Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Food Allergies As A Result Of Gluten Intolerance


junevarn

Recommended Posts

junevarn Rookie

Hi all,

I was self diagnosed through enterolab as having gluten intolerance, casein intolerance and one of the main genes for celiac. I also had fecal antitissue transglutaminase.Supposedly I don't have small intestine damage. I am awaiting blood tests. I get terrible seizure like attacks where my legs shake( actually my whole body at times), I have diarrhea and vomit uncontrollably for up to six hours at a time. I also get palpitations.

I started going to an alternative MD and nutritionist on my own dime because the doctors I have gone to in the past ended sending me to a psychiatrist.

I have been on an elimination diet for the past few weeks. So far I cant tolerate corn or chocolate. I had some gluten free bread with yeast yesterday and today and now I am totally bloated. ( Enterolab also said I had a reaction to yeast.) I also feel quite anxious and moody all of a sudden. :(

Does anyone else have reactions to other foods as well?I have been gluten and casein free since I found out in October. I guess I'll go back to the total elimination diet foods since those are the ones so far that I feel good eating. I'm just a bit depressed with all this. I need a bit of support. I'm getting so I'm afraid to eat!

At least I am seeing that I do have other food intolerances and that that is the cause of my body freaking out, but I still feel low about it.

Thanks for listening,

June

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cdford Contributor

Other sensitivities seem to be pretty common, especially at first. Hopefully you will be like we were and gradually see some of them go away. My daughter now only has one other than gluten. She origianally had a four page long list. I am down to only a handful.

Link to comment
Share on other sites
kvogt Rookie

junevarn,

I've been where you are now. At one point, I felt awful after two out of three meals or more often. I didn't have your specific reactions, but everyone is different. It is entirely possible and probable for you to have other food problems. It can be quite hard to isolate because the reaction may not take place right after a meal, but the next day or later. Since you are apparently willing to invest in a diagnosis, I suggest you look at York food allergy testing. I took the comprehensive test and tested positive for an number of foods. The good thing is that I was left with a number of safe foods. Some have derided the testing and I admist I have held some skepticism, even now for some of the foods specified. But they were right about several like milk and soy. I've dopped some of the other foods and discover they may be right about others on my list. So overall, I feel well served by their testing. At least it gave me a place to start.

Hope this helped.

Link to comment
Share on other sites
Guest nini

I think in the beginning of being gluten-free, the body is so hypersensitive, that you can react to just about everything. I even went through a stage where I was having anaphylactic reactions to artificial fragrances, especially the artificial baby powder smell. Now the smells just make me kinda nauseas. I was also having reactions to nuts, and shellfish... still not brave enough to try shellfish, but I'm back on eating nuts with no problem.

Link to comment
Share on other sites
skbird Contributor

I had problems with nuts, especially walnuts and pecans, before I went low carb 3 years ago (and effectively, 95% gluten free). When I added gluten back in, the nuts started bothering me - small irritations or sores in my mouth, mostly. Now that's gone again now that I've been gluten free for 6 months (didn't take that long, BTW).

Shellfish will be out forever for me. I understand now that it's a different kind of reaction, an allergy, and it doesn't have anything to do with the state of my gut. Also pretty sure nightshades are still out for me - I did get a gluten free brownie mix recently at my Grocery Outlet (they were 79 cents! instead of $4 something...) with potato starch in it but after eating a couple of them (oh they were so delish!) I started having stomach aches like I do as a prelude to my nightshade intolerance.

I was having some trouble eating rice when I was not gluten free - would make me feel like I'd had tons of coffee, but now I seem to be ok with it. I can also tolerate some sugars now, natural ones (not processed white death) and more fruit without having as much of a blood sugar reaction. It just takes time and for me, none of it has been particularly dramatic.

Stephanie

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,183
    • Most Online (within 30 mins)
      7,748

    Bernadine
    Newest Member
    Bernadine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      Sounds like you are in the UK. With blood numbers that high, I thought docs in UK would give an official diagnosis without the biopsy. You should ask about that, so you can get support faster.  I'd try to find and print out anything that supports that in your country, get another appointment and take all of it with you. Even in the US now, some docs are doing this, my 19 year old step granddaughter got an official diagnosis here in US with just blood results a few months ago.
    • Beverage
      Is soy sauce in Korea also made from wheat like it usually is in US? I'd be concerned that even if asking about gluten, they would not be aware of or think of some like that. 
    • trents
      That's a good idea. It can at least establish the potential for developing celiac disease and can help people decided between a celiac diagnosis and NCGS (Non Celiac Gluten Sensitivity). And it doesn't require a gluten challenge and can be had without a doctor's prescription.
    • awright24
      I have my endoscopy on Thursday, has anyone had the procedure done with a cough? I don't have a continuous cough, but every now and then throughout the day I have sort of coughing episodes. They are a lot better than they were but I called endoscopy and they said to speak to my gp and my gp got back to me and said I need to ask endoscopy if its ok if I have it done still.  Help!
    • MMH13
      Thank you so much, everyone. For the moment my doctor just has me taking iron but hopefully we can reconnect soon. I'm going to look into genetic testing, too. Great advice all around and I appreciate it--and you can bet I'm going off the PPIs!
×
×
  • Create New...