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Celiac Vs Wheat Allergy


Melanie

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Melanie Rookie

Ok,

I have lots of gas and multiple bowl movements/day. I also have low iron, low zinc, and poor night vision. I don't have stomach pains though.

I talked to my doctor about it and he told me just to try the diet and I do feel better on it and have a lot more gas and brain fog when I do eat wheat although I'm not super sensitve to it. I'm really just wondering if I have celiac or a wheat allergy. I can't really find a clear distinction when I search for it.

Mostly I'm wondering this because I'm having a horrible time with the diet mostly because I probably have some form of a syndrome (polycystic cystic ovarian syndrome) that prevents me from eating high glycemic foods like potatoes, rice and corn and I don't know what to eat anymore! Oh, and I'm allergic to soy. I can eat lots of veggies, fruit, meat and dairy, but that doesn't do it for me. I also have a history of eating disorders so I'm having a hard time eating the higher calorie substitutes because I don't want to gain weight. It is kind of a triple whammy for me to since 1. they are higher in calories, 2. I'm more sensitive to the high glycemic index foods they are made from, and 3. now if my villi are all happy they can absorb more.

I think I'm going to try the York lab panal in December when I have some money but right now I'm very poor, in vet school, and have no insurance so I'm just wondering if I really have it. I have something, but how do I know if it is celiac or a wheat allergy?

Thank you and sorry for being so negative. You guys are always so supportive and I'm just a little frustrated with it right now.


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tarnalberry Community Regular

The difference between a wheat allergy and a gluten intolerance is the portion of the immune system reacting to the wheat protein. In the case of a wheat allergy, it's IgE molecules that bind with wheat protein and wreck havoc. In the case of a gluten intolerance, it's the IgG (and IgA) molecultes that do it. Additionally, with a wheat allergy, you can eat oats, and (depending on the severity), barley and rye.

It's tricky to tell the difference without doing any medical tests, given that the symptoms of gluten intolerance overlap with the symptoms of a wheat allergy in some people. You could always give oats or rye a try and see if you react to that the way you react to wheat. The fact that you have nutrient deficientcies, however, points towards poor absorbtion, which is a feature of gluten-intolerance, and not a wheat allergy. If you are gluten intolerant, you must avoid ALL gluten, whether you are super sensitive or not.

I understand that difficulty of dealing with high-glycemic index foods - I'm hypoglycemic myself. The key here is that the sum of your meal needs to have a low glycemic load. That does allow some portion of the meal to include higher glycemic foods, as long as it is balanced with foods that slow the release of sugars into the bloodstream so you don't require a level of insulin output you can't support. Of course, it doesn't make it realistic to eat a lot of high carb meals, but there are a lot of other options out there.

You may find it easier to focus on whole foods, and not substitutes for gluten-filled foods. For instance, you could make a stir fry with vegetables and chicken breast, cooked with some canola oil, and served over brown rice. With plenty of vegetables, and a cup of rice, you're looking at a very filling lunch or dinner for 400-500 calories that is full of nutrition and enough protein and fat to keep you from needing a quick burst of insulin to deal with the blood sugar increase. Or you can make a meaty chili that goes relatively light on the beans (replaced by lower-glycemic vegetables) that has enough protein, fat, and fiber. Of course, you may be more or less sensitive to carbohydrates, but most everyone with issues surrounding their blood sugar and/or insulin merely need to find the proper ratio that their body can handle.

As long as you keep your total calories down, you won't gain weight, but as you noted, you will start absorbing nutrients better and you may find your weight unstable for a few months. Realize that your body is adjusting to being healthy, and a weight gain you see now need in no way be a permanent gain. Keep doing the research you're doing, and you'll find, in a few months, you've gotten a lot of inormation that makes these decisions much easier.

Melanie Rookie

Thanks for the response, Tiffany!

I really appreciate it. I'm kind of lost right now. I think I will get tested during Christmas when brain fog is ok because I'm really wondering if there is something else going on. I think I need tests in order to make me commit because it is really hard! It is ok most of the time but I have crazy cravings or I want to eat for convenence. I am trying to come up with new and easy meal ideas too. Thanks.

taneil Apprentice

Have you been tested for hypothyroidism? Brain fog and polycystis are both symptoms of Hypothyroidism also. You might get checkout for it also.

Melanie Rookie

Yes, I've been tested for hypothyroidism many many times. Thank you for mentioning because it is a real common problem and I think a lot more people need to be tested for it. My TSH is always between 1 and 1.5 which is really good.

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      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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