16 replies to this topic

[judy04]

I use Garnier Fructis(sp?), it is gluten free. I used to use Nexxus
and my head was always itchy. After I looked at the list of ingredients
and found it contained wheat!

Natalie, I'm sorry to disagree with you, I do not have a definite diagnosis
of Celiac, but I can't tolerate gluten in any form. I don't want to be
disrespecful of your doctor, but they have a lot to learn. A lot of my
symtoms were non-GI and I was under the care of one of the best
allergist on the east coast and he never considered testing me for
antibodies, even after I told him that I thought I had a wheat allergy
or intolerance. The only thing he did was a scratch test which was neg
for wheat. Had he done a Celiac Panel in 1993 I could have avoided
10 years of hell. I finally got so sick that I couldn't walk into the hospital
on my own, was referred to a GI doc who diagnosed me as gluten
intolerant, possible Celiac. As far as doctors, I had to educate my dentist
because I have had some nasty reactions from sitting in the dentist chair
and being" zapped" with gluten. I recently gave my family doctor a
list of gluten-free meds to keep in my chart. He was very impressed and asked
where I got it. My GI doc, who I respect ,didn't know if Prevacid and/or
Nexium were gluten-free and he prescribes them every day!

I don't think this forum is misinforming people. I find people who have
suffered for years have more knowledge of this disease than most
physicians. I have been a nurse for years and I don't believe in" bashing"
doctors, but a lot of us have been sick for a lot of years and have been
at the mercy of doctors who think that Celiac is very "rare" and is found
in only thin people. I hope that they are getting better educated in med
school.

Sorry to be ranting tonight... Judy