Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Vs Wheat Allergy


Melanie

Recommended Posts

Melanie Rookie

Ok,

I have lots of gas and multiple bowl movements/day. I also have low iron, low zinc, and poor night vision. I don't have stomach pains though.

I talked to my doctor about it and he told me just to try the diet and I do feel better on it and have a lot more gas and brain fog when I do eat wheat although I'm not super sensitve to it. I'm really just wondering if I have celiac or a wheat allergy. I can't really find a clear distinction when I search for it.

Mostly I'm wondering this because I'm having a horrible time with the diet mostly because I probably have some form of a syndrome (polycystic cystic ovarian syndrome) that prevents me from eating high glycemic foods like potatoes, rice and corn and I don't know what to eat anymore! Oh, and I'm allergic to soy. I can eat lots of veggies, fruit, meat and dairy, but that doesn't do it for me. I also have a history of eating disorders so I'm having a hard time eating the higher calorie substitutes because I don't want to gain weight. It is kind of a triple whammy for me to since 1. they are higher in calories, 2. I'm more sensitive to the high glycemic index foods they are made from, and 3. now if my villi are all happy they can absorb more.

I think I'm going to try the York lab panal in December when I have some money but right now I'm very poor, in vet school, and have no insurance so I'm just wondering if I really have it. I have something, but how do I know if it is celiac or a wheat allergy?

Thank you and sorry for being so negative. You guys are always so supportive and I'm just a little frustrated with it right now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

The difference between a wheat allergy and a gluten intolerance is the portion of the immune system reacting to the wheat protein. In the case of a wheat allergy, it's IgE molecules that bind with wheat protein and wreck havoc. In the case of a gluten intolerance, it's the IgG (and IgA) molecultes that do it. Additionally, with a wheat allergy, you can eat oats, and (depending on the severity), barley and rye.

It's tricky to tell the difference without doing any medical tests, given that the symptoms of gluten intolerance overlap with the symptoms of a wheat allergy in some people. You could always give oats or rye a try and see if you react to that the way you react to wheat. The fact that you have nutrient deficientcies, however, points towards poor absorbtion, which is a feature of gluten-intolerance, and not a wheat allergy. If you are gluten intolerant, you must avoid ALL gluten, whether you are super sensitive or not.

I understand that difficulty of dealing with high-glycemic index foods - I'm hypoglycemic myself. The key here is that the sum of your meal needs to have a low glycemic load. That does allow some portion of the meal to include higher glycemic foods, as long as it is balanced with foods that slow the release of sugars into the bloodstream so you don't require a level of insulin output you can't support. Of course, it doesn't make it realistic to eat a lot of high carb meals, but there are a lot of other options out there.

You may find it easier to focus on whole foods, and not substitutes for gluten-filled foods. For instance, you could make a stir fry with vegetables and chicken breast, cooked with some canola oil, and served over brown rice. With plenty of vegetables, and a cup of rice, you're looking at a very filling lunch or dinner for 400-500 calories that is full of nutrition and enough protein and fat to keep you from needing a quick burst of insulin to deal with the blood sugar increase. Or you can make a meaty chili that goes relatively light on the beans (replaced by lower-glycemic vegetables) that has enough protein, fat, and fiber. Of course, you may be more or less sensitive to carbohydrates, but most everyone with issues surrounding their blood sugar and/or insulin merely need to find the proper ratio that their body can handle.

As long as you keep your total calories down, you won't gain weight, but as you noted, you will start absorbing nutrients better and you may find your weight unstable for a few months. Realize that your body is adjusting to being healthy, and a weight gain you see now need in no way be a permanent gain. Keep doing the research you're doing, and you'll find, in a few months, you've gotten a lot of inormation that makes these decisions much easier.

Melanie Rookie

Thanks for the response, Tiffany!

I really appreciate it. I'm kind of lost right now. I think I will get tested during Christmas when brain fog is ok because I'm really wondering if there is something else going on. I think I need tests in order to make me commit because it is really hard! It is ok most of the time but I have crazy cravings or I want to eat for convenence. I am trying to come up with new and easy meal ideas too. Thanks.

taneil Apprentice

Have you been tested for hypothyroidism? Brain fog and polycystis are both symptoms of Hypothyroidism also. You might get checkout for it also.

Melanie Rookie

Yes, I've been tested for hypothyroidism many many times. Thank you for mentioning because it is a real common problem and I think a lot more people need to be tested for it. My TSH is always between 1 and 1.5 which is really good.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Russ H replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    2. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    3. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    4. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,582
    • Most Online (within 30 mins)
      7,748

    Kim RS
    Newest Member
    Kim RS
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      I used to react very badly to milk - much worse than to gluten and I was always worried about exposure. Any diary product would make me extremely ill and put me out of action for 5 days or so. I would have watery and bloody diarrhoea, bloating, malaise and be unable to eat. If I recall correctly, it was about a year after being diagnosed with coeliac disease and going on a strict gluten free diet that I accidentally consumed dairy products and didn't react. From then on, I have been fine with diary. 
    • Jane02
      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
    • knitty kitty
      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
    • Scott Adams
      I’m really sorry you’re dealing with this—chronic neuropathic or nociplastic pain can be incredibly frustrating, especially when testing shows no nerve damage. It’s important to clarify for readers that this type of central sensitization pain is not the same thing as ongoing gluten exposure, particularly when labs, biopsy, and nutritional status are normal. A stocking/glove pattern with normal nerve density points toward a pain-processing disorder rather than active celiac-related injury. Alcohol temporarily dampening symptoms likely reflects its central nervous system depressant effects, not treatment of an underlying gluten issue—and high-dose alcohol is dangerous and not a safe or sustainable strategy. Seeing a pain specialist is absolutely the right next step, and we encourage members to work closely with neurology and pain management rather than assuming hidden gluten exposure when objective testing does not support it.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.