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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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14 posts in this topic

I was poking through my favorites today and thought it would be a cool idea to compile all our links into a thread. This would be helpful for newbies and I'm sure we'd all find some good ones that we hadn't seen before:

Eating Out

Burger King nutritional information

McDonalds USA gluten-free list

Gluten-free Restaurant Awareness Program

Outback Steakhouse -- on the left, there is an option for a gluten-free menu.

PF Changs gluten-free Menu

Arby's

Dairy Queen -- gluten-free

gluten-free Lists

Hormel gluten-free Products

FritoLays Nutrition Lists -- options for gluten-free lists, gluten-free and cf lists, low-fat, no cottonseed, etc.

Edys gluten-free products (also search for products not containing common allergens)

Gluten-free Drugs/Medications

Online Shopping & gluten-free Products

Amy's Kitchen: natural and organic foods

Kinnikinnick

http://www.glutensolutions.com/

The Gluten-free Pantry

Ener-G

http://www.shopbydiet.com/

http://www.vancesfoods.com/

Chebe

Foods By George

Gluten Free Mall

Glutino

http://www.dietaryshoppe.com/

http://www.celiacspecialties.com/

Vendor Information

Bob's Red Mill

Miss Roben

Pamela's Products

Tinkyada Rice Pasta

Message Boards

Celiac.com Message Board

Old Celiac.com Message Board (inactive, but a good resource)

Yahoo Groups: USA Silly Yaks

Delphi Forums Celiac Message Board

Celiac Forums

Miscellaneous

Clan Thompson's Celiac Site

http://www.gflinks.com/

Links section at USA Silly-Yaks support group

Celiac Support Groups in USA

Information on Diagnostic Testing and Celiac

Living Without Magazine

http://www.glutenfreeinfo.com/

Recipes from Tiffany (tarnalberry) -- on our board :)

Celiac Sprue Association

Celiac.com -- one of the greatest resources on the internet in my opinion!

http://www.gluten.net

http://www.celiac.net

http://www.celiac.org

http://silly-yak.com/home.htm

Restaurant Cards in different languages

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celiac3270-

My list is already on here somewhere I believe......

-Jessica :rolleyes:

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Oh yeah-- I remember you posted one a long time ago....now, if only I could remember where--I'll run a search and see if I can find the thread.

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celiac3270,

What a great idea you had to post those links, and I know it had to take time to add all those you contributed. THANK YOU! I notice at the end of your post that you are still having persistent symptoms. Do you mind my asking what that is about? I did continue to have trouble too until I discovered all the foods and additives that bothered me. Maybe I could help in some way. I hope so. Welda

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celiac3270,

Thanks for all your great links. As I am fairly new to this forum, it will be a great help to me.

I'd like to add that I really enjoy reading your posts. I was completely blown away when you mentioned in a recent post that you are only 14 years old. I had just assumed you were much older. You are very well spoken in your posts and obviously have devoted a lot of time to researching celiac disease. :D

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Is anyone using the Clan Thompson list of gluten-free foods. I bought it and downloaded it on my Palm. It is new to me but seems like it would be helpful.

Has anyone else dealt with them? Is there a way we could help them build the database they have?

It is really a neat idea. No they are not paying me. I purchased it and the data base really seems to be a great idea.

Thanks :D

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Is anyone using the Clan Thompson list of gluten-free foods. I bought it and downloaded it on my Palm. It is new to me but seems like it would be helpful.

Has anyone else dealt with them? Is there a way we could help them build the database they have?

I got some sample booklets (prescription drugs, foods, over the counter drugs, etc. Very helpful since they also list phone numbers. I also got a sample download of a computer database thingy they have--I like them a lot. You can't use it fully unless it was verified very recently, but they give you a good idea of what's gluten-free and the phone number to make sure :D

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My collection has since grown substantially, but on the Delphi board, there's someone there, Mireille, who is constantly posting there and seems to be a true celiac expert :D. Anyway, she posted her collection on that board awhile ago:

Have make an extensive research to retrieve this link goldmine as I had the msg # in my note book in Canada but I'm in Florida.

I would suggest you to take a note of this msg # for further use, or for helping others.

RECIPES:

All Recipes: general recipe database with gluten-free selections:

http://allrecipes.com/directory/586.asp

Clan Thompson:

http://www.clanthompson.com/day2day/day2day.htm

CSA Recipe Collection

http://www.csaceliacs.org/WebsiteRecipes.html

Food For Life

http://my.webmd.com/special_event_article/article/3136.19546

Celiac.com

http://www.celiac.com/recipes.html

Gluten Free Pantry Recipes

http://www.gluten free.com/recipes.html

Gluten Free Brewing - brew your own

http://www.fortunecity.com/boozers/brewery...beer/gfbeer.htm

http://www.beerstuff.com/gluten-free/

Gluten free Kitchen

http://gfkitchen.server101.com/recipes.htm

Gluten Freeda Recipes

http://glutenfreeda.com/recipes.cfm

Celiac sight from Australia

http://members.ozemail.com.au/~coeliac/det.html

Savory Palate - Carol Fenster

http://www.savorypalate.com/receipes.asp

Specific Carbohydrate Diet (SCD)/ "Breaking the Viscious Cycle"

All of the recipes on these pages are "SCD safe". This means that they

do not contain milk, flour, or any other food item which is not

allowed in the Specific Carbohydrate Diet.

http://www.scdiet.org/2recipes/default.html

SOAR Database: Huge recipe database with gluten free selections

http://soar.berkeley.edu/recipes/gluten-free/

INFORMATION`:

Celiac.com

http://www.celiac.com/index.html#toc

CSA Website Directory

http://www.csaceliacs.org/infocenter.html

Dr. Fine/lab testing

http://www.enterolab.com/

Gluten Freeda

http://glutenfreeda.com/

Gluten Free Shopping List, University of Nevada: Listing of specific

safe foods, including brand names

http://www.extension.unr.edu/AppleaDay/glutenlist.html

gluten-free Links

http://gluten-free.org/

Resource database

http://www.skyisland.com/OnlineResources/default.html

No Soy

http://www.geocities.com/HotSprings/4620/#ADDITIVE

Nutribase - Contact information for thousands of food manufacturers.

http://www.nutribase.com/dfm.htm

Organic trade Association: Members include growers, shippers, processors,

certifiers, farmer associations, brokers, manufacturers, consultants,

distributors and retailers.

http://www.ota.com/

Gluten Intollerance Group of North America

http://www.gluten.net/welcome.asp

Specific Carbohydrate Diet (SCD) Web Library

Based on the book "Breaking the Viscious Cycle" by Elain Gottschall

http://www.scdiet.org/

State by state info (limited support group source)

http://www.rochesterceliacs.org/local.html

Savory Palate - Carol Fenster

http://www.savorypalate.com/index.htm

Sully's Living Without

http://www.livingwithout.com

http://www.livingwithout.com/articles.htm

Wheat Free Zone - extensive database, must know info

http://www.nowheat.com/grfx/nowheat/

TRAVEL

Celiac Living in New York City

http://www.enabling.org/ia/celiac/groups/nyc.html

Inn Seeker - gluten free lodging

http://www.1-888-inn-seek.com/gluten.cfm

Gluten Free Utah

http://www.gfutah.org

SHOPPING/PRODUCTS

Akin's Natural Foods Market

http://www.akins.com/home_ie.htm

Cause Your Special

http://www.causeyourespecial.com/

The Dietary Shoppe

http://www.dietaryshoppe.com/

The Gluten Free Grocery

http://www.glutenfreegrocery.com/

Gluten Free Delights

http://www.glutenfreedelights.com/index.html

The Gluten Free Mall

http://www.glutenfreemall.com

Gluten Free Pantry

http://www.gluten free.com/

The Gluten Free Supermarket

http://www.glutenfree-supermarket.com/

Glutino

http://www.glutino.com/english/index.cfm

Gluten Solutions

http://216.200.196.85/gluten/

Kinnikinnick

http://www.kinnikinnick.com/

Liv-N-Well: Liv-N-Well's mailorder division ships Gluten-Free and Low

Protein products worldwide

http://www.liv-n-well.com/index.htm

Loprofin - low protien products

http://www.shsna.com/html/loprofin.htm

Marie Nature

http://www.marie-nature.com/en/B_produit.asp

Mr. Spice

http://www.mrspice.com/

Miss Roben: Food source for those with multiple food allergies

http://www.missroben.com/index.asp

The Silly Yak

http://www.silly-yak.com/home.htm

Specialty Food Shop

http://www.specialtyfoodshop.com/

Trader Joes

http://www.traderjoes.com/

Twin Valley Mills

www.twinvalleymills.com=20

UltraClear

http://www.ultrabalance.com/

Vance's Foods: Home of Dari-Free

www.vancesfoods.com

Whole Foods Market=20

http://www.breadandcircus.com/

Wild Oats Grocery

http://www.wildoats.com/wild_cuisine/index.html

MANUFACTURERS

Natural Foods Products

Amy's Kitchen

http://www.amys.com/

Annie's Naturals

http://www.anniesnaturals.com/

Baking For Health: products are organic and free of wheat, dairy, sugar

and animal products

http://www.bakingforhealth.com/

Barbara's Bakery

http://www.barbarasbakery.com/

Bearitos

http://www.novelco.com/westbrae/Westbrae-2/btos.htm

Big Valley: Big Valley, Flavorland, Big Valley Fruitatious, or Big

Valley/Yan Can Cook: Frozen fruits and vegetables

http://www.big-valley.com/

Bob's Red Mill

http://www.bobsredmill.com/

California Natural: organic rice syrups, rice syrup solids, rice protein

concentrate (80%), Dexta Plus rice oligodextrins, StarchPlus rice

starches.

http://www.californianatural.com/

Cascadian Farm

http://www.cfarm.com/index.asp

Cedarlane Natural Foods INC: including award winning low fat frozen

dinners and entrees, fat free and specialty breads, and fresh salads.

http://www.cedarlanefoods.com/

Country Choice Naturals: Certified organic hot cereals, cookies and

hot cocoa mixes.

http://www.countrychoicenaturals.com/

Earth's Best Baby Food

http://www.earthsbest.com/main.asp

Ener-G Foods

http://www3.digimktg.com/enrg/default.tmpl?src=

http://www3.digimktg.com/enrg/enHomeProdsA...0239534721&Src=

Fantastic Foods

http://www.fantasticfoods.com/

Food For Life

http://food-for-life.com/index.asp

Frieda's: Wholesale fruits, vegetables, tofu, Asian and Latin produce,

processed and jarred items - inc. tofu hot dogs, burgers.

http://www.friedas.com/

Gluten Free Foods LTD

http://www.glutenfree-foods.co.uk/

Glutino

http://www.glutino.com/english/index.cfm

Hain: The Hain Food Group markets natural "better-for-you" foods and

snacks across 24 brands. Brands containing organic products include

Hain Pure Foods, Westbrae Natural, WestSoy, Little Bear, Bearitos,

Arrowhead Mills, DeBoles, Farm Foods, Earth's Best, and Garden of Eatin'.

http://www.thehainfoodgroup.com/

Horizon Organic Dairy

http://www.horizonorganic.com/index.html

Imagine Foods: Rice Dream, Soy Dream, dairy free pudding, soups and broths

http://www.imaginefoods.com/

J.R. Wood Products: Frozen fruits, vegetables, baby food, concentrates,

purees, smoothies

http://www.jrwood.com/prod_sho.htm

Kingsmill Foods: bread, cookies, Lacteeze

http://www.kingsmillfoods.com/

LifeStream

http://www.naturespath.com/

Little Bear

http://www.novelco.com/westbrae/Westbrae-2/bhome.htm

Lundberg Family Farms

http://www.lundberg.com/

Muir Glen Organics: tomato products

http://www.muirglen.com/

Nature's Path

http://www.naturespath.com/

Near East

http://www.neareast.com/flash/index.html

Nueman's Own

http://www.newmansown.com/ =20

Newman's Own Organics

http://www.newmansownorganics.com/

Rapunzel: Organic chocolate, coffee, juices, sugar,seasonings, snacks, soups

http://www.rapunzel.com/

Rocky Mountain Snacks

http://www.rockymountainsnacks.com/

Pamela's Products

http://www.pamelasproducts.com/

Premier Valley Foods: Organic dried fruit, organic chilled juice,

organic tomatoes, organic juice concentrates, and dried peppers

http://www.premiervalley.com/

Seeds of Change

http://www.seedsofchange.com/

Simple treats: vegan, wheat, sugarr free (barley) bakery

http://www.simpletreats.com/homepage.html

Small Planet Foods

http://www.smallplanetfoods.com/

Spectrum Organic

http://www.spectrumorganic.com/

Stoneyfield Farm

http://www.stonyfield.com/Index.htm

Sunflour Baking: dairy, egg, wheat and wheat free products.

http://www.sunflourbaking.com/

Sunspire: Sunspire Organics, Sunspire Sundrops, FruitSource® and

Maranatha:certified organic line of chocolate chips, chocolate-coated nuts,

clusters, organic sugar, grain-sweetened chocolate chips, chocolate-coated

nuts and fruits and other handmade candies, organic peanut butters, almond

butters, cashew butters; natural and organic bulk trail mixes

http://www.sunspire.com/

Terra NostraOrganics: distributors of Terra Nostra Organic products,

including chocolate bars

http://www.venussweets.com/

Vance's Foods: Home of Dari-Free

www.vancesfoods.com

Van's International Foods: waffles

http://www.vansintl.com/

Vitasoy

http://www.vitasoy-usa.com/

Westbrae

http://www.novelco.com/westbrae/

Whole Foods Private Label Products

http://www.wholefoodsmarket.com/products/privatelabel.html

Wildwood natural Foods: Traditional Mid-East hummus, low fat hummus,

spicy hummus, pesto hummus, baba ganooj, tabouli salad, wild dogs

(veg hot-dogs), meltables (soy cheese), and garlic aioli (vegan mayo

alternative).

http://www.wildwoodnaturalfoods.com/

Yves Veggie Cuisine

http://www.yvesveggie.com

Mireille, Waterloo Quebec.

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You are right, celiac3270. She is an expert. She saved my butt a few times when I was trying to bake bread - I posted about my failure and what I did, and she posted back what the problem probably was - and she was right..... She is a sweetheart!

Karen

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Hey guys great thread!!!

I have a lot of favorites as you guys do too...

To add a few

www.celiacchicks.com -- great NY information about foods, bakeries, etc.

www.silly-yak.com t-shirts etc...

www.angelicgrooves.com -- great celiac awareness jewelry that are donated to celiac awareness.

www.glutenfreeandmore.com great newsletter for baking!!!

www.dippychick.com -- dips that are gluten free.

That is all I can think of right now.

I haven't ever heard of the delphi forums.. . thanks for that I will have to check them out!!!!

Sada

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oops one of my links was wrong

www.glutenfreebakingandmore.com

sorry!

Sada

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Wow! What a great list! Thank you so much for it. It has many Web sites that I have not seen before. Thanks

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      I am glad you are feeling so much better!  Your posting will encourage others.  Thank you!
    • Last posted 2013 - Improving health
      When I first started this journey, roughly 11 yrs ago with symptoms, I had no clue. Eventually, having no luck with doctors (hypochondriac or psychosomatic), I googled my symptoms over and over looking for something... ANYTHING... that would give me a clue. Among other issues, my insides would not move, I was turning gray, felt like death, and had a persistent cough. I can't remember who but someone had posted on the forum and I found some of my symptoms. Eureka, I immediately began a gluten-free diet to see if it made any difference. Of course that was a journey, not realizing what products contained gluten. Long story shorter – first I went gluten-free, symptoms began to reappear, then it was soy (first organic was okay, then not), symptoms reappeared, took out corn, symptoms reappeared, then it was all grains. So the last couple of years I have been grain-free plus no sulphates. Actually, truth be told, my Celiac pharmacist gave me the recipe for health. I asked her if she liked a certain product. She answered, “I don't know, I have never tried it.” I asked her what she did use. She replied, “Nothing out of a box, a bag, or a bottle.” And that has pretty much been my life for the last couple of years. There is the odd product I try but it always has an after effect and I have to way the consequences against the enjoyment of it. I am one of those who react to 1 crumb in the butter, flour dust in the air, sulphates in anything, sometimes things that don't even seem like they would be a problem, like avocados and blueberries when I am contaminated. January 2016 I began this recitation. It is now May 5th, 2016 - Here I am 4 months later and I feel like screaming to anyone who will listen, “Things are improving!! My gut is healing!!” So what happened?? Someone suggested digestive enzymes. My insides were so compromised that I couldn't eat much besides fruit, veggies, and meat; all plain, all without being touched by people other than me. I could barely stand salt at times when I was compromised. Haven't been to a restaurant in years since I am not in a city that would have one to cater or understand this much of a problem. I started digestive enzymes but I read the label wrong and started with 5 first thing in the morning. Whatever... I began to notice improvements in what I could eat. Not anything different but just that I could eat without feeling ill or having my gut shut down. I stayed on those for a month and a half.. then I picked up a parasite from someone living in a very unclean apartment and visiting there and helping to clean. Well, that was a huge battle. I had to eat to discourage parasites. But in the process my insides began to heal dramatically. I was eating blackberries, drinking garlic keefir (which I couldn't have done 5 mths ago and gave me the first clue my insides had improved substantially), drinking oil of oregano or peppermint oil drops in a glasses of water, eating cabbage and green roughage. Drinking water with apple cider vinegar in it and Aloe Vera juice. After a couple of weeks my insides were a whole different story. I had a feeling of wellness that I hadn't had for years! I FELT like trying to eat something different. So I decided to try Gluten-free Rice Chex. Haven't had them in years.... and I am so happy! I can eat them!! (Not to say they are healthy, cause they are processed crap) but I didn't get sick and that was the amazing part. So now I am beginning to try a few things that would have set me back previously, I have made my own crème brulee because I have always been able to eat eggs. But the sugar was causing problems, but now it's okay. The issue I have now is that I want to try things too fast so I am having to exercise restraint. So here is it – parasites are very common, everyone has them however whether they cause problems depends on your immune system. Does it not makes sense that they would cause leaky gut? An over abundance in the gut would destroy gut tissue and take nutrients from a person and possibly put holes in the gut leading to food reactions? Digestive enzymes help to destroy the protective coating around parasites. Foods that discourage them or kill them are blackberries, garlic, cabbage, oil of oregano, peppermint oil, aloe vera juice, Braggs apple cider vinegar and more (google to find). I found medication didn't do anything so I turned to all the other. So this is how it is today. I don't suggest it is the answer to anyone else's problems but when I found this site, hidden in the posts was the beginning of the answers for me.  I may still be gluten, soy, corn intolerant but I am feeling so good now and I just thought I would tell someone.  I just wanted to share. Thanks for reading.
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