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Uk Not Much About Brain Fog?

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I am waiting for my final confirmation that I have coeliac although it seems pretty sure to myself and the doctors because of the blood test results.

My symptoms are tiredness, anxiety , depression, miscarriages and brain fog, which all seem to be discussed a lot on here, But practically nothing on any uk based sites. This seems a bit odd to me , cant really find a mention of brain fog at all and mentioning it to a doctor they just look at me slightly blankly. I feel a bit like i may be pinning my hopes in coeliac being the cause of my problems when it may turn out that it isn't. Anyone else found this ? Its like the Uk are just not recognising the links? Thanks!


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Hi Wiggle, I've had most of your symptoms including brain fog. I know what you mean about your family gp not understanding about brain fog. Have you been referred to a specialist yet? because mine is brilliant and totally gets it!

I joined coeliac uk in January (expired now) and attended a local seminar run by Dr Stuart Currie a neuroradiologist working with Professor David Saunders, Dr Hoggard and Dr Hadjivassilou. Dr Currie is currently in research looking at brain aspects and imaging in patients with Coeliac disease/gluten ataxia and he also talked alot about brain fog.

If you google his name, you will find info on brain fog etc.

Good luck with the testing.


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I am in the UK too, and have struggled to find up to date information here. This site has helped tremendously, especially about the mental side of things. VeggieGal's comments are really helpful.

It is great that good research is happening, my experience is that GPs are very mixed in their level of knowledge.

I am sorry to hear about what a difficult time you have had. I had many miscarriages before my 2 lovelies, sorry you have had to go through that.

I hope you get your diagnosis, but if not, consider whether it might be non celiac gluten intolerance. That is my diagnosis, and my life has transformed gluten-free.

Stick around and ask lots of questions

Welcome to the board :)


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Thank you both, so fantastic to get replies on here makes me not feel such an odd bod!

On to a bit more googling right now , thanks veggie gal.

So you guys found the gluten free did make a difference to the dreaded fog? anyone join a local group too?

:) x


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Brain fog, depression, stress, anxiety all gone gluten-free :)

In fact, the first sign I get when I accidentally eat gluten is a feeling of hopelessness and dropping into depression. Even though I now now it will pass in a couple of days I feel I will never cope again.

It is very real, plenty of folks here will agree.

I found celiac UK a bit helpful, I used their helpline a few times. They can give you details of local groups. Their food directory is extensive, covering all the main supermarkets and catering suppliers. They are launching an app for members. They give different advice to here, and I tend to check things out here.

I found I had other intolerances, and don't eat any processed foods now. If you use gluten-free food replacements keep an eye on fat sugar and salt, as they can be higher.

I have used this as my support group, there is good chat on the what's for dinner thread and tickle me elbow as well as the health side of things.

Nice to meet you :)


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    • Hi everyone, I've been reading this forum sporadically and have some questions of my own. I'm in my 40s and was diagnosed with celiac last December by biopsy and blood work after months of tests by my primary and then a gastro. My husband, around the same age as me, was dx'd with stage 4 cancer a month later, so admittedly it's took me longer than I'd have liked to learn about celiac. Now I feel pretty on top of my diet. I mostly make my own food - proteins and veggies, with some certified gluten-free snacks in the mix - and am pretty strict about what I will/won't eat at friend's houses or in restaurants (I prefer to go to dedicated gluten-free kitchens whenever possible). I'm doing okay on the diet, but still getting glutened every so often, usually when I let me guard down outside the home. I also periodically see my primary and a naturopath (who happens to have celiac!), but still, I have many questions if anyone would care to answer:

      -FATIGUE. I'm still so tired, fatigued so much of the time. My doctors blame this on the stress of my husband's diagnosis and my periodic trouble sleeping. But even during weeks where I'm sleeping enough (8-10 hrs a day), eating right, exercising as I can, trying to keep stress at bay, I'm still so bleeping tired. Maybe not when I wake up, but by late afternoon. Often my legs even feel weak/wooden. Has anyone else experienced greater fatigue early on after being diagnosed? This will pass, yes? I know I could cut out the sweets and that could help, but also, being a caregiver is hard and sometimes it's nice to eat your feelings between therapy sessions.  

      -SYMPTOMS CAUSED BY FATIGUE? Sometimes I'll have other "feels like I've been glutened" symptoms if I haven't gotten enough sleep, though I'm trying so hard to sleep at least 8 hours a night these days. Hasn't happened in a while thankfully, but there was a point this summer where my insomnia was bad and my arms were achy and I had some crazy flank/back pain I'd never experienced before. For weeks. Doctor ordered me to sleep sleep sleep, taking Benedryl if needed. I did, and the symptoms went away, but weird, yes? Has this happened to you? I ask because I want to make sure I'm getting all strange pains tested to the full extent if there's a chance it's something other than celiac. I do sometimes still feel that strange side stitch after a CC incident.

      -SKIN PROBLEMS. I have had a smidge of eczema since I was a teen and it - and the dermatitis herpetiformis I've acquired with my dx - are out of control right now. I recognize the connection with stress, but also, has anyone found any great natural remedies for DH to stop the itching? I've tried so many useless ointments and medicated creams, a number of them given to my by a dermo months ago. I see my naturopath this week, but thought I'd ask here too.

      -MOSTLY gluten-free KITCHEN GOOD ENOUGH? My husband is supportive of my diet and mostly eats gluten free meals with me, but we still keep a gluten-y toaster for him and the gluten-y dog food in a corner of the kitchen and he still makes the occasional meal with gluten for himself on his own cookware (ravioli, pizza, mac n cheese, etc). Or sometimes I make eggs/toast and the like for him when he's too sick to move. Otherwise, we're militant about how we cook, which cookware we use, etc. He even has a kitchen nook off our den where he makes sandwiches. But sometimes I wonder if having two separate sponges in our shared-ish main kitchen is enough and I should just banish all gluten whatsoever from the kitchen. I can't be the only one with a mixed kitchen, right? How do you do it if you have a mixed-eating family?

      Thank you so much!  
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