Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anybody In San Diego Area?


Ca Kathleen

Recommended Posts

Ca Kathleen Newbie

Hi everyone!

I've been reading your postings and learning alot. I am from the northern VA area, but have been in CA for 13 years. Does anybody know of a good doc in San Diego? I've been to 19 docs in the last 7 years. The doc who diagnosed me does not really believe celiac disease to be a big deal- forgot to mention all the derivatives from wheat and additives to avoid! I'm worried my 9 year old son might have it (no major symptoms) but I need to find a good doc . He lives on pizza and organic mac n cheese. I am also concerned about dining out - what is this card some of you have mentioned? :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Not sure about the doctor in that area but here is where you can get the dining cards:

Open Original Shared Link

They basically tell the waitress/waiter what you can't have and to warn them you can get very sick.

celiac3270 Collaborator

Dining Cards for different languages:

Open Original Shared Link

Open Original Shared Link -- with this one you make a customized card

Open Original Shared Link

Open Original Shared Link

Offering a translation card tailor-made to your personal requirements. Choose up to eight allergy/intolerance foods

Open Original Shared Link

celiac disease in different languages,translations for travelling

Open Original Shared Link

Here's a link for San Diego:

Open Original Shared Link

I have an Adobe file with 140+ pages of restaurants -- mostly chains that are found everywhere, but about 15 pages of certain states, one of which is CA...not sure if it has stuff for San Diego specifically, but if you PM, e-mail, or post your e-mail address, I'll send it to you.

Dining Cards in English

They basically tell the chef what your condition is, how you need your meal prepared, etc. I don't think you need a link for something like that...you could write your own. Something like...btw, I'm making this up on the spot:

---------------------

I have Celiac disease, which is an intolerance to gluten. Gluten is found in wheat, rye, barley (malt), oats, and all derivatives of these grains. Foods that contain gluten include bread, pasta, pizza, (etc.). Even the tiniest bit of any of these can make me very sick. Please prepare my meal simply, with no spices, gravies, or fillers.

Also please make sure that utensils that are used to prepare gluten-containg foods do not touch my gluten-free food. A crumb can make me sick so this is very serious.

Thank you for your effort and help.

-----------------

You do not need a dining card when you're eating at "restaurants" such as McD's and they are sort of optional at places w/ gluten-free menus, such as Outback Steakhouse and TGIF. BTW, I included oats because most are contaminated and I wouldn't trust the chef at a restaurant with oats.

You can probably make a better one and I could probably make a better one than that, too, but that's just to give you an idea

-celiac3270

VegasCeliacBuckeye Collaborator

This website should help ya

www.glutenfreeinsd.com

FYI, Donna Korn lives in San Diego (HEAD of R.O.C.K. -- Raising our celiac Kids -- she would have a good recommendation)

I used to see a guy in La Jolla...he was SUPER expensive though, he knew everything about Celiac....

Honestly, for my money, I only use the Doctors for blood tests and prescriptions for Dapsone (DH) ..

JMO

celiac3270 Collaborator

Oh, funny! :lol: My site and your's are the same, but your's has a diff. name...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    2. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,411
    • Most Online (within 30 mins)
      7,748

    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.