Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Eat?

T.H.

By T.H.
in Super Sensitive People

Recommended Posts

T.H. Community Regular
T.H.
Posted

Just realized, with a bunch of us together, maybe we can help each other find safe food or share brands that we use regularly. :-)

So, again, starting off.

What works for us:

Field Day Mediterranean sea salt

Bariani Olive oil

Ancient Harvest Quinoa - in the 25 pound bags - grain for the 1 pound boxes are shipped to the USA and packaged here. The 25 pound bags are shipped straight from Bolivia.

What we're checking out:

Some beans ordered online from Rancho Gordo

Nuts in the shell, ordered online from anuts.com

Madhava agave nectar (makes me feel a little off, but might be okay for my daughter)

And that's it, really. Everything else is fresh food from our garden, local farmers, or local ranches.

It's taken us a little over a year to get here, and I'm still screwing it up a bit, because I am not sure all the time what's safe for us. My daughter may have some fructose issues (which will kill all agave nectar hopes, obviously). I might have a couple intolerances on top of allergies. We still get reactions, even on the above diet, where we only eat food from our own kitchen.

But it's slowly improving, so at least it seems to be going in the right direction. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFreeMO Proficient
GFreeMO
Posted

Mission Corn Chips and Corn Tortillas are great! They have never made me sick and I am super sensitive.

jerseyangel Proficient
jerseyangel
Posted

Cerulean Seas Sea Salt

Filippo Berio Olive Oils

Land O Lakes Butter

Fage Yogurt

Cabot Cheeses

Lara Bars

Rice Works Chips

Tazo Awake Tea

Enrico Pasta Sauce

Tinkayda Pasta

Lundberg Rices

Springtree Maple Syrup

Gluten Free Pantry mixes without tapioca

Some Glutino--without soy or legume protein

Enjoy Life Chocolate chips

Argo Cornstarch

Ener-g Potato Starch

Meats/poultry/some fruit/veggies (except legumes)/potatoes

Organicville Ice Creams

ecf Rookie
ecf
Posted

In addition to being gluten free, I also cannot tolerate tapioca and millet, and have anaphylactic allergies to dairy, eggs, nuts, red meat and mustard:

Maldon sea salt

Unio olive oil

Silk soy milks and yogurts

Rice Chex

Glutino pretzels

EnerG pretzels

Schar rolls and baguettes

Enjoy life cookies, bars, chocolate chips

EnerG flours

'Cause You're Special flours

Cape Cod Robust Russet potato chips

Della rice

Wolff's buckwheat products

Tinkyada pasta

Pomi chopped and strained tomatoes

San J sauces

Bonne Maman jam

Jif peanut butter

Santa Cruz Organics applesauces and juices

Sugar in the Raw

Sunmaid dried fruit

The Republic of Tea teas

Redbridge beer

Woodchuck cider

Sunnybrook Farms ground turkey meat (plain only, not Italian Seasoned)

Pork products and poultry from Whole Foods meat counter

Fresh fruits and vegetables galore

  • 2 weeks later...
Tigercat17 Enthusiast
Tigercat17
Posted

What a Great topic! I still consider myself a newbie (18 months gluten free), but I've learned the hard way that I can't eat a lot of processed foods and I'm wondering if I do have a corn sensitivity also. I'm still working on that one... ;)

Giant Eagle (fresh) Chicken, Beef and Pork.

Fresh veggies and fruit

Filippo Berio Olive Oils

Walmart (Great Value) Butter

Walmart (Great Value)Cheeses

Walmart (Great Value)Potatoe Flakes

Lara Bars

Lays Stax chips

Lipton Tea bags Tea

Bertolli Pasta Sauce

Tinkayda Pasta

Minute Rices

2 Glutino cerals - Apple and Cinnamin & Honey and Nut (can only eat once a week)

Ponco Cream of Buckwheat hot cereal

Argo Cornstarch

Ener-g Potato Starch

Edy's Ice Creams

Silk soy yogurt

Silk Almond milk

Glutino pretzels

Glutino choclate covered pretzels -Are the Best!

San J sauces (once in a while)

Jif peanut butter

Smuckers Jelly - use grape and strawberry

Udi's Bread -Brown & White

Splenda

Popweaver microwave popcorn

Jello

Betty Crocker Devil's food cake mix

Kraft Miracle whip

Kraft Ranch dressing

Delallo Sweet italian dressing -so good!

Heinz ketchup

Lactaide milk

Imagaine Tomatoe Soup (when I make stuffed cabbages only)

Glutino crackers (not every day)

Bumble Bee Tuna -light

Ancient Harvest Quinoa Pastas & Tradional

*McCormick seasonings, but don't use the mixed variations too often and I'm wondering if I could find other seasonings that might be safer.

  • 3 years later...
lilwren Newbie
lilwren
Posted

sorry ... i realize this is a really old thread, but i am trying to find out if anuts.com has cross contamination issues.  the OP said they were checking it out ... and so am i.

 

i emailed anuts.com asking about gluten contamination and was told this in my first email:

 

 -------- Great question. I did a simple internet search on peanuts and they are gluten free. The roasted in shell peanuts are dry roasted so nothing is added to them.

 

i responded and asked the gentlemen - specifically - if the peanuts were processed on equipment that also processes wheat.  this is his reply:

 

---------- You will be buying them in bulk. That is how we sell them. So we use a scoop (that is washed) and we scoop the nuts into a zip lock bag. We do have dairy in our plant (and of course other nuts) but no wheat.

 

so i am no closer to getting an answer and they seem to be pretty clueless.  they also sell trail mix and flavored popcorns.  in my experience there is a high risk of cross contamination.

 

i have gotten glutened from ordering supposedly gluten free nuts from nuts.com so am very leery of placing an order with anuts.com.    

 

has anyone gotten a straight answer from anuts.com or spoken to anyone from there that really understands the issue?

bartfull Rising Star
bartfull
Posted

Planter's. If there is any gluten they will be labeled. If they are processed in a facility that also processes gluten containing grains, it will be labeled. I eat their cashews and cocktail peanuts all the time.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dilettantesteph Collaborator
dilettantesteph
Posted

I had communications with anuts in which they said that their facility if gluten free.  I looked at the ingredients in their trail mixes and flavored popcorn and I didn't see any gluten.  Your post does not specifically state that your contamination issues are with gluten only.  For extra assurance, you can buy in shell nuts.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Blood Test for Celiac wheat type matters?

      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities. Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement. 130 times the safe upper limit. 130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms...
    2. trents
      - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative...
    3. JudyLou
      - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankle...
    4. marzian
      - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

      This is very exciting news. The research lends itself to preventing the immune system in other autoimmune disorders from getting out of sorts. As someone with a compendium of autoimmune disorders I feel a bit of hope.
    5. Jmartes71
      - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week, in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,144
    • Most Online (within 30 mins)
      7,748
    Marsu
    Newest Member
    Marsu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Blood Test for Celiac wheat type matters?

      By Wheatwacked · Posted

      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities.  Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement.  130 times the safe upper limit.  130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms per drop.  It takes 20 drops to reach the safe upper limit. In the US the Safe upper limit is 1100 mcg.  In Europe 600 mcg and in Japan 3000 mcg ( 3 mg).
    • trents
      Seeking advice on potential gluten challenge

      By trents · Posted

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.