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Just Got Diagnosed Now What


ChristyM

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ChristyM Newbie

Hi all, I have read a lot of your post and I thnak you all for the imformation I have read. It's been very helpfull.

I lost almost 30 pounds in a matter of 3 months. I could not figure out what was wrong with me. I was eating donuts every morning and pizza every day. I should have been the size of a house. I finally broke down and saw the DR. I got the diagnosis today. I'm a celiac. Holy cow a what!!!!!! :o:o

I just opened my own pizza shop 2 months ago. :angry: I was eating all of our types of pizza so I knew what I was selling. BIG mistake. The over indulgance of pizza made me lose weight. What a concept! Now I'm only 104 pounds and look anorexic, i'm completely unhealthy. I started eating everything to make me gain weight. That backfired too. Everything I was eating was reversing the weight. Lesson learned.

So now that I have this CS where do I go from here? It's going todrive me crazy not being able to eat my own pizza.

If anybody has a good gluten-free pizza crust recipe I could use it.


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dbuhl79 Contributor

Christy,

Ah I feel so bad for you, just figures you open this great shop and now Celiac creeps its way ujp! I'm sorry I don't have a recipe to post, but if you do a search there are SEVERAL posts on here w with various pizza recipes. And being as that what you do, I am sure with a bit of trial and erro you can figure out a great balance from the recipes given. And please post when do youdo!

I love pizza, and its been great playing around with the different crusts. Good luck, and keep us posted!

darlindeb25 Collaborator
:( sorry Christy, to be giving more info you wont want to hear, but you are going to have to be very careful in your pizza shop--airborn flour is as bad for us as eating it--we can get very sick just by breathing too much flour in--my sister became very ill when making her kids rolled out sugar cookies--you may need to check further into this--sorry, deb
FreyaUSA Contributor

There's a bakery (that does all the baking for it's 3 restaurants and other area retailers) near my kids' gymnastics studio that has a great latte... Well, every time I go in there I get sores in my nose. They're totally annoying, but I haven't had any of my other glutened reactions, not even the headaches. It may be you'll be fine. Wear a face mask when mixing doughs?

You might want to contact the baker for Wholefoods that has just started a gluten-free baking (factory?) for the chain. In the bio I read about him, he worked in the regular bakery, with celiac disease, for well over a decade. You can ask him how he handled the flour in the air, if it even bothered him.

Now, you do realize your business will very popular with this group, don't you? Find a good gluten-free pizza crust, let your area know you have it, and you'll have every celiac/wheat allergy individual frequenting your place in no time! (For a gluten-free pizza crust I use the recipe for Crumpets from Bette Hagman's "More from the Gluten Free Gourmet." One recipe makes a large round pizza pan worth. I bake it a bit before topping, top and rebake. My kids really like it.)

JUDI42MIL Apprentice

Christy- I just wanted to say I am so sorry. WOW opening a pizza shop to find out you have celiac.

I agree be careful with the airborne flour. And let us know where you are, so when you find that perfect crust we can eat, we can come by and have some. :) Boy I miss pizza

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    • Scott Adams
      Canker sores can definitely be frustrating, especially when you're already managing a strict gluten-free lifestyle and have been diagnosed with celiac disease for so long. While these painful mouth ulcers aren’t exclusive to celiac disease, they can be linked to nutritional deficiencies—particularly of iron, folate, or vitamin B12 (as @trents mentioned )—which are common in people with celiac, even those who are very careful with their diet. Ongoing fatigue and aches might also suggest that your body isn’t fully absorbing nutrients or that there’s some underlying inflammation. It could be helpful to get bloodwork done to check for these deficiencies, and possibly even a full nutritional panel. Sometimes, new sensitivities or hidden sources of gluten or additives like sodium lauryl sulfate (common in toothpaste) can trigger symptoms like canker sores too. Since your reactions are so severe and you're highly vigilant, it might also be worth considering whether any other autoimmune conditions could be involved, as they can develop over time and overlap with celiac. Consulting with your doctor or a celiac-informed dietitian may help pinpoint the cause and bring relief.
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      @Dora77, You shouldn't worry about getting glutened through your skin.  You would have to touch a gluten infested doorknob and then put your hand in your mouth.   I'd be more concerned with your mom's heating up gluten bread in the oven and boiling gluten noodles.  These methods cause particles of gluten to become airborne which would then enter your nose and be swallowed, going into your digestive tract.  I have to avoid the bakery aisle at the grocery store for this reason.  An M95 mask helps. If you get nutritional deficiencies corrected, your immune system will calm down and be less reactive to gluten expose.  Vitamin D helps regulate the immune system.  Thiamine and Niacin help make digestive enzymes which would help digest any accidental gluten exposure.  Thiamine helps Mast cells not to release histamine, an inflammatory agent released as part of the reaction to gluten, and also a neurotransmitter that causes alertness and anxiety, and the flight or fight response.  Pyridoxine will help improve the OCD.  Remember your brain is part of the body.  Vitamin deficiencies affect your brain and mental health as well as the rest of your body.  
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    • Dora77
      What really bothers me is if worrying about getting cc‘d from touching the same door knob as others touched is valid. Seems like an extremely unlikely way to get glutened but i read people saying that.    If thats true then theres realistically zero chance i dont get cc‘d in a non gluten-free household unless i Cook Everything myself and wash my hands multiple times in between and store all of my stuff separately
    • trents
      Welcome to the forum, @Mrs. Cedrone! Among the various causes for canker sores, are "Nutritional problems like too little vitamin B12, zinc, folic acid, or iron" https://www.webmd.com/oral-health/canker-sores Could you be deficient on something?
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