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Gerd/reflux
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I am curious how many people with celiac disease have damage in other parts of their digestive track. When I had my endoscopy I was told I have a hiatal hernia, severe reflux and gastritis. I wonder if this is all related. I don't get heartburn but I do notice a correlation with reflux and lower gi upset (to say it nicely). It really feels like I am poisoned, which I guess I am.

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My son and my husband have severe reflux and have been on Prevacid since the day it has come out. They were on Zantac first with no help. We also have bottles of Roliads around the house at every turn.

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When I had my endoscopy I was told I had slight hiatal hernia. Apparently this is not at all unsual, even for people without celiac disease.

Until a few months agao I was having severe GERD problems and was taking Prevacid. Because of other health problems, I decided it was time to start exercising and lose weight. Once I reduced the amounts I was eating and lost 10 pounds (I've lost a total of 33) my GERD suddenly disappeared. I didn't know this would be a possible result of dieting, but I haven't even touched a Rolaids in months now. I know this wouldn't work for everybody and I certainly don't know if the people on this thread are overweight or eat too much, but I thought I'd throw it out there.

richard

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My GERD/reflux experience was similar to Richard's with a few exceptions. I was diagnosed with 'gastrititis' with acid reflux (before they started calling it GERD) almost 20 years ago. I went through many prescriptions for Zantac (wouldn't take Tagamet because of known side effects) and LIVED on Mylanta or Maalox tablets. Then I found a nondiet approach to weight loss/maintenance which taught me to ONLY eat when truly hungry (not for emotional reasons or social conformity) and stop eating when I was satisfied (NOT stuffed). That method reduced my reflux significantly, :) even while eating foods supposed to cause reflux and drinking peppermint tea which was supposed to relax the esophagus. (I drank peppermint tea to cope with abdominal pains which I didn't realize until recently were celiac symptoms.) HOWEVER, since I receive my Enterolab diagnosis (gluten AS WELL AS casein antibodies), I've abstained from all dairy as well as gluten sources. :o Soon thereafter my lifelong 'instant reflux' disappeared. :D Since early childhood I had to avoid bending over after eating or going to bed before 3-4 hours after a meal, because food/liquids just came up when I wasn't perfectly vertical for several hours after eating. (Also bouts with nausea/stomach flu often turned into dry heaves where nothing would stay down.) So my lifelong reflux problems seemed to be caused by dairy products. :blink: Ironically doctors used to recommend milk to people with gastritis/reflux symptoms. <_< No wonder they call it 'medical practice' ... they sure PRACTICED on me a lot!! :lol:

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    • I would suggest you test your daughter through a doctor. The Enterolab tests are not recognized as accurate or reliable by the medical profession. See this link from the Chicago Celiac Disease Center: http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/
    • Sorry.  Something is wonky with either my connection or celiac.com! Your results are not specific...borderline.    That is why your PCP should refer you to a GI for further celiac blood tests and a possible endoscopy.  I recognize the lab report form.  Kaiser?  If so, a PCP can not order a full celiac panel.  Only a GI can do so.  Why bother?  Because if you test like me, the TTG tests are always negative.  Request the EMA and the DGPS test via a GI.   Do not be fooled by a lack of abdominal symptoms.  I was only anemic -- no abdominal issues at all.  Constipation is a symptom.  Your PCP is thinking is just historical Classic celiac disease symptoms.   Please email your doctor for the referral if you think you might have celiac disease and want a solid answer.    
    • Hello, I have frequent canker sores (roughly comes back every couple of months). Some blood test results are as following. Component Your Value Standard Range TISSUE TRANSGLUTAMINASE IgG 0.31 Index <=0.90 Index Tissue transglutaminase IgA 0.96 Index <=0.90 Index My doctor said that result is unspecific, and I unlikely have celiac disease, since I do not have other abdominal symptoms. For reference, I do have frequent constipation, excessive gas, frequent canker sore, etc. Do you think an upper endoscopy is recommended? I am a little hesitate considering the risk of this procedure and the fact that my symptoms are not that bad. I appreciate all suggestions.  
    • Hello, I see you posted this a long while ago, and perhaps--I hope-- it's no longer a matter of concern, but I thought I'd mention that shortly before I was diagnosed for celiac's, I had distinct yellow blotches on the corners of my eyelids toward my nose. Some months after I had stopped eating gluten, the yellow gradually went away, and--as it just reappeared now several years later, I googled the issue again.  I am only speculating here, but I do believe it is related to liver problems, which, in turn, are related to celiac's. I don't think liver function tests cover all aspects of liver health. I say this because when I was pregnant I developed a temporary liver condition called interhepatic colestasis of pregnancy (ICP), but my liver function tests had been fine. (The condition is diagnosed based on bile levels in the blood, not on liver function). I discovered upon some research that (of course!) ICP  can be associated with celiac's disease.  My hunch is this-- that celiac's presents two problems to the liver: 1) the malabsorption of nutrients--esp. Vit. K2-- that are vital liver health; 2) since gluten registers as a toxin to the immune system (I think?), perhaps the liver gets overloaded processing so much toxic material. Or perhaps there's some other reason. At any rate, poor liver health and celiac's do seem to be linked, according to a few articles I've found. Anyway, hope your problems are resolved now.  
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