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Just Got Diagnosed Now What
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Hi all, I have read a lot of your post and I thnak you all for the imformation I have read. It's been very helpfull.

I lost almost 30 pounds in a matter of 3 months. I could not figure out what was wrong with me. I was eating donuts every morning and pizza every day. I should have been the size of a house. I finally broke down and saw the DR. I got the diagnosis today. I'm a celiac. Holy cow a what!!!!!! :o:o

I just opened my own pizza shop 2 months ago. :angry: I was eating all of our types of pizza so I knew what I was selling. BIG mistake. The over indulgance of pizza made me lose weight. What a concept! Now I'm only 104 pounds and look anorexic, i'm completely unhealthy. I started eating everything to make me gain weight. That backfired too. Everything I was eating was reversing the weight. Lesson learned.

So now that I have this CS where do I go from here? It's going todrive me crazy not being able to eat my own pizza.

If anybody has a good gluten-free pizza crust recipe I could use it.

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Christy,

Ah I feel so bad for you, just figures you open this great shop and now Celiac creeps its way ujp! I'm sorry I don't have a recipe to post, but if you do a search there are SEVERAL posts on here w with various pizza recipes. And being as that what you do, I am sure with a bit of trial and erro you can figure out a great balance from the recipes given. And please post when do youdo!

I love pizza, and its been great playing around with the different crusts. Good luck, and keep us posted!

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:( sorry Christy, to be giving more info you wont want to hear, but you are going to have to be very careful in your pizza shop--airborn flour is as bad for us as eating it--we can get very sick just by breathing too much flour in--my sister became very ill when making her kids rolled out sugar cookies--you may need to check further into this--sorry, deb
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There's a bakery (that does all the baking for it's 3 restaurants and other area retailers) near my kids' gymnastics studio that has a great latte... Well, every time I go in there I get sores in my nose. They're totally annoying, but I haven't had any of my other glutened reactions, not even the headaches. It may be you'll be fine. Wear a face mask when mixing doughs?

You might want to contact the baker for Wholefoods that has just started a gluten-free baking (factory?) for the chain. In the bio I read about him, he worked in the regular bakery, with celiac disease, for well over a decade. You can ask him how he handled the flour in the air, if it even bothered him.

Now, you do realize your business will very popular with this group, don't you? Find a good gluten-free pizza crust, let your area know you have it, and you'll have every celiac/wheat allergy individual frequenting your place in no time! (For a gluten-free pizza crust I use the recipe for Crumpets from Bette Hagman's "More from the Gluten Free Gourmet." One recipe makes a large round pizza pan worth. I bake it a bit before topping, top and rebake. My kids really like it.)

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Christy- I just wanted to say I am so sorry. WOW opening a pizza shop to find out you have celiac.

I agree be careful with the airborne flour. And let us know where you are, so when you find that perfect crust we can eat, we can come by and have some. :) Boy I miss pizza

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    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
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