Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Upcoming Conference


christianmom247

Recommended Posts

christianmom247 Explorer

Hi! I'll be attending a conference next month where I'm likely to have no access to safe food. The nearby restaurants will have very long lines and limited selection during our short meal breaks. I won't have access to any fridge or micro, even in the hotel room. Any ideas on what I can take to eat besides a large pack of Kind bars? :wacko:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Will you have access to a grocery store?  Check online for a small grocery within walking distance.  Or will the hotel have a breakfast buffet?  If so, you can snag fresh fruit (bananas, apples).  Bring your own cereal, boxed milk (shelf stable) and make use of your ice bucket in your room.  It can act as a mini cooler to chill down juice or milk.  Small jar of peanut butter (good on apples), canned meats (e.g. salmon, tuna), crackers,  Go Picnic gluten-free Meals to Go, bagged salad (great with the canned salmon), veggies that you can eat raw.

 

Bring a small bowl, spoon, knife (if you're checking luggage), small cutting board, can opener and a folding mini cooler or buy a cheap foam cooler and you can toss it out at the end of your trip. 

 

I'm sure others will have ideas that I've forgotten.  I used to haul this stuff around even before my diagnosis because of my food allergies and I didn't like eating out very often by myself while on business trips.   

kareng Grand Master

Hi! I'll be attending a conference next month where I'm likely to have no access to safe food. The nearby restaurants will have very long lines and limited selection during our short meal breaks. I won't have access to any fridge or micro, even in the hotel room. Any ideas on what I can take to eat besides a large pack of Kind bars? :wacko:

Have you asked the hotel about a fridge? Many have them for people with a medical need. They aren't supposed to ask what the nature of the medical issue is. Call and ask about the hotel store or any stores nearby that might sell food items like a Quick Trip or grocery.

gluten-free beef jerky. WF has shelf stable pepperoni I think is gluten-free.

Go picnic boxes. Little squeeze packs of PB or Almond butter. Crackers. Nuts. Dried fruit - raisins, etc. Chex cinnamon or choc cereal. Instant noodles & gluten-free oatmeal if you have access to hot water ( coffee maker or the water for tea at the hotel breakfast). Pudding cups.

Apples & grapes & bananas do well at room temp. Really most fruits, tomaotes, etc. Might be able to buy a yogurt, chips, candy, banana to supplement.

A small cooler - get ice from the ice machine - Cold cuts & cheese. frozen sandwich. Salad - freeze the chicken. Yogurt. Hard boiled eggs. You might have to eat the cooler sandwich and salad the first day and then move on to the shelf stable foods. I find the little cheese sticks that are individually wrapped are OK for about 5 hours unrefrigerated and don't really go bad after that either its just they get soft.

Being a few paper plates, plastic baggies, plastic forks, spoons and a small paring knife. Maybe a cutting mat but I usually us a paper plate to cut an apple. Just to be prepared if there is something you can eat. Maybe a couple of the individual serving sizes of wine? gluten-free beer? You can ice up a bottle in the sink pretty quickly.

I'm not sure if you are driving or flying so that may effect how much you can bring. I got the mini crock pot that is made for heating up pre- cooked food in a few hours. You could bring a can of Bush's beans or freeze some chili and use that. Then come back to your room for lunch. They sell them at Target and Walmart.

Adding- bring a few napkins. I never have them when eating in your room.

Open Original Shared Link

  • 3 weeks later...
notme45 Newbie

If you tell the hotel that you have a restricted medical diet then you might be surprised at how willing the hotel is to allow you to put food in their refrigerator.  It also wouldn't surprise me if the hotel actually does have a set of microwaves and min-fridges that they just don't admit to having unless you push a little bit.  Call the hotel and if the first person whom you speak to isn't willing to help then ask for a manager.  

 

Worse case scenario is you ship a cooler to yourself and fill it up with ice from the ice machine.  Microwaves are cheap these days.

 

By the way, the "find me gluten free" app is very helpful for finding places that sell gluten free products and or have gluten free menus.  You can see a web based version of the app if you google "find me gluten free". 

anti-soprano Apprentice

don't forget nuts, assuming you can eat them.  I recently discovered that nutella on potato chips is a gift from God.  You may have to pack a bib for that one, though.   :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MoniqueCham replied to MoniqueCham's topic in Related Issues & Disorders
      3

      Celiac Disease, Lymphocytic colitis and Bowel rupture

    2. - Scott Adams replied to HelenH's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Malt vinegar

    3. - Scott Adams replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      55

      Supplements for those Diagnosed with Celiac Disease

    4. - Scott Adams replied to MoniqueCham's topic in Related Issues & Disorders
      3

      Celiac Disease, Lymphocytic colitis and Bowel rupture

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,550
    • Most Online (within 30 mins)
      7,748

    TNV
    Newest Member
    TNV
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • MoniqueCham
      Thanks for your reply Scott! A long time ago I realized I didn’t fit neatly into uncomplicated celiac disease. Over the years I’ve been diagnosed and treated for SIBO, pancreatic insufficiency and diagnosed with Stage 2 liver fibrosis. I think all the complications occurred because of the refractory celiac disease. When I hit menopause my gut issues seemed to calm down and because I was stable I made the mistake of not following up with my gastroenterologist. Then other autoimmune problems flared and I tried the methotrexate. It worked like a charm for my skin condition… then my sigmoid colon ruptured. Strange but my autoimmune skin condition remains in remission after 6 months off the medication. We have a very long waiting list to get back into see my GI doctor… I was an emergency referral but am still waiting 6 months after the perforation. I need more surgery to fix a fistula that has formed and to reconnect my colon… I have a colostomy at present. I became a dietitian who specializes in bowel diseases but have never met anyone who’s had so many complications with celiac disease. I have a brother and son who also have been diagnosed. My mother had 4 autoimmune diseases including a vasculitis that eventually resulted in her death and it was my father who had the HLA DQ2 gene. Think I inherited some tendencies from each of them. Thanks again for your response… it feels a little lonely dealing with GI issues when I work so hard to remain gluten free.   
    • HelenH
      Thank.you both
    • Scott Adams
      Yes, unfortunately malt vinegar can definitely trigger a strong reaction in people with celiac disease. Malt vinegar is typically made from barley, which contains gluten, and unlike distilled white vinegar, it is not considered gluten-free. Even a small amount — especially if you’ve been strictly gluten-free for years — can cause a more intense reaction because your body is no longer accustomed to exposure. Many people report significant symptoms after accidental ingestion, including abdominal pain, diarrhea, fatigue, or flu-like feelings. You’re not alone in that experience. It may help to be especially cautious with salad dressings, chips, sauces, and restaurant foods, where malt vinegar is sometimes used.
    • Scott Adams
      A diagnosis of Refractory Celiac Disease Type 2 is a lot to absorb, especially if you feel like the severity wasn’t clearly communicated earlier. It’s understandable to feel shocked and frustrated. RCD Type 2 does require close specialist care, often with a gastroenterologist who has experience managing complex celiac cases, and sometimes coordination with hematology because of the immune cell changes involved. Focusing on nutrition is absolutely important — many people benefit from working with a registered dietitian who specializes in celiac disease to help address malabsorption, weight loss, and vitamin or mineral deficiencies. You’re doing the right thing by seeking information and support. Make sure you feel comfortable asking your care team direct questions about your biopsy results, treatment plan, and monitoring strategy — you deserve clarity and a coordinated approach.
    • Scott Adams
      I’m so sorry you’ve been through all of that — that’s an incredibly complex history. While methotrexate is widely used at low weekly doses for autoimmune conditions, it can, in rare cases, cause serious gastrointestinal side effects, including ulceration, mucosal injury, or even perforation. That said, a spontaneous sigmoid rupture from methotrexate at 15 mg weekly is extremely uncommon. In people with celiac disease — especially refractory celiac — there can already be underlying intestinal inflammation or altered mucosal integrity, which might theoretically increase vulnerability, but there isn’t strong published evidence clearly linking stable celiac disease to a markedly higher risk of methotrexate-related bowel perforation. Other factors such as concurrent inflammation, vascular compromise, infection, steroid use, or microscopic colitis may also contribute. It would be reasonable to review the case with a gastroenterologist familiar with refractory celiac and possibly a rheumatologist, and to report the event as a potential adverse drug reaction. I’d also be very interested to hear if others in the community have had similar experiences.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.