Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test Results Lost


baggotlane

Recommended Posts

baggotlane Rookie

Dear All,

The lab that did my initial stool testing now says 10 weeks later that they lost the results! The lab is a well-known nationwide corporation - LabCorp. I have called for the results every week after the first and they said they were still working on it. Now they admit that they lost them. The trouble is not simply redoing them - I was on gluten then and went gluten-free a day later. It may take months to recover that initial condition.

If they lose things like stool samples, not simple small items in this case, what else can they lose? Can we trust them? I have told my doctor I will not be tested by them again, even though they have their offices in the hospital I attend. And if they can make mistakes like this how many more do they make that we do not hear about? Or how many are not really the results of a particular patient?

This is serious stuff, affecting the lives of patients. I think we should raise our voices to congress to investigate. I have read revcent reports of overcharging or mis-charging.

Andrew

San Diego


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



giselleacttwo Newbie

I'm sorry, that must be so frustrating. I can see why you would be very angry.

A few months ago I was scheduled for an emergency c-section. My doctor did an amniocentesis (a very hairy procedure, which involved 3 VERY large needles being stuck in my VERY pregnant abdomen) to check for fetal lung maturity. My c-section was scheduled the next day pending the lab tests, which were flown out of state(to San Diego, actually LOL) to be done by a certain lab. Lo and behold, just as I was getting prepped for surgery, with IV already in place they called the lab and the results were lost! We couldn't go forward with the surgery without it, and we ended up losing valuable time which could have endangered my life or my baby's. Fortunately, all turned out well in the end, but it was a long and frustrating ordeal which resulted in some not too pleasant words said about that lab.

Anyway, my point is, I concur that something needs to be done. It is no small thing when labs get lost and peoples' lives are at stake.

baggotlane Rookie

Well, The problem is worse than getting things lost. Getting things lost is just when the problems are seen. But, what percentage of cases are mishandled or mixed up internally? We will never know.

I have had another experience of late with this lab. They had to do special tests, not commonly done for my blood analysis (nothing to do with all the typical Celiac tests). Several weeks after it was done I was called back in to get it redone because the staff had not been told that for this case the blood had to be keep chilled after withdrawing it. I am glad that they found out in time on this occasion.

But, together with all the cases I hear about people getting billed for the wrong tests or tests not being done I fear we are using a very expensive and unreliable resaource. In my case I asked for second tests to be done - and yes there were real differences! In future I may seek a second lab for each test.

My message is - it is important to investgate the accuracy and reliability of the testing lab before one goes ahead, as I see here so often, to balme or question the doctor.

Andrew

celiac3270 Collaborator

I understand how frustrating that must be. Prometheus is probably the best lab for celiac testing.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,442
    • Most Online (within 30 mins)
      7,748

    Nony
    Newest Member
    Nony
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.