Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Those Of You That Are Soy Sensitive...


hnybny91

Recommended Posts

hnybny91 Rookie

I am self diagnosed (and don't really care to have the "official" diagnosis) and have been gluten free a little over 1 month. I am beginning to suspect that I have additional intollerances as well. I cut out dairy a few days ago because I noticed my stomach would hurt after my morning coffee (with half and half.) I am now suspecting soy as well after I ate some tofu last night because I was up at 2 am with a headache and a bad stomachh ache. Also last night I noticed my ankles were swollen - something that was resolved going gluten free.

So, if you react to soy are your reactions similar?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

For me it depends on the type of soy I eat. Soy flour, soy milk or basically any straight form of soy (edamame, tofu, etc) will give me bad cramping like you are describing. Soybean oil or light soy cc gives me headaches. I also have swollen hands, swollen ankles and joint pain and fatigue when I eat soy on a regular basis. It may be that you are soy sensitive and it wouldn't hurt to try cutting it out as well. You can always try adding some back in again in a few months to test it.

hnybny91 Rookie

UGH...I was really hoping that I wouldn't have to do an elimination diet but it seems that might be the only way. I'm afraid that my DH is being to think that I am just making up these extra food intollerances for attention since I am no longer sick all the time from gluten.

Why is it that all these additional food intollerances are so severe now that we have cut out the gluten? Is it because we just felt bad all the time we never noticed it? Are our systems MORE sentitive to it now that we have begun healing from gluten? I got glutened off of a gluten free menu the other day and I actually THREW UP before I even left the restaurant! I have NEVER thrown up from celiac disease before :(

cassP Contributor

i am trying my best to avoid soy because it aggravates Grave's antibodies.. BUT- its in freaking EVERYTHING- even my beloved gluten-free Chipotle :(

anyways... not sure of my reactions- i seem to react to different forms of soy... i used to eat tofu and gluten-free soy sauce with no reactions... and miso soup too... but some soy byproducts in salad dressings or prepared meals give me allergic reactions, and a hot nausea ... and then soy flour used in gluten-free baked goods has always given me mild crampy gas. its weird- MOST legumes give me semi painful gas... yet like i said before- tofu, and miso soup had never bothered me.

??

mushroom Proficient

When we first give up gluten it is such a relief to our bodies that they put the antibody guards on leave and leave some sentinel enforcers behind just in case we forget ourselves. If these sentinel guards come in contact with gluten they come down on it very hard - your body says "Oh no, I thought I got rid of that stuff. Give it the chop" :D:lol:

Yes, the reaction can be much stronger than previously.

The additional intolerances start showing up for a couple of reasons. 1. the response to the gluten was so overwhelming to your body that it was too feeble to complain about the other things and if it did they were just little voices crying in the wilderness; 2. the gluten has given you what is called a leaky gut, which lets larger particles of food into the bloodstream than it should. These large particles are not recognized by the body as friend, so become foe and the body sets up an autoimmune response in an attempt to get rid of them. Anything you eat a lot of is a candidate to become an intolerance so try to keep you diet as varied as possible (within your food limitations, that is :D )

eatmeat4good Enthusiast

Mushroom you are amazing.

To the OP:

My symptoms are slight headache-

not the migraine I get with gluten.

And...swelling...my face, eyelids, ankles, feet and hands are visibly swollen if I eat any of the soy...

I'm still puzzling out reactions too, but so far I can tell these are definitely related to soy.

Sometimes D..but no stomache ache..weird.

Good luck and hope you feel better soon.

cahill Collaborator

For me, I have vertigo,ringing in my ears ,brain fog and other neurological symptoms. I also have digestive issues, the hole in the gut feeling,cramping ect... The one that concerns me the most is blood in my stool. That only happens when I eat something with soy in it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Charlie1946's topic in Related Issues & Disorders
      5

      Severe severe mouth pain

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      40

      My journey is it gluten or fiber?

    3. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      5

      Severe severe mouth pain

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      5

      Severe severe mouth pain

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      40

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,900
    • Most Online (within 30 mins)
      7,748

    sai4a
    Newest Member
    sai4a
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      @Charlie1946, celiac disease damages the lining of the small bowel which is the part of the intestinal track where all our nutrition is absorbed. Celiac disease, therefore, often results in nutritional deficiency related health issues. In addition, you describe a diet that sounds largely devoid of fruits and vegetables and dairy (for calcium). This does not bode well for good oral health or good health in general.  It can take two years or more for good healing of the lining of the small bowel after adopting a consistently gluten free diet. In the meantime, adding in good quality supplements can help compensate for poor nutritional absorption efficiency. Common over the counter vitamins and supplements are often optimized for shelf life rather than good assimilation/utilization by the body. We commonly recommend that those struggling with nutritional deficiencies start taking high potency B-complex, 5-10,000 IU of E daily, D3, Zinc and magnesium glycinate. They need to be checked to make sure they are gluten free since wheat starch can be used as a filler in pills and vitamins. Costco Kirkland Signature and Nature Made brands are often good choices. What is causing your swallowing problems? Is it the thrush?
    • knitty kitty
      The Benfotiamine and thiamax need magnesium to make life sustaining enzymes.  Yes, go ahead and take the Benfotiamine and Thiamax now and include the magnesium as soon as possible.   Yes, take the magnesium at breakfast, too.   I take my Benfotiamine and TTFD Thiamax and B Complex  at the beginning of breakfast.  I take the magnesium after I finish eating breakfast.  Yes, I take NeuroMag.  
    • Charlie1946
      @knitty kitty thank you for replying so quickly! I have not done well at all taking vitamins or supplements, I have such a hard time swallowing even small pills, so I have resorted to crushing them and taking them with Gatorade.  Pretty much I eat baked chicken tenders, Fairlife chocolate protein shakes, gluten free crackers. Thank you so much for the advice, I will try it all for sure, because everything I have tried OTC has done nothing 
    • Charlie1946
      Hi, thank you for the quick reply! I was diagnosed about 5 years ago I think,  I try to be extremely careful with what I eat so I don't get cross contamination. I used to get little sores in my mouth when I was little, usually from sucking on hard candy, but L-lisene would clear it right up. I got that Nasal Navage thing and used it twice and that's when I thought I had a sinus infection. So I got a z pack. Then I noticed my tongue was coated and it was white except right down the middle which was more brown and crusty, like the corners of my mouth. I also have dry mouth and I went way too long before I started treating it. So then I had some kind of huge pill and Nystatin mouthwash. My mother in law's new husband ( they live upstairs) started complaining of exactly the same symptoms as me. He went to urgent care, they said it wasn't thrush, it was shingles. We both went to our dentist's for cleanings, I don't have insurance so I really couldn't tell they cleaned my teeth at all. But she said my mouth looked good, all cleared up. I had a day and a half of no pain and then it came right back. So I got more pills and miracle mouthwash. There are times it feels like dry socket and times it feels like it's bleeding but it's not. I don't see any gum or facial swelling, I did see a couple of tiny ulcers on my bottom lip, roof of my mouth is still sore, and my tongue and cheeks are still a little coated. I am just at a loss. My mother in law's husband, they  took swabs and called back a week later and said it was a new herpes variant virus that is going around but not contagious. He was cured after a week! And I'm going on 3 months 😭
    • xxnonamexx
      The thiamax and benfo I ordered should come tomorrow. I will start Friday ny b complex the benfo and thiamax for breakfast. I haven't ordered magnesium yet. I wanted to start with this first then add magnesium. Should it be fine to take b complex the thia/benfo and eventually magnesium at breakfast together? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.