Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Best Friend Has Suffered For Years


kontoulas46

Recommended Posts

kontoulas46 Newbie

My best friend has suffered from celiac disease for over 20 years, she claims she cannot even tolerate rice, but everything I have read that rice is okay, could she also have something else besides celiac disease? :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Yes--rice is fine on a gluten-free diet. She might have a separate allergy--many people here have some other condition or allergy that accompanies celiac. Allergies are unrelated to celiac, but that would be why she has trouble with rice--not celiac disease.

Guest Viola

Hello;

I had the same problem after going gluten free for many years. What happens, according to one of my doctors, is that when you take a reaction to gluten, the body knows that something in that meal is making you sick. Example ... You eat quite a few rice dishes, the spice, or sauce on those dishes were contaminated with gluten. The body reacts to the gluten, but doesn't separate the sauce, or spice from the rice. So even when you put an un-contaminated source of rice in you, the body starts to react. In this case you are not getting a gluten reaction, but stomach reflex at the fear of being contaminated.

I went to Calgary and had NAET treatments by a doctor there. It's simple allergy treatments done with a combination of acupressure, acupuncture (done with laser) and heat. The treatments were very comfortable and very effective! I can now eat almost anything that is gluten free.

If you have Celiac disease ... do not trust a doctor doing this treatment that tells you that you will be able to eat gluten after these treatments! The fact is, with Celiac disease we are missing an enzyme, and will never be able to safely eat gluten! My doctor in Calgary had a family member with Celiac disease and was right up to date with the problems associated with it.

If you wish, you can get in touch with me and I'll pass along his website.

Hope this helps :)

Thomas Apprentice

Maybe your friend's stomach is really damaged and will take time to heal.

Carriefaith Enthusiast

If she has actually been gluten free for 20 years, I would say that maybe she has an allergy to rice?

But if she just recently found out that she has had celiac for 20 years and has just started the gluten-free diet, I would say she may just need more time to heal and recover.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      ttg iga high (646 mg/dl) other results are normal

    2. - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      ttg iga high (646 mg/dl) other results are normal

    3. - xxnonamexx replied to xxnonamexx's topic in Related Issues & Disorders
      5

      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

    4. - trents replied to xxnonamexx's topic in Related Issues & Disorders
      5

      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

    5. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,330
    • Most Online (within 30 mins)
      7,748

    Strider55
    Newest Member
    Strider55
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
    • kpf
      Thanks so much. This is what I thought but really wanted a second opinion. I appreciate this. 
    • xxnonamexx
      I have heard about numerous food sensitivity tests blood and the prick and how nothing is very reliable I think trial and error probably best bet.
    • trents
      As ShariW explained, soy itself doesn't contain gluten but most soy sauces sold in stores and used in restaurants contain wheat as an ingredient so they are not gluten free. As I understand it, there are two traditional ways of making soy sauce. One way contains wheat and one doesn't. The most popular one found out there in the wild does contain wheat, however. Kikkoman offers a line of gluten-free soy sauce and Teriyaki products that are often sold by grocery store chains like Safeway. There are food allergy/food sensitivity tests available and your physician can order them or give you a referral. They fall into two categories, the skin prick kind and the blood test kind. One you might look into is called the ALCAT test which might be the most helpful for foods. However, the reliability of these things is questionable. The results can be helpful as a place to start but the results often don't match up with real life experience. There are reasons for this and you might do well to research food sensitivity testing reliability on the Internet. 
    • trents
      The IGA TTG (aka, TTG-IGA) is the centerpiece of celiac disease blood antibody testing. A high value in this test indicates probable celiac disease, though there are other reasons (some other diseases, some medications and in some cases, even some non-gluten foods) that can cause it to be elevated. And it is not unusual at all for other celiac antibody tests to be normal when the TTG-IGA is high. Normally, when the TTG-IGA is elevated, the physician will order an upper GI with biopsy of the small bowel lining to check for the damage characteristic of celiac disease. The biopsy is then sent out for microscopic analysis. This is to confirm the results of the blood testing and is considered the gold standard diagnostic test. You should not begin a gluten free diet until the endoscopy/biopsy is complete. This is very important because otherwise the results will be invalidated.  This article on celiac disease blood antibody tests might be helpful to you while you are waiting for feedback from the physician:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.