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Fibromyalgia Anyone?

angieInCA

By angieInCA
in Related Issues & Disorders

Recommended Posts

cyclinglady Grand Master
cyclinglady
Posted

My vitamin D was 23 last time and I'm taking 1000 II daily.I'm wondering if I should be taking more. It's funny when I was 23 and began having arthritic symptoms, the Dr. put me on B6. But let. me back way up. Did anyone lose their baby teeth for no reason?? When I was 5 all my baby teeth had turned black and I lost them. Many dental problems all my life and skeletal problems. They've been trying to "fix" the anemia since 2011. Any thoughts??

I have two anemias: thalassemia (genetic) and iron deficiency which did not respond to iron supplements due to undiagnosed celiac disease. Vit. D was also low even after taking 2,000 units a day! Everything has improved with my celiac disease diagnosis and gluten-free diet. I also have osteopenia and they suspect osteoporosis in my upper back since I had a fracture doing nothing! I hope you find answers to your health issues.

Never give up!

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cyclinglady Grand Master
cyclinglady
Posted

Oh, my mom has Fibro and Graves (thyroid) but recently tested negative to celiac disease. She does not believe that foods could trigger symptoms even though her kids and grand kids (some) have allergies/asthma/food intolerances to the same things (i.e. Nuts, eggs, milk proteins). I completely disagree!

somanyquestions Newbie
somanyquestions
Posted

I never got a proper diagnosis of what kind if anemia I had. It didn't respond to iron, B12, or anything else. My Dr. situation was wacko. I could never get them all on the same page, thus did my own research. Mostly by reading everything about chronic pain and digestive disorders. So by process of elimination I got it. No gluten, milk, eggs, and maybe a few other things. I have a long way to go, having been sick since childhood. Thank you for answering

somanyquestions Newbie
somanyquestions
Posted

Ive known it had something to do with food since way back. Wheat in particular because I'd have arthritic symptoms after eating it. Strangely the whole wheat (healthy) cereals, breads etc were the only kind I wanted. I'm thankful for this forum cause I really felt like a hypochondriac!!!!

cyclinglady Grand Master
cyclinglady
Posted

I never got a proper diagnosis of what kind if anemia I had. It didn't respond to iron, B12, or anything else. My Dr. situation was wacko. I could never get them all on the same page, thus did my own research. Mostly by reading everything about chronic pain and digestive disorders. So by process of elimination I got it. No gluten, milk, eggs, and maybe a few other things. I have a long way to go, having been sick since childhood. Thank you for answering

Thalassemia will not respond to iron and iron over load can be dangerous if given and not monitored. On your CBC lab tests, anything out of range? My red blood cells are tiny: mcv,mch,mchc and are all out of range (entire life). The good news is that my body does compensate for having a low hemoglobin (just below range) but when it really gets too low from low iron stores (that is from celiac disease) and I feel the effects: fatigue, out of breath.

pricklypear1971 Community Regular
pricklypear1971
Posted

Thalassemia will not respond to iron and iron over load can be dangerous if given and not monitored. On your CBC lab tests, anything out of range? My red blood cells are tiny: mcv,mch,mchc and are all out of range (entire life). The good news is that my body does compensate for having a low hemoglobin (just below range) but when it really gets too low from low iron stores (that is from celiac disease) and I feel the effects: fatigue, out of breath.

 

Thal can go the other way. You can have high rbc, low almost everything else and good or high iron. If a doc runs a "basic" cbc s/he may assume you are anemic, when you really are overloaded or fine on iron.

 

My son is fine, my husband is overloaded. Life just got interesting around here.

cyclinglady Grand Master
cyclinglady
Posted

Thanks for adding more information on Thalassemia!  I was being very self-centered and just though about my issues with it!   :)

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    • Haugeabs
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Haugeabs · Posted

      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
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      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
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      That is the goal, after all.  
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    • Known1
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

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      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
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