Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Common Deficiencies & Shortness Of Breath


sidelined

Recommended Posts

sidelined Apprentice

I've been gluten free for almost 3 months, but I'm still feeling pretty lousy. Just found out my vitamin D is quite low (level was 15; "normal" range starts at 30). I'm hoping that explains some of the lethargy etc. My most troublesome symptom continues to be my shortness of breath/inability to catch a breath/air hunger. I haven't been tested for any other vitamins/minerals & related deficiencies, but as Vitamin D is typically not correlated with SOB, I'm curious about other's experiences with deficiencies and wondering which are most common to Celiac.

 

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HavaneseMom Explorer

Hi sidelined,

I had Vitamin D, B12 and Iron checked around the time of my diagnosis. My D and Iron came back deficient. Have you had your iron levels tested? I have noticed a lot of people on this forum have had anemia at diagnosis. Low iron or iron definciency anemia could definetely cause shortness of breath and fatigue. I couldn't walk up the stairs at my house without gasping for breathe when it was at its worse. Ask your doctor to have your Ferritin level tested specifically, in addition to the Complete Blood Count if it hasn't been done yet. If you are having a problem with iron, your Ferritin level could show it before your CBC will. I did a quick search and found this link that explains it better:

Open Original Shared Link

Hope you feel better soon. If it is your iron, it might take a little time to correct. I'm still working on mine.

  • 2 weeks later...
KCG91 Enthusiast

Definitely get your iron levels checked if you are short of breath. I have always exercised a lot and never got any quicker - and could never walk up the hill to lectures without puffing - until I got tested and got onto some supplements. Six months in my absorption is good enough to handle it alone :)

NatureChick Rookie

Ditto on the iron but I'd make sure they check B12 as well. But I'd get a full panel that includes about two dozen vitamins and minerals.

Here is an official list of the deficiencies common in celiac.

Open Original Shared Link

But before you get more tests, get the printed copy of the tests you have already had. Just testing vitamin D would be pretty odd. It may be that the doctor only mentioned the one that tested as being low. But just being in the normal range doesn't mean that a level of something is ideal, and many "normal" ranges dip low enough to still cause symptoms so you have to get your results in hand and do your own research.

Sorry that I know nothing about shortness of breath as a symptom, but I wish you luck.

nvsmom Community Regular

Other nutrients that can be a problem are Ca, A, B12, Fe, Mg, K, zinc, Mg, and Cu.

 

Hypothyroidism can also cause fatigue and it linked to celiac disease.  It might be something to check out.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,464
    • Most Online (within 30 mins)
      7,748

    Richard withey
    Newest Member
    Richard withey
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.