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Newly Diagnosed, Questions

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18 replies to this topic

#16 SMRI

 
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Posted 23 July 2014 - 02:46 AM

The "gold standard" for an official diagnosis is positive blood work and a positive biopsy.  It seems to be the consensus here that positive blood work is Celiac hands down and maybe your doctor feels the same. There are others that won't give you the time of day if you are not "biopsy positive"  Is he a GI Celiac specialist?  I guess if soda were giving me stomach pains, I would consider the endoscope for both the biopsy and just to make sure you don't have a hiatal hernia or ulcers but it would also depend on what your insurance is like because they are spendy.


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#17 user001

 
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Posted 23 July 2014 - 06:34 AM

You said you eat salads? I know I love raw veggies but they are very hard to digest, also the dressings you are using might have a gluteny ingredient. and cross contamination.. is someone picking crutons off that salad?


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Beef and pork free due to intolerance since 2005, Gluten free since March 2014, Coffee free due to a developed intolerance June 2014, Egg free due to a developed intolerance August 2014
Misdiagnosed since 2000 with chronic fatigue syndrome, major depression and anxiety disorder.
Requested doc test for Celiac disease in April 2014.
Blood test positive for  Celiac disease May 2014.

Celiac Dx confirmed via small intestine biopsy 6/26/14
Fatigue,.depression, anxiety, daily headaches, and a laundry list of other symptoms have diminished slowly since I stopped eating gluten.

Who knows how much longer I would have suffered if I continued to rely on doctors to think of testing me for celiac disease.

BE AN ADVOCATE FOR YOUR OWN HEALTH!


#18 icelandgirl

 
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Posted 23 July 2014 - 07:36 AM

Hello everyone,
 
Glad to have found the forum.
 
I am 27 years old and have been having stomache pain since April 2014. I was diagnosed with Celiac from blood test on July 3rd, 2014.  I realize I might still need to get a intestinal biopsy but my doctor said first that I needed to go completely gluten-free and take probiotics... (florastor)
 
So the very first week going gluten-free was like heaven. 2 days after going gluten-free I felt great. Stomach felt normal, etc... But after that first week my symptoms seem to come back full force and even worse. It is now July 22 and I am having very few good days. From reading other posts on here I realize this probably isn't a long enough time to determine anything if my gut is healing (I think I am one of the lucky ones because I never had stomach pain or any digestive issues prior to April 2014. I am hoping that means my gut isn't too badly damaged).
Did anyone else have a period of "amazing" right after going gluten-free and then it actually get worse?
 
The Big D and stomach pain are my two biggest things I am dealing with right now.
 
Does sugar/soda effect anyone else? I am really trying to determine what causes me to feel bad, but then again maybe it is too soon and I will just have good and bad days.
I have cut out soda for right now which is very hard since I work late into the night. But maybe that isn't the problem.
 
I have been eating some gluten-free products and a lot salads... I have been 100% gluten-free since July 4th. I am trying to go completely organic but baby steps.
 
I am starting a food journal to try and see if I can determine what causes worse days.
 
Any other advice?
 
Thanks everyone.

I did have a time that I felt like things were getting better. April was great! Since then I've had lots of issues though. I do keep a food journal to try to pin point what bothers my system. Also, I still can't do raw veggies without issues and I'm 6 months in.
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January 2014-Celiac
August 2014- Hashimoto's



"You never know how strong you are, until being strong is your only choice."
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#19 Brian Jackson

 
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Posted 23 July 2014 - 06:36 PM

Thanks everyone for taking the time to comment, I do appreciate it. I don't think I am going to get a biopsy because of price right now... due to the fact that the doctor said I tested postiive for celiac with the blood test and that I can tell it is food that is affecting me.

 

I had a good day today!! No Big D for the first time in probably a week and as I type this I am completely pain free in the stomache :)

 

So you know what I'm gonna do? I'm literally gonna eat the same thing every day for a while lol. I want to make sure I am healing for a while before trying alternative things.

 

I guess it must be different for everyone but today all I ate was fresh chicken, salad, cucumbers, tomatoes, strawberries, blueberries, 2 gluten-free protein bars, a turkey sandwich with canyone bakehouse gluten-free bread + cheese, maynoise, etc....

I also didn't have any soda or any sugar drinks.... I drank straight water all day. And actually I feel pretty energetic still.

 

Cross your fingers for me. Will see how it goes over the next couple days. Probably will wait a week until I try putting anything else into my mouth :)


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