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Serious Weight Loss! Please Help!

4 posts in this topic

I need some advise from everyone. I've had the flu over the last 5 days and lost another 8 lbs - and I was already very thin. I'm feeling better now, and I'm able to eat again. I made the mistake of taking Kaopectate (didn't check to see if it was gluten-free first) which contributed to the problem. My family is very worried about me and are on me to do something - they don't unerstand about Celiac and don't understand the diet. They just think I'm not eating right. I have a malabsortion issue and a lot of stomach damage. Since I am so new at the gluten-free diet (3 months) the damage has not had a chance to heal . I sure didn't need the flu to add to the mix. Anyone know of a fast weight gainer that doesn't have soy or dairy? I also have a problem with starches and sugar - so I can't just pig out on potatoes and butter. Please - does anyone have a suggestion????


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eat anything and everything that you can keep down alright.

peanut butter


chicken rice soup (add some olive oil) (it really is easy to make from scratch - even if you're sick, though maybe not in the heat of the worst part of the flu!)


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in australia we have Sustagen which is gluten free but i'm not sure if it has soy or dairy in it, and not sure if it's available in America under the same name.

You can get it in Hospital Strength which has more calories and is best for weight gain

I used to use this in the early days when I was struggling to keep my weight up, both as a meal replacement if I was too sick to eat and also as a supplement between meals.

sip on lemonade throughout the day too, it has lots of energy and is easy to digest

hope your'e feeling better soon


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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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