Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Effective Research Review - Critical Analysis Of The Study Used To Establish Gluten Threshold


weluvgators

Recommended Posts

weluvgators Explorer

The following article from the Celiac Support Association was super interesting to me.  I am trying to digest it all and apologize if it has been posted here before.

 

Open Original Shared Link

 

I am always amazed at how much research our family has had to do to advocate for our health and wellness.

 

In case my link is messed up, the article is:

"Reviewing medical literature:  a primer for those living with Celiac disease

The safety, toxicity or otherwise of gluten...

Author:  Dr Geoff Forbes (MBBS, MD, FRACP) is a Gastroenterologist at Royal Perth Hospital, Perth, Australia; and Clinical Professor with the University of Western Australia.  He is a clinician with expertise in immune conditions of the gut and in clinical nutrition.  He is a teacher and researcher, and as he has family members with Celiac disease, he has a first hand knowledge of living with the gluten-free diet."

 

It is so refreshing to have such an advocate for the celiac community.  I just hope Australia heeds his words of wisdom!  I am still astounded at what a difference the strict legislation in Australia has made for our family.  I just pray that it stays that way and that other countries around the world follow their lead.  I think New Zealand currently has the same standards, but am not positive.

 

There is so much good stuff in the article, but I love the commentary on "Interpretation by others of a study after publication", and the first paragraph (repeated in bold as last paragraph of his summary and conclusion) really resonates with me.

 

 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

Thank you for posting this.  I like it that he recommends reading published reports. 

Link to comment
Share on other sites
weluvgators Explorer

I feel a little bit alone in this. Surely there are many of you that cope with celiac by trying to plough through medical research, aren't there? I have a hard time keeping it all straight sometimes. I am not a medical doctor, nor do I want to be in healthcare in any way. While he recommends reading published reports, I get frustrated by the limited access there is to full text articles. Easy to say read the whole thing when you have access to materials that seem to cost a fair bit just to see if you can even decipher the information. How is the general public supposed to get access to the materials to do a proper analysis? Never mind that many times I want to backtrack to the references that may be used in articles too.

I went through the presentation link that was posted by CSA. It seemed like a really cool summary of how to approach analysing medical literature when we can get the full text articles.

Has anyone found a cost effective way to track down medical journal articles when wanting to read them to figure out how they may apply to our own healthcare? Even some of the links posted at celiac.com seem to take me to a login page for medical publications. Am I missing some obvious way to access this stuff?

Link to comment
Share on other sites
dilettantesteph Collaborator

I'm not sure about in Australia, but here in the U.S. you can often get journal articles from your local library.  You need to special order them but they get you copies in a few days.  You can also go to the local university library and get access there sometimes.  I agree that it can be a challenge.  Not only is it a challenge to read them and understand them, but it is a big challenge to gain access without high fees.  It would be so nice if our medical professionals could be better at reading them for us, but I think that there is just so much information out there these days that it is hard to keep up, especially for a doctor that treats many conditions.  I am so pleased when I go to discuss recent research with my doctor and find that she has already read it.  She's a keeper.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,212
    • Most Online (within 30 mins)
      7,748

    DaniellePaxton
    Newest Member
    DaniellePaxton
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      I think sometimes the pain described here can be a result of a sort of 'perfect storm' of contributing factors.  Recently I had an appalling bout of lower back pain, lower burning gut pain and what felt like cramps.  I then started to think about what could have caused it and I realised it was several things that had set it off: I'd been carrying heavy luggage (back strain); I had been sitting down in a car for too long and wearing a tight belt (I have pudendal nerve issues and sacroiliac issues and this exacerbates the pain), and I had bloating and burning pain in my colon caused by eating too much soy, latte and caffeine, I guess putting further pressure in the lower abdomen.  I had this same pain prior to my diagnosis and a couple of years post-diagnosis, I'd quite forgotten how unpleasant it was. 
    • cristiana
      HI @Kirbyqueen That's great news your insurance will be kicking in soon.  Sorry to see that you have been dealing with this for six months now, but I do hope you have managed to find some relief with some of the suggestions in the meantime. Perhaps come back and let us know what the doctor says. Cristiana
    • Scott Adams
      I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms? 
    • Kirbyqueen
      Still dealing with this rash on my legs. I've eliminated ringworm (through use of topical ointments). And I also know it's not shingles, as I've never had chickenpox before and I'm still fairly young. Through a lot of online research, I'm leaning more towards dermatitis herpetiformis, eczema, or psoriasis. I've actually got a doctor's appointment in May (finally got some insurance) and I'm going to bring it up then. I'm feeling really hopeful and excited to maybe be getting some relief soon.   Big thanks to everyone for the suggestions and positive thoughts!
    • trents
      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
×
×
  • Create New...