficient
1desperateladysaved
Posted
  • Author

I hope you will soon be there and beyond!  You've started to walk and I would encourage you to keep walking!

 

Diana

djs89 Rookie
djs89
Posted

Thanks for sharing this.

  • 2 weeks later...
1desperateladysaved Proficient
1desperateladysaved
Posted
  • Author

Your welcome.  I hope it will give people ideas.  I am hoping people will get better one step at a time.

 

Gonna fly now, I hope!

dilettantesteph Collaborator
dilettantesteph
Posted

I'm so glad that things are getting better for you.  That brain fog is terrible.  I get it too.  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    2. YoshiLuckyJackpotWinner888
      - YoshiLuckyJackpotWinner888 replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Water filters are a potential problem for Celiac Disease

      Most people are already deficient in minerals. I can understand the concern. However, if you do happen to get enough through supplementation, drinking pure distilled water is not going to matter. I happen to get over 100% of rda vitamins and minerals. I push myself to get 4000 mg of potassium a day through food, drinks, and supplements combined....
    3. knitty kitty
      - knitty kitty replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Water filters are a potential problem for Celiac Disease

      Reverse osmosis water pulls electrolyte minerals out of the body. If used for cooking, RO water will even pull even more electrolytes out of the food. If you're not replacing electrolytes because you're eating food cooked with RO water, you can suffer from Electrolyte Imbalance. The symptoms of Electrolyte Imbalance are similar to those that occur...
    4. Wheatwacked
      - Wheatwacked replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Water filters are a potential problem for Celiac Disease

      Library paste and paper mache. I have in passing read of wheat based glue used to glue fish tank filters together so it is not surprising they might be in refridgerator filters. Seems the issue with bottled water would be at the personal filters rather than the mass filtering. Just have to boycott the brands that effect you. Gatorade drinks all have...
    5. YoshiLuckyJackpotWinner888
      - YoshiLuckyJackpotWinner888 replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Water filters are a potential problem for Celiac Disease

      What non organic or nonorganic molecules from a plastic bottle of water can trigger a reaction that I have only experienced during an auto immune experience? There really should not be any organic molecules in such a bottle. I seen a thread where it was mentioned that his refrigerator water filter tested positive for gluten when he had it checked. If...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,577
    • Most Online (within 30 mins)
      7,748
    Claire Carucci
    Newest Member
    Claire Carucci
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • YoshiLuckyJackpotWinner888
      Water filters are a potential problem for Celiac Disease

      By YoshiLuckyJackpotWinner888 · Posted

      Most people are already deficient in minerals.  I can understand the concern. However, if you do happen to get enough through supplementation, drinking pure distilled water is not going to matter.  I happen to get over 100% of rda vitamins and minerals.   I push myself to get 4000 mg of potassium a day through food, drinks, and supplements combined. I don’t know anyone else that does. The rda is closer to 4700 mg a day. For anyone else that might be deficient, I suppose tap water might be a better option.  I personally can’t stand the taste of most city tap water sources.  I don’t mind mineral water and prefer it when possible. I recently found out we would need to drink 5 liters of San Pellagrino mineral water a day to get enough lithium to satisfy the suggested 1 mg a day. Unfortunately, this and other mineral waters can also have trace amounts of uranium that occur naturally in nature. Uranium is not a good thing to have in your water. I wouldn’t want that or naturally occurring lead in my water.  There is no perfect solution for drinking water.  Smart water distills and then adds back in some electrolytes.  I could evaporate two gallons day of tap water or mineral water and the remaining sodium, potassium, calcium, magnesium, iron, etc… wouldn’t amount to what I already consume on a daily basis. I’m not worried about drinking distilled water. 
    • knitty kitty
      Water filters are a potential problem for Celiac Disease

      By knitty kitty · Posted

      Reverse osmosis water pulls electrolyte minerals out of the body.  If used for cooking, RO water will even pull even more electrolytes out of the food.  If you're not replacing electrolytes because you're eating food cooked with RO water, you can suffer from Electrolyte Imbalance.  The symptoms of Electrolyte Imbalance are similar to those that occur with being exposed to gluten.   Also consider that many people with Celiac disease have malabsorption issues and may already be low in electrolytes.  Exposure to RO water may create some health changes more quickly than in healthier individuals.   RO water impacts the body in many ways.  Read this fascinating study.   Long-Term Consumption of Purified Water Altered Amino Acid, Fatty Acid and Energy Metabolism in Livers of Rats https://pmc.ncbi.nlm.nih.gov/articles/PMC11122726/ Drink mineral water.  
    • Wheatwacked
      Water filters are a potential problem for Celiac Disease

      By Wheatwacked · Posted

      Library paste and paper mache.  I have in passing read of wheat based glue used to glue fish tank filters together so it is not surprising they might be in refridgerator filters. Seems the issue with bottled water would be at the personal filters rather than the mass filtering.  Just have to boycott the brands that effect you.  Gatorade drinks all have either gums, modified starches or stevia that might be affecting you.  Looking for energy or hydration try Red Bull.  It has the vitamins, minerals, antioxidant Taurine, sugar and glucose to process the sugar from mouth to ATP and clean up. Taurine is essential for protecting mitochondria from damage, such as from reactive oxygen species (ROS) or calcium overload. If you are exclusively drinking bottled water you may want to consider taking Lithium Orotate 5 mg.  We need about 1 mg a day of Lithium and mostly it is gotten from ground water.  Lithium deficiency can cause anxiety and suicide.  I find it helpful. Lithium in the public water supply and suicide mortality in Texas: Journal of Psychiatric Research Is Lithium a Micronutrient? From Biological Activity and Epidemiological Observation to Food Fortification
    • YoshiLuckyJackpotWinner888
      Water filters are a potential problem for Celiac Disease

      By YoshiLuckyJackpotWinner888 · Posted

      What non organic or nonorganic molecules from a plastic bottle of water can trigger a reaction that I have only experienced during an auto immune experience? There really should not be any organic molecules in  such a bottle. I seen a thread where it was mentioned that his refrigerator water filter tested positive for gluten when he had it checked. If I went to physician to get checked for other possible triggers from a water bottle, I don’t think that will go anywhere. Again, distilled water containers cause no reactions. I’m not an industry expert, but something is there.  I don’t think that this is a case of microplastics causing this. Too bad we can’t call upon some third party investigation.  
    • Scott Adams
      Reverse Osmosis (RO) Water

      By Scott Adams · Posted

      It’s understandable to want to be cautious, especially after experiencing symptoms. However, there is currently no scientific evidence that reverse osmosis or standard activated carbon water filters expose people to gluten in amounts that would trigger celiac disease. Gluten is a protein, and if any starch-based binder were used in filter manufacturing, it would not pass through RO membranes or remain in finished bottled water at clinically meaningful levels. Plain water — filtered, RO, or bottled — does not contain gluten unless it is intentionally added (which would require labeling). Steam-distilled water is certainly safe, but it is not considered medically necessary for people with celiac disease. If reactions are occurring, it may be helpful to explore other potential explanations with a healthcare provider rather than assuming filter-related gluten exposure.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.