Heard the fibro word back in the 90's. Dismissed it. I felt I did not fit the symptom profile at all. Heard it again in 2004. One pain management doc, in a 5 minute consult poked me in a few places and said 'you have fibro. sorry... there's no treatment for that.". Another doctor told me "it doesn't exist"
Neither my rheumatologist , my PCP nor I thought it was right. (I do have OA so the joint pain made sense. but the muscle weakness, loss of muscle mass and knotty muscles--hard as rocks? that was all celiac)
Doctors ASSume all muscular pain is "fibro". Most doctors think this is a dead-end wastebasket diagnosis.
They throw all sorts of drugs at it (docs say tramadol is not addictive, sure, okay...just be careful when you try to stop it--wean off it slowly)
using anti-depressants for fibro and IBs--totally wrong. If someone is not in need of seratonin reuptake inhibitors, all hell breaks loose. this may actually lead to depression symptoms and insomnia. Lyrica is a crap drug that causes more symptoms than it relieves (in those who have told me they tried it anyway)
Most muscle and joint pain IS in fact, related to celiac damage (vitamin deficiencies, etc)
Please don't buy into the fibro Dx entirely. I have come a long way in healing, I went to physical and massage therapy, worked with a physio-weight trainer and have regained the ability to do yoga, walk, swim and ride a bike. I still have some pain, yes, but my muscles took the brunt of the damage from decades of undiagnosed celiac. I never give up..
At DX, I could barely walk and it hurt just to have clothes on or to lay down. I sizzled with nerve pain.
Please be very careful with drugs that mess with your stomach. The last thing you need is to irritate your Gi tract any further.
I take no meds (sure, I'd love to be able to take a magic bullet to stop the pain) and I move constantly so my muscles can become reconditioned.
Fibro is poorly understood, but I did see an article that says they know the cause of it. This is good news for true fibro sufferers--as it may lead to a cure.
Be patient with the healing process. I can't tell you how many people (women in particular) I know who were given this fibro DX---only to discover it was gluten and celiac all along causing that pain.
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
"If you want to lift yourself up, lift up someone else" Booker T. Washington
“If idiots could fly, the sky would be like an airport.”― Laura Davenport
"Do or do not. There is no try. "- Yoda.
"LTES" Gem 2014
Misdiagnosed for 25+ years; Finally Diagnosed with Celiac 11/01/10. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.