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This May Sound Like Tmi But Whatever

Rowena

By Rowena
in Coping with Celiac Disease

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Rowena Rising Star
Rowena
Posted

So I was glutened recently, (had chili I made and froze, forgetting the chilis I put in it were not gluten free, so I rediscovered this), but I was wondering. Is it common to always have to go to the bathroom and/or feel like you are constantly wetting your pants when glutened?

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eatmeat4good Enthusiast
eatmeat4good
Posted

I get the symptoms of cystitis or urinary tract infection when glutened. When I get a UA done it never shows bacteria but I have the sudden and constant urge to pee. I never connected it to gluten until I went gluten free and was on antibiotics for interstitial cystis for years. No longer need those but I do get that when glutened. I have read of three or four others here who do too.

But to be on the safe side, make sure you don't have a UTI that just happens to be coincidental with your glutening. Better safe than sorry.

kathleenp Apprentice
kathleenp
Posted

So this has me wondering...I am just discovering that I might be gluten intolerant and am not gluten free yet. For over a year now I have had a sort of discomfort in my bladder-it feels somewhat like I am getting an infection, but not as intense and an infection has not happened in about a year now. It comes and goes. I also urinate kind of frequently and can't seem to hold a lot. Now I'm just wondering if it might be a symptom...

etta694 Explorer
etta694
Posted

This was one of the many symptoms I accumulated over time... this was one of the first I had. And 6 yrs later... I am gluten sensitive. So, could be... but not necessarily.

ndw3363 Contributor
ndw3363
Posted

Thank you for starting this thread! This symptom is how my hell began. Three years ago, I thought I was getting a UTI (got them all the time in college) so of course I made an appointment with my GP. He said "well I don't see any evidence of infection, but here's an antibiotic". I had no reason not to trust him. Of course, antibiotic didn't work so he gave me a "stronger" one. All the ladies know what happened after that. Because (I now know) my immune system was already compromised by the inflamation response, the two courses of antibiotics caused persistant yeast infections (have only been infection free for about a week or so at a time over the course of three years). I was diagnosed with interstial cystitis, but I KNEW that wasn't what was going on. Never would have put the two together though. Glad to know that I wasn't crazy. Been feeling much better since going gluten free - have only had a couple uncomfortable days in the two months since I went gluten free. :)

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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

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    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

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    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
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