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Well, Guys, It Looks Like I'm Here For The Long Haul :)
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I started a gluten-free diet shortly after Thanksgiving, and was on it for about 5 weeks. I was feeling a lot better, but decided to go off the diet for a week to see if I got ill. After four days I had to stop...I was dizzy, exhausted, nauseous, and depressed. My whole body hurt and I couldn't focus. It's been almost two weeks since I started the gluten-free diet again, and I'm feeling a whole lot better. I can get out of bed in the morning, and stay awake during the day! So, it looks like I'll be hanging around. :)

My name's Alis, and I'm a computer science student at the University of Michigan - Flint. I graduate in May - SCARY! I split my time between Flint and East Lansing, where my gent lives. :) A good number of my friends and family are in the medical profession or are chemists, which gives me the opportunity to get answers to all of the silly questions I ask while researching Celiac disease.

I'm also a bibliophile.

By the way, the Guido's in Okemos makes an amazing gluten-free pizza from scratch. The owner's mother has Celiac disease, so they are amazingly careful about contamination. I can't help myself...it will take me longer to heal because I'm a cheese addict.

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Welcome to our group Chiana! If you aren't having symptoms from the dairy then it is not likely a problem for you to eat it. For some people it is hard to digest lactose i dairy at first but after a while (healing) they can digest it. Hard cheeses are mostly casein as the lactose is digested by the bacteria. If you stop all dairy for a couple weeks and then start it again, doing hard cheeses first and then lactose (milk, ice cream) a week later, it should tell you if it is a problem.

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I get issues from milk sometimes, but not usually cheese. :) I stopped having cereal with milk years ago, because I always had terrible stomach problems afterward. Now I know that it was probably a combination of the cereal and milk both irritating my stomach. :D

I've just gotta sit on my hands for a few more months and see if my hormonal problems go away...then I'll be a happy camper.

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Happy campers are what we strive for! :D I had lactose intolerance for years and thot that was the cause of my problems. I even reacted to bread with little amount of dairy they put in it. So I took lactaid pills when I ate bread. Duh! It never really worked. I still can't eat dairy but I feel oodles better off gluten.

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Welcome, Alis! You are so lucky to have such a great pizza place! I'm jealous. :) Just wanted to say hi and hope you find this forum as useful as I did when I was diagnosed (and it still helps!).

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    • I think the gene tests are accurate.  Not sure if thier interpretation of them is.   If you actually think have Celiac, you need to know that.  You  need to know how careful you must be.  You need a diagnosis to get gluten-free food in hospitals or nursing homes (if you can find one that does gluten-free food).  Because thsese "stool tests" are not medically accepted, it is unlikely that a real medical facility will consider you to have Celiac.   http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/
    • Why would your doctor order an endoscopy and check for celiac disease, but not order a celiac panel?  Had you been gluten free already?  
    • Thanks cyclinglady ... just wondering, do most of the people on this forum believe the Enterolab stool / gene testing to be non-trustworthy? Or are you just recommending a diagnosis from my MD so that she is also treating me with full belief/knowledge of my condition? I've been gluten free now for 2 weeks - by the time I get in to my doctor, she orders the bloodwork and I get to a lab it could be another 2 weeks before the bloodwork is done. From what I understand, just a month of gluten free eating could skew the results of the blood test. Supposedly, the stool tests are much more accurate. I hate to go backwards and start eating gluten again just so I can have a blood test done that may or may not substantiate the results of the stool / gene testing. I'm so confused ...
    • Try to stick to a whole foods diet.  Things like unseasoned stew, soup, etc.  Things easy-to digest, preferably not processed by a anyone except you.  Too often new celiacs start using gluten-free foods (cookies, bread, crackers).  Your body is not used to these grains and they often contain lots of junk.  For example, I react to Xantham gum.  It does not bother my gluten-free hubby, but it gets me every single time!   Did you read our Newbie 101 thread under "Coping"?   It contains lots of valuable tips.  Make sure those meds are gluten free.  Supplements too.   I hope you feel better soon!    
    • Here are the actual tests.   http://www.cureceliacdisease.org/screening/ Insist on the complete panel.  Let them know (your doctor) that your father had celiac disease.   Document in writing!  If you have celiac disease, your life can be improved.  All the things I attributed to aging were actually related to celiac disease.  It is never too late to feel well!  I am in my 50's but my Aunt iis 81.  We celebrate a Gluten free Thanksgiving every year!   Oh, my kid does not have celiac disease, but she is tested every few years even though she is symptom free!  There are silent celiacs.  My symptom?  Anemia.  No tummy issues.   Please advocate for your health.  Keep all records.  Doctors can not ignore written facts and requests.    
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