Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

When/if To Introduce Gluten To Child When You Have Celiac


aCfm18

Recommended Posts

aCfm18 Newbie

I don't know if this was the right place to post this, butI have very severe Celiac Disease and have been strictly gluten free since I was diagnosed 4 years ago. I'm currently 26 weeks pregnant with my first child and I'm expecting a girl (girls are more likely to develop celiac, correct?) Obviously this is way down the line, but I'm curious about when and IF I should introduce gluten into her diet once she starts eating solid foods. I've read some very conflicting information. Some websites state that I should avoid gluten until she is older and some say to introduce it immediately. I have no experience on the subject, because I had no problem eating gluten my entire childhood and didn't start having Celiac-like symptoms until my late teens, when I was diagnosed almost immediately afterward. My biopsy looked very good considering, and doctors told me that I didn't actually develop Celiac until recently and was lucky enough to catch it at the beginning. Now however, if I am "glutened" I have HORRIBLE HORRIBLE symptoms, including vomiting, severe constipation, and I feel so all around sick I've passed out. I don't want this fate for my daughter. But I'm not so sure it's preventable either way. My mother has Celiac Disease as well. 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StephanieL Enthusiast

Dr. Fassino did research on this and I do believe it came down that it doesn't matter really. 

 

Open Original Shared Link

 

It's the second question in the article. There is a more detailed research paper on it by him but I just did a quick search

 

Here's another link:  Open Original Shared Link

Link to comment
Share on other sites
cyclinglady Grand Master

I hear ha! At the time I was pregnant, I was undiagnosed, but had allergies to eggs, nuts and milk. My husband was gluten free based on the poor advice from my allergist and his GP. Oh, he is doing great, but a firm diagnosis would be great!

I avoided all my allergens while I was pregnant and nursing. My kid was super healthy. I did not feed her solids until she was eight months old and delayed gluten, eggs, nuts and milk until she was over a year per the advice of my allergist. Did it make a difference? Who knows? So far she is negative for celiac disease. Her PED always said that she one of his healthiest kids.

I read the same conflicting information. Your best bet is just to watch for symptoms and get her tested periodically. Our doc always checks her for anemia frequently since that was my only symptom at the time of my diagnosis. She is tested evey few years for celiac disease. In any case, she eats gluten-free in our house and I send her off with pre-packaged gluten things in her lunch. I make sure she gets some gluten daily.

Good luck and congratulations!

Link to comment
Share on other sites
nvsmom Community Regular

Congratulations!  :)

 

When you introduce gluten will not affect whether she develops celiac disease but if she does develop celiac disease at a very young age, her babyhood could be sickly because celiac disease is harder to diagnose in the very young.  The blood tests don't always pick up on early celiac disease, and it is known that it is more difficult to catch celiac disease with blood tests in those under age 2.

 

If this is your first child, you will be able to have total control of her diet. I would personally consider holding off on introducing gluten until she is at least two.  Why risk it?  Gluten is not at all needed for a healthy diet, it is just a convenience food.  Instead of snacking on Cheerios she can have cut up fruit or veggies, or if you need convenience food, get her Chex.  There really is no reason for here to have gluten in her life.

 

When you do introduce her to it, Test her for celiac disease every two years, or as soon as symptoms develop, until she is out of the house.  I've seen stats saying a first degree relative has a 1 in 10 to a 1 in 22 chance of developing celiac disease, and since you and your mother both have it, her risk is probably higher than you would like.

 

Best wishes!

Link to comment
Share on other sites
  • 3 weeks later...
mommyto2kids Collaborator

I'd wait for as long as possible. If she does have it, why have a little baby suffer. Just feed her what you eat.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,984
    • Most Online (within 30 mins)
      7,748

    Thelma Cadieux
    Newest Member
    Thelma Cadieux
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • TessaBaker
      It sounds like you're dealing with a complex situation, and I can understand how frustrating it must be not to have a clear answer. Gut health can indeed play a significant role in various aspects of our well-being, including hair health.
    • Celiac16
      I have found similar benefits from thiamine. I was diagnosed with celiac at 16 and never really recovered despite strict gluten and dairy free diet and no detectable antibodies on checkup bloodworks. I’ve tried stopping the b1 but start to feel bad again- I wanted my doctors to do more extensive testing for the different thiamine transporters and enzymes which would be a better indication if I was deficient or dependent on it but everyone dismisses it (there are know genetic mutations where you need to take it daily for life). I have looked into Thiamine Responsive Megablast Anemia and I have a lot of the more mild symptoms of the disease that manifest when thiamine isn’t given to the patient such as optic neuritis… I just find the parallels interesting. i think that celiacs could be a side issue of inflammation that resulted from vitamin deficiencies. I was eating a lot of sugar leading up to my diagnosis and since eating gluten free didn’t make me feel much better, I’m wondering if this was more the underlying issue (sugar heavily depletes b1). I usually take 1.5g thiamine a day.
    • Fluka66
      Thank you for your welcome and reply.  Yes I've been carefully reading labels looking for everything in bold and have been amazed by what I have seen. However Heinz tomato and basil soup is wheat free so I m thinking I already have ulcers?  The acid could be causing the pain . My pain always starts in one place then follows the same route through me . GP confirmed that is the route of our digestive system.  So much pain from stabbing to tearing. If I throw in milk with lactose it's horrific.  Many years of it now, won't go into details but been seeing a consultant for a supposedly different problem . Wondering what damage has been done over the years. Many thanks for your reply. Wishing you the very best.    
    • trents
      Welcome to the forum community, @Fluka66! Did you realize that the vast majority of all canned soups use wheat starch as a thickener, including such common commodities as Campbell's tomato soup?
    • Fluka66
      Hello. Any help would really steady my nerves right now. I realised recently that certain food left me in agonising pain so eliminated from my diet. I also have a swollen lymph node. My very caring Dr did some blood tests and I went back the other day to see another equally caring Dr . She looked at the test results one result has come back with something wrong. It came very fast so I'm afraid I didn't catch what it was. Anyway the urgent referral to ENT. She did say as I had already eliminated gluten it wouldn't say anything on the results and neither Drs nor I were prepared to reintroduce gluten . I've just had some tomato soup and again in agony only thinking this must have aggravated maybe existing problems. Does anyone know what I'm facing now ? My swollen lymph node , pain when eating gluten and lactose and I'm assuming the acidity of tomatoes triggering pain.  I'm trying to stay calm and to be honest I've been in intolerable pain at times rendering me unable to stand up straight but I've always just got on with it . Guess I'm reaching out and would really appreciate any wise or unwise words at this stage. Wishing you all the very best as you live with this illness. Fluka66  
×
×
  • Create New...