Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Those Of You That Are Soy Sensitive...


hnybny91

Recommended Posts

hnybny91 Rookie

I am self diagnosed (and don't really care to have the "official" diagnosis) and have been gluten free a little over 1 month. I am beginning to suspect that I have additional intollerances as well. I cut out dairy a few days ago because I noticed my stomach would hurt after my morning coffee (with half and half.) I am now suspecting soy as well after I ate some tofu last night because I was up at 2 am with a headache and a bad stomachh ache. Also last night I noticed my ankles were swollen - something that was resolved going gluten free.

So, if you react to soy are your reactions similar?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

For me it depends on the type of soy I eat. Soy flour, soy milk or basically any straight form of soy (edamame, tofu, etc) will give me bad cramping like you are describing. Soybean oil or light soy cc gives me headaches. I also have swollen hands, swollen ankles and joint pain and fatigue when I eat soy on a regular basis. It may be that you are soy sensitive and it wouldn't hurt to try cutting it out as well. You can always try adding some back in again in a few months to test it.

hnybny91 Rookie

UGH...I was really hoping that I wouldn't have to do an elimination diet but it seems that might be the only way. I'm afraid that my DH is being to think that I am just making up these extra food intollerances for attention since I am no longer sick all the time from gluten.

Why is it that all these additional food intollerances are so severe now that we have cut out the gluten? Is it because we just felt bad all the time we never noticed it? Are our systems MORE sentitive to it now that we have begun healing from gluten? I got glutened off of a gluten free menu the other day and I actually THREW UP before I even left the restaurant! I have NEVER thrown up from celiac disease before :(

cassP Contributor

i am trying my best to avoid soy because it aggravates Grave's antibodies.. BUT- its in freaking EVERYTHING- even my beloved gluten-free Chipotle :(

anyways... not sure of my reactions- i seem to react to different forms of soy... i used to eat tofu and gluten-free soy sauce with no reactions... and miso soup too... but some soy byproducts in salad dressings or prepared meals give me allergic reactions, and a hot nausea ... and then soy flour used in gluten-free baked goods has always given me mild crampy gas. its weird- MOST legumes give me semi painful gas... yet like i said before- tofu, and miso soup had never bothered me.

??

mushroom Proficient

When we first give up gluten it is such a relief to our bodies that they put the antibody guards on leave and leave some sentinel enforcers behind just in case we forget ourselves. If these sentinel guards come in contact with gluten they come down on it very hard - your body says "Oh no, I thought I got rid of that stuff. Give it the chop" :D:lol:

Yes, the reaction can be much stronger than previously.

The additional intolerances start showing up for a couple of reasons. 1. the response to the gluten was so overwhelming to your body that it was too feeble to complain about the other things and if it did they were just little voices crying in the wilderness; 2. the gluten has given you what is called a leaky gut, which lets larger particles of food into the bloodstream than it should. These large particles are not recognized by the body as friend, so become foe and the body sets up an autoimmune response in an attempt to get rid of them. Anything you eat a lot of is a candidate to become an intolerance so try to keep you diet as varied as possible (within your food limitations, that is :D )

eatmeat4good Enthusiast

Mushroom you are amazing.

To the OP:

My symptoms are slight headache-

not the migraine I get with gluten.

And...swelling...my face, eyelids, ankles, feet and hands are visibly swollen if I eat any of the soy...

I'm still puzzling out reactions too, but so far I can tell these are definitely related to soy.

Sometimes D..but no stomache ache..weird.

Good luck and hope you feel better soon.

cahill Collaborator

For me, I have vertigo,ringing in my ears ,brain fog and other neurological symptoms. I also have digestive issues, the hole in the gut feeling,cramping ect... The one that concerns me the most is blood in my stool. That only happens when I eat something with soy in it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    2. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Positive biopsy

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,012
    • Most Online (within 30 mins)
      7,748

    jsslynjnes25
    Newest Member
    jsslynjnes25
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  One of the symptoms of Thiamine deficiency is difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD symptoms as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
    • pothosqueen
      I was just diagnosed at 26 after accidental finding. Any simple tips for newbies? Things a non celiac would never think of? I already went through my prescriptions and identified some medications that have gluten. Is there a beginners guide? Celiac for dummies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.