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This May Sound Like Tmi But Whatever


Rowena

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Rowena Rising Star

So I was glutened recently, (had chili I made and froze, forgetting the chilis I put in it were not gluten free, so I rediscovered this), but I was wondering. Is it common to always have to go to the bathroom and/or feel like you are constantly wetting your pants when glutened?


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eatmeat4good Enthusiast

I get the symptoms of cystitis or urinary tract infection when glutened. When I get a UA done it never shows bacteria but I have the sudden and constant urge to pee. I never connected it to gluten until I went gluten free and was on antibiotics for interstitial cystis for years. No longer need those but I do get that when glutened. I have read of three or four others here who do too.

But to be on the safe side, make sure you don't have a UTI that just happens to be coincidental with your glutening. Better safe than sorry.

kathleenp Apprentice

So this has me wondering...I am just discovering that I might be gluten intolerant and am not gluten free yet. For over a year now I have had a sort of discomfort in my bladder-it feels somewhat like I am getting an infection, but not as intense and an infection has not happened in about a year now. It comes and goes. I also urinate kind of frequently and can't seem to hold a lot. Now I'm just wondering if it might be a symptom...

etta694 Explorer

This was one of the many symptoms I accumulated over time... this was one of the first I had. And 6 yrs later... I am gluten sensitive. So, could be... but not necessarily.

ndw3363 Contributor

Thank you for starting this thread! This symptom is how my hell began. Three years ago, I thought I was getting a UTI (got them all the time in college) so of course I made an appointment with my GP. He said "well I don't see any evidence of infection, but here's an antibiotic". I had no reason not to trust him. Of course, antibiotic didn't work so he gave me a "stronger" one. All the ladies know what happened after that. Because (I now know) my immune system was already compromised by the inflamation response, the two courses of antibiotics caused persistant yeast infections (have only been infection free for about a week or so at a time over the course of three years). I was diagnosed with interstial cystitis, but I KNEW that wasn't what was going on. Never would have put the two together though. Glad to know that I wasn't crazy. Been feeling much better since going gluten free - have only had a couple uncomfortable days in the two months since I went gluten free. :)

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
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    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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