Posted 30 October 2007 - 07:17 PM
Posted 30 October 2007 - 07:50 PM
I think they are pretty accurate as far as your body's responses. If you have underlying problems causing the intolerances it wouldn't tell you that. (ie, metals, fungal issues, lyme etc)
My family's intolerances are more than likely due to metals. We all have celiac genes so we will in no way be going back to a gluten diet.
Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)
The whole family has been soy free since February, gluten free since June 2006.
The whole family went back to a gluten diet October 2011. We never had official testing done and I decided to give gluten a go again. At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine. The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes. It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on. If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.
Posted 31 October 2007 - 02:12 AM
I think it is pretty reliable after looking up Dr. Fine's background and record, and reading another poster's comments who works in a laboratory and looked over the whole thing. I think it is important to realize that they pick up sensitivity to gluten and other things they test for, but don't diagnose the cause (such as celiac).
This is the test I had, and I am still on the recovery process, but I think it is proving true.
gluten-free since 4/22/07; SF since 7/07; 3/08 & 7/08 high sugar levels in stool (i.e. cannot break down carbs) digestive enzymes for carbs didn't help; 7/18/08 started SCD as prescribed by my physician (MD).
10/2000 dx LYME disease; 2008 clinical dx CELIAC; Other: hypothyroid, allergies, dupuytrens, high mercury levels
Posted 31 October 2007 - 04:01 AM
Does anyone know how accurate Enterolab results are?
Well....it's only anecdotal evidence, but in our case, they seemed to be accurate. Everything the tests "said" was supported by what we saw IRL. My dd was getting very sick, with horrible reflux, gas, bloating, D, decreased energy, pallor, dark circles under her eyes. Her pedi wasn't taking it all that seriously....just wanted to put her on meds for the reflux. On the suggestion of a friend, whose child has celiac disease, we eliminated gluten from her diet. She started to improve immediately. A week later (on suggestion of the same friend) I sent for the Enterolab test. Before the results even came back, we figured out that she was having problems with dairy and eliminated that from her diet as well. Then the results came back positive across the board - she's intolerant of gluten/casein, had an elevated fecal tTg and high fecal fat. Those results only supported what we were seeing with our own eyes.
Later, my ds and I were tested also. I never had major symptoms - lots of vague ones - and my ds's symptoms were all neurological. We both tested positive as well (though not with numbers as high as my dd's.) Both of us are doing so much better off the gluten (and off the casein for me) that it's made a believer out of me. When I get accidentally glutened, I have awful stomach pains, head fog, irratability and C that lasts for several days. As I said before - the Enterolab results bear out what we're seeing and living IRL. That's my only "proof" that the Enterolab tests are accurate.
Posted 31 October 2007 - 05:48 AM
We keep hoping he will publish. Perhaps he is doing long term followup on his patients, is busy, or is dealing with medical journals that have difficulty publishing things that aren't in the regular medical paradigm. (For instance, I just learned about the difficulty getting published that was experienced by the researchers who found that mammograms didn't affect mortality. No one in the US would publish it. So they went to the Lancet finally, which had no problem with the study.)
There are people who test negative. I think we hear more about those who test positive because they are the ones that continue on posting on this board
The fact is, you have to look at your alternatives. Blood testing has a rather significant rate of false negatives, plus you have to have been eating gluten for some time for them to be meaningful.
People report here having positive test results, avoiding gluten, and feeling better. I'm another one in that category. Would I prefer to have a diagnosis based upon a test supported by peer-reviewed and replicated research? Yes. But I also want to be well and have to take what is out there now. Given my genes, many doctors would say that I can't have a problem with gluten to begin with, but my body begs to differ.
Gluten free since 1/6/07
Soy free and completely casein and egg free since 2/15/07
Yeast free, on and off, since 3/1/07 -- I can't notice any difference one way or the other
Enterolab results -- 2/15/07
Fecal Antigliladin IgA 140 (Normal Range <10 units)
Fecal Antitissue Transglutaminase IgA 50 (Normal Range <10 units)
Quantitative Microscopic Fecal Fat Score 517 (Normal Range <300 units)
Fecal anti-casein (cow's milk) IgA antibody 127 (Normal Range <10 units)
HLA-DQB1 Molecular analysis, Allele 1 0501
HLA-DQB1 Molecular analysis, Allele 2 06xx
Serologic equivalent: HLA-DQ 1,1 (subtype 5,6)
Fecal anti-ovalbumin (chicken egg) IgA antibody 11 (Normal range <10 units)
Fecal Anti-Saccharomyces cerevisiae (dietary yeast) IgA 11 (Normal range <10 units)
Fecal Anti-Soy IgA 119 (Normal Range < 10 units)
Posted 31 October 2007 - 12:51 PM
I believe elimination of gluten for at least 4 weeks will confirm Enterolab results.
The person who mentored me is the President of the Montana Celiac society; she told me that the diet would be the best test.
I needed more so I did Enterolab and waited seven weeks to start the diet until I got the results back; in retrospect I suffered needlessly and should have started the diet immediately after sending in my test. I went through 8 days of withdrawal and on the 9th day started feeling better.
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