Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going To Parties.


Barbara.

Recommended Posts

Barbara. Newbie

How do you manage going out to parties? We have many friends/relatives who invite us out to party occasions: birthdays, anniversary parties, showers etc. All know I have celiac disease (most do not fully understand it). I don't expect anyone to prepare special dishes for me. I generally keep it all low key and try to just eat things that I know are safe. I have run into attitudes because I am not eating what they have provided. Again, I politely explain I have celiac, but they seem hurt or slighted. Do you bring your own foods? eat before you go? I am starting to avoid social events because of the stress involved.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ahorsesoul Enthusiast

I eat before I go, bring food if asked and explain to them I here to enjoy the friendship and company more than the food. I do explain I'm unable to eat gluten and become very sick if I eat it. I have asked for recipes of items that the hostess or guests have brought that look good so I can make it at home with gluten free items.

If pressed further I have asked if I can stick a knife in their gut, because it what it feels like if I eat gluten. I only say this if someone is really giving me a hard time. Or I ask them if they will be the one driving me to ER and will they be willing to pay for the ER visit that will result from me eating gluten.

boysmom Explorer

All of the above. I've only been gluten-free for about 9 months now, and now that we have a gluten-free house all of my sons (ages 8-18) have displayed varying degrees of sensitivity as well. Currently 3 of the 5 of them have chosen to avoid gluten and the other 2 limit how often they eat it.

So far when we've been invited to someone's home, people have been sweet and understanding about it. We usually try to eat first, depending on the situation either a substantial snack or a meal so we're not tempted to eat something questionable because we're hungry. If it's something that requires a specific kind of food like a pizza party or birthday cake we'll take our own so we can eat with everyone there. Even if we've eaten ahead of time being face to face with something yummy that we don't do often is tough temptation for a kid! My dh's chocolate torte is good enough to make everyone else jealous of OUR food! ;) All the boys declared it better than any other birthday cake they've had. lol

If it's a snack-y event and everyone will just be noshing on chips and finger foods, I've brought along snack bars or a bottle of kefir smoothie so I can be 'eating' with them and then eat a real meal once I get back home.

I'm sorry you're running into attitudes. I try to judge my hearer and vary what exactly I tell them based on how interested they really are. I don't go into the whole celiac thing with some people because it's just too involved to explain and they really don't want to hear all about my medical history and bowel habits :P In those cases I will just say we have some food allergies (or food issues if I want to be more precise) and most people seem to be ok with that. No one faults a diabetic because they don't eat cake and ice cream at the birthday party. ;)

With family or closer friends, I do go into more explanation of the fact that I have celiac disease and how much better I am now and how sick eating gluten makes me, but I also assure them that it took me several months to figure out where all it could be hidden so I don't expect them to try to figure it out in time for dinner on Friday. lol I often offer to bring along something we can eat (mac & cheese, for example) to share, so that we're assured something safe to eat and they can see that our food doesn't have to taste weird or unsatisfying. If they're willing, I will look over the ingredients they used in preparation and try to sort out what parts of the meal would be safe for us to eat. A quick look around the kitchen can give you a good idea of how safe that is, for example if the kitchen is really clean and they use stainless pots, I'm going to feel safer than if it's dusty or cluttered and they use worn out old Teflon coated pans.

Don't let food get in the way of friendship. I'd even tell them that I don't want to allow the food to be an issue, and if you're worried about getting sick or already starting to feel bad while everyone is still visiting after the meal your focus is on your tummy and not your friends or family.

Be safe, be polite, and have fun!

tarnalberry Community Regular

I can't fathom the attitude. Just because someone cooked something doesn't mean that I have to eat it. What I eat is my choice, no one else's. Doesn't matter if I'm allergic to the food, intolerant of the food, just don't like the food, or happen to be full. It's just not their business what I eat or don't. Maybe my "I'm not hungry, thanks" or "I'm not interested, thanks" is sufficiently conversation-ending for most, but I haven't had much problem.

For parties, I eat before hand and bring my own food. If it's a sit-down type of affair, I will eat before hand, NOT eat my own food at the table (unless it's a friend who understands the deal and I know they're good with it, this would be for people I don't know well), but may eat it afterward if I need to. But that's just me, there's no right or wrong way - just what works for you.

sandsurfgirl Collaborator

One benefit to living in L.A. is that there are lots of skinny people who are watching what they eat at parties, so many people just graze on the veggies or walk around with a wine glass all night. I haven't been to too many things yet, but the ones I've been to nobody noticed what I was eating. A sit down dinner would be harder.

mndtrp Newbie

Pretty much everyone we would eat with knows about our situation, so they understand if my fiance doesn't eat anything. They usually try to have something that she can eat. She also usually takes along something she can snack on, and we've sometimes left in the middle of the party to get her something she can eat, returning after we have found something. So far, she hasn't had anyone give her any grief, most people seem fairly curious and interested.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      8

      Related issues

    2. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      7

      My only proof

    3. - Wheatwacked replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

    4. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Recovery from gluten challenge

    5. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,288
    • Most Online (within 30 mins)
      7,748

    Greg R.
    Newest Member
    Greg R.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
    • Scott Adams
      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
    • Scatterbrain
      Thanks to those who have replied.  To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell. To Trents, We didn’t do any of the construction but did visit the job site quite often.  While getting the old house ready we stirred up a lot of dust and I’m sure mold but haven’t been back there for over a month.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.