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Desperate About Cheese
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It seems as if no celiacs have problems with cheese, but that seems hard to believe, I and other celiacs that I know of, get a reaction from eating plain (European) cheese, with no additional ingredients. I have no other allergies than gluten, so I

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Are you sure you're not casein sensitive as well as gluten sensitive? That's not exactly a milk allergy, but an intolerance, like lactose intolerance. Can you digest other dairy products (than cheese) okay? I know plenty of celiacs (esp. newly diagnosed ones) who can't digest dairy products. Some are lactose intolerant, some also have casein antibodies. So they must avoid ALL dairy. Does anyone know of a dairy free, gluten free cheese??? ;)

BURDEE

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You mentioned being lactose intolerant. Before I was diagnosed and for the previous seven years I was lactose intolerant. I had always eaten yogurt for breakfast and been a big cheese fan but as my disease progressed I had to give them up. Since being diagnosed three years ago, I now eat both with no trouble. It did take a while before I could tolerate either and I was reluctant to try them at first but I really missed the yogurt. It's now a regular part of my breakfast again. :) But I've not heard of a cheese that's both dairy and gluten free.

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HI there,

I had to give up all dairy for many months after starting the gluten-free diet. I would get the worst stomach pains, etc after ingesting any dairy product (even butter!). However, in the past week, I have reintroduced dairy 3 times without any problem. (I have been totally gluten-free since august 2003 and totally dairy-free since Jan. 2004.) I even ate ice cream this week without a problem!

Hard cheeses are the safest bet for celiacs if you have no other intolerances or allergies. Don't buy low-fat (since wheat could be in there) or flavored cheese. Eat the real thing.

At the natural foods markets around here, I have seen gluten-free, dairy-free cheese. It is made from soy. You might check for that if you have no other options. In fact, I buy frozen pizzas that have gluten-free rice crusts and soy cheese. They are completely gluten-free, casein-free and dairy-free.

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    • Hi Aly and welcome You may want to repost this in a new thread, that way more people will see it and can advise you.  I think you would be much better off getting the celiac test now, if you stay off gluten you will need to go back on it and that can be much harder. That said, loads of your symptoms look like they could be gluten related.  I had a persistent 'trapped nerve' for instance under my eye which would twitch like crazy. Since I went gluten-free doesn't happen any more.  Best of luck! Matt
    • Your scalp sounds like seborrheic dermatitis. I have that and although its better after going gluten-free its very persistent. The dermatologist recommended Nizoral shampoo for it and it does help. I think dairy has a big part to play with skin problems, for me at least. 
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
    • Just found this site today. Did you ever find one? I was diagnosed this year and I live on Oahu.
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
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