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GF Diet


kabowman

OK, How many have had positive dietary changes with inconclusive CD tests? How many have been formally diagnosed with CD?  

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kabowman Explorer

I just received my test results back after 2 1/2 months of being gluten-free and the GI did not find any evidence of Celiac Disease so I don't know if I have healed so they couldn't see any damage or if I am actually just intollerant of:

Lactose/Casien

Gluten

Peanut

Corn

Soy Bean

Vinegar (but not wine)

and was curious about everyone elses' diagnoses.

Thanks in advance...Kate


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tarnalberry Community Regular

I was gluten-free for two weeks before testing, never had severe symptoms, and don't have many of the complicating factors that would suggest malabsorption (hence, there's likely not as much intestinal damage for me as others may have). My test results were negative aside from the anti-reticulin IgA. The gluten-free diet made me feel better, and I did a dietary challenge after 1 month gluten-free (and may do another one, since that one included dairy), which had positive results.

burdee Enthusiast

I did Enterolab stool tests 2 months after going gluten-free and STILL showed both gluten and casein antibodies/intolerances. When I tried to subsitute soy for dairy, my BODY told me (with symptoms similar to my 'dairy' symptoms) that I also don't tolerate soy products. I also limit acidic stuff (tomatoes, citrus, acidic condiments) now, because I just feel better (less reflux, gas, bloating, cramping). My initial symptoms were EXCRUCIATING abdominal pain, bloating, gas, constipation, steatorrhea, fatigue and other less obvious ones. Eliminating gluten relieved the excruciating pain and some of the bloating and gas. Eliminating dairy relieved the constipation, steatorrhea, menstrual like pains, bloating and gas. Avoiding soy prevented the last 3 symptoms. So avoiding gluten/dairy/soy DEFINITELY relieved my symptoms.

BURDEE

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    • Mari
      Thanks for giving us this update, we appreciate hearing back. I th🥰ink you are on a good path forward and will learn some new things to improve your   health and keep healthy. 
    • julie falco
      thank you that is good to know that it is safe for celiac people
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      Current careteam is still up in the air about my celiac thanks to me googling "celiac specialist" what popped  up was once known as a good name hospital back in the days. I went in for answers for my declining health, it was the autoimmune part that did me in, being a former bus driver.I read that in my medical records so easily downplayed, i refused the gluten challenge! Why the hell would I eat Gluten when im Celiac coming to them for answers when my body is falling apart? Glutenfree since 1994. They did unnecessary colonoscopy KNOWING im glutenfree. A celiac specialist would know that would be pointless to do if not eating gluten and it was done!Im so angery with that hospital for not explaining celiac disease and withholding information, Downplaying my ailments , mental distress,  causing more health issues, ect. All this could have been avoided If medical records were sent, when asked, explained and done properly. Im so angery.I do have the celiac dietitian on here in June and linked her up to my current health care yesterday, fingers crossed hopefully with that, the understanding of celiac is explained it's not just a food allergy will be understood. 
    • Scott Adams
    • Scott Adams
      Thank you for sharing your experience, Florence. It’s important to clarify, though, that proteins like zein in corn, panicin in millet, and kafirin in sorghum are not considered gluten and have not been shown to trigger the same autoimmune intestinal damage seen in celiac disease. Some people with celiac disease do report symptoms with certain gluten-free grains, oats, or other foods, but that reflects individual intolerance or sensitivity—not a proven “gluten-mimic” effect that damages the small intestine. Certified gluten-free oats are considered safe for most people with celiac disease, though a small subset may react to avenin. If specific foods consistently cause symptoms for you, it makes sense to avoid them personally, but it’s helpful for readers to know that these foods are still medically classified as gluten-free and generally safe for the broader celiac community.
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