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This May Sound Like Tmi But Whatever

Rowena

By Rowena
in Coping with Celiac Disease

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Rowena Rising Star
Rowena
Posted

So I was glutened recently, (had chili I made and froze, forgetting the chilis I put in it were not gluten free, so I rediscovered this), but I was wondering. Is it common to always have to go to the bathroom and/or feel like you are constantly wetting your pants when glutened?

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eatmeat4good Enthusiast
eatmeat4good
Posted

I get the symptoms of cystitis or urinary tract infection when glutened. When I get a UA done it never shows bacteria but I have the sudden and constant urge to pee. I never connected it to gluten until I went gluten free and was on antibiotics for interstitial cystis for years. No longer need those but I do get that when glutened. I have read of three or four others here who do too.

But to be on the safe side, make sure you don't have a UTI that just happens to be coincidental with your glutening. Better safe than sorry.

kathleenp Apprentice
kathleenp
Posted

So this has me wondering...I am just discovering that I might be gluten intolerant and am not gluten free yet. For over a year now I have had a sort of discomfort in my bladder-it feels somewhat like I am getting an infection, but not as intense and an infection has not happened in about a year now. It comes and goes. I also urinate kind of frequently and can't seem to hold a lot. Now I'm just wondering if it might be a symptom...

etta694 Explorer
etta694
Posted

This was one of the many symptoms I accumulated over time... this was one of the first I had. And 6 yrs later... I am gluten sensitive. So, could be... but not necessarily.

ndw3363 Contributor
ndw3363
Posted

Thank you for starting this thread! This symptom is how my hell began. Three years ago, I thought I was getting a UTI (got them all the time in college) so of course I made an appointment with my GP. He said "well I don't see any evidence of infection, but here's an antibiotic". I had no reason not to trust him. Of course, antibiotic didn't work so he gave me a "stronger" one. All the ladies know what happened after that. Because (I now know) my immune system was already compromised by the inflamation response, the two courses of antibiotics caused persistant yeast infections (have only been infection free for about a week or so at a time over the course of three years). I was diagnosed with interstial cystitis, but I KNEW that wasn't what was going on. Never would have put the two together though. Glad to know that I wasn't crazy. Been feeling much better since going gluten free - have only had a couple uncomfortable days in the two months since I went gluten free. :)

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      By cristiana · Posted

      Hi @trents Two things can happen:  1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus  for a couple of days.  2/ For a substantial glutening, and thankfully it's only happened once in recent years,  I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand.  It's pretty extreme.  That happens within about 2 hours of eating the gluten.  I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer.  I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions.  Definitely not health food!  Anyway,  I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!!  They've changed the ingredients and the fried onions are now cooked with wheat.   I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy.  I think I'd have thrown up by now had there been a lot of gluten in the onions.  
    • trents
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      By trents · Posted

      It might be wise to start him on small amounts and work up to 10g. Monitor how he reacts. Some people simply cannot complete the gluten challenge because it makes them too ill. By the way, you can buy powdered gluten in health food stores, at least here in the states you can. With a food scale, it would be easy to measure the amount being consumed in a day. I'm not sure what the intensity of reaction to gluten tells you about what's actually going on with regard to celiac disease. I mean there are some celiacs like me who don't seem to react to minor exposure amounts but who get violently ill with larger exposures. Then there are celiacs who get some kind of reaction to even the tiniest amount of exposure but don't necessarily get violently ill. And how the reaction manifests itself is very different for different people. Some, like me, experience emesis and diarrhea. Others just get brain fog. Others get joint pain. It's all over the map.
    • melthebell
      Persistent isolated high DGP-IGG in child despite gluten-free diet

      By melthebell · Posted

      That's interesting - that's a lot of gluten! I'll be very curious to see how my son responds to the gluten. In some ways, I guess having a strong reaction would tell us something? It's tough navigating this as a parent and having it be not so clear cut ;\
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