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Pms Symptoms
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I wasn't really sure where to put this, so I thought here would be a good place. For those of you while still consuming gluten, did you notice your PMS symptoms to be far worse than they are now? I'd love to hear some insight to see how gluten affected our monthly cycles and if finally getting off gluten helped.

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I don't know if this is the right place for this thread either (there might be more in the pregnancy section?), but I will say that my monthly cycle is doing so much better since I went off gluten at the beginning of the year. I had a blood test done in July, but had to wait until after Thanksgiving for the endoscopy. No one told me how much wheat I had to keep eating until then. Soooo....I ate a ton, purposely making all the dishes I knew I wouldn't be able to eat again. I had already decided that I was going gluten-free after the biopsy based on how badly I felt. I just did not understand that my PMS problems were directly related to gluten at the time.

So for two weeks of every month between the summer and the end of the year, I think that I really became another person...that is how bad the PMS was, I guess they call it PMDD. Mood swings, irritability (an understatement), terrible sleep (lack of), severe depression and suicidal thoughts, I hemoraged a week's flow all in a day and half (sorry for the graphics, but I really could not leave the house). I spent the other two weeks of the month dreading the next two weeks about to come back. I also had a miscarriage four years ago that I relate to all of this now. Did I mention zero sex drive yet?

gluten-free since January: immediate relief from PMS, mood swings, imsomnia, depression, low libido (OK, I also cut back on caffeine and took more vitamins). Menstrual flow is slower to recover, but much lighter and now spread over four days. I am hoping that I might still be able to get pregnant in the next year or so....

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So glad you all posted something. I've had horrible cramps for years, they thought endo, but never found any cause. Would take 3-4 darvocet a day for them. Over the past few years the periods got much heavier as well. My gyno put me on Prozac last summer for the PMS/PMDD. I've been on 4 different pills including NuvaRing and now Lybrel to end the periods. I'm at the point where I'd like them to just do a hystrectomy, but have been thinking about stopping the pill altogether and seeing if anything had changed since I went on the diet. I think you all helped me make the decision. I was thinking of trying accupuncture if the cramps are still bad.

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Hi

I believe the site is endo-resolved.com...there is a diet section there and it says to avoid wheat and dairy. I was a cheese lover also, but now find much less pain when I eliminate or reduce it (I don't have a sensitivity, but the milk fat converts to inflammatory prostaglandins in your body and they cause the pain).

I had high hopes that going gluten free would resolve the cycle problems of increasing pain, heavy flow and infertility, but alas no, I need to be on the pill to control the symptoms. But at least that works--minimal pain and tolerable flow. I tried to go off of the pill with continued strict avoidance of cheese and gluten, but within two cycles, the heavy periods had returned.

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I've been gluten free since Sept 2012 and I did so suspecting my skin rashes, which were horrid, might be related to wheat/gluten. My skin is much better. I had terrible PMS also - and this has pretty much resolved. My PMS would start a week prior to my period - irritability, bloating, and indescribable "pressure" kind of all over that wouldn't go away until I had my period. I had to take an antidepressant to take the edge off with my irritability. Now, I might feel a little irritable a day before I get my period - but nothing major & no other symptoms. My periods are lighter and don't last as long also. I don't need the antidepressant either. I am so relieved to have found the answer to all of my problems! My energy level has improved also.

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I have a bit less bloating and cramps. My greatest improvement was in the headaches; I used to get a migraine for a week. Since going gluten-free I have had a two day headache for pms once. :)

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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