Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Off The Pill In Late May, Dx In June, No Period


carriecraig

Recommended Posts

carriecraig Enthusiast

I went off the pill after being on it for 10 years, because I was having spotting for 2 years straight. I was diagnosed with Celiac in mid-June. My first period after going off the pill was 1 week late, this month, it's 1 1/2 weeks late. Did anyone have a similar reaction with being diagnosed and going off the pill around the same time?

I plan on taking a HPT on Saturday if I still haven't gotten it by then...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jknnej Collaborator

I went gluten free six months ago and I've been on the pill for 11 years.

I didn't go off the pill, but after going gluten-free I missed my period 2 out of 4 months just because. I think it has something to do with going gluten free. Our bodies are in shock.

gf4life Enthusiast

I went off the pill after being on it for 5 years and it took me 6 months to start having periods again. I wasn't gluten free at the time, so I don't know how much that affected my situation. It is not uncommon to be late or even skip periods when stopping the pill.

God bless,

Mariann

Anya78 Explorer

When I went gluten-free in December my periods remained normal (I was still on the pill then -- just went off a couple weeks ago, so we'll see how that goes). I'm sure it's possible that going gluten free could mess with your cycle, just as it can take some time on the diet before Celiac symptoms disappear. It is pretty likely that your body is just readjusting to going off birth control. Many women's bodies take time to adjust to a normal cycle after stopping the pill.

Keep us posted on what happens. Though there's no way to know for sure if it's the readjustment from going off BCP or going gluten-free that is altering your cycle, I'm still curious.

Best wishes

  • 6 months later...
Sarah Beth Newbie

This isn't much different than what the others said, but I know that going off BC can mess with your hormones and throw off your cycle. Missing periods is one of the potential symptoms of celiac disease as well, and it takes 6-18 months of being gluten-free to heal up. You BC could have been what was keeping you regular.

I was diagnosed with celiac disease over a year ago (Dec 2004). When I went off the pill in October 2005, I had a 15 day cycle, then a 26 day cycle, then I missed a period completely (52 days w/out a period), and then a 25 day cycle. Before I went off the pill I had a solid 28 day cycle.

So I would just give it time. Go to a doctor if you miss two periods in a row, though.

-Sarah

tarnalberry Community Regular
I went off the pill after being on it for 10 years, because I was having spotting for 2 years straight. I was diagnosed with Celiac in mid-June. My first period after going off the pill was 1 week late, this month, it's 1 1/2 weeks late. Did anyone have a similar reaction with being diagnosed and going off the pill around the same time?

I plan on taking a HPT on Saturday if I still haven't gotten it by then...

If being celiac, and untreated, left you very underweight, that might be part of the reason. In that case, your period would be expected to return as you put on weight (particularly body fat).

mookie03 Contributor

Ironically, this post recirculated itself just as i was thinking the same thing.... I was dxed in June 2005 and went off the pill in July. Its now february and i havent gotten my period yet since june-- i am thinking it is from going off the pill but has anyone else not gotten their periods from the change in diet? (and no, i havent lost weight and yes, i am going to the doctor), just wondering if going gluten-free had such an effect on anyone else, b/c i know my doc has no knowledge of celiac


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jkmunchkin Rising Star

I've also been on the pill for 10 years or so. I haven't gone off it however, I was diagnosed in the end of June/July and I have noticed the last couple of months my period has not been as regular. I normally got it like clock work on the Tuesday after my last active pill. This past month it was a couple days late and same thing the month before. I think it has something to do with our bodies getting used to the new diet.

I'm also breaking out like I'm going through a second round of puberty!!

floridanative Community Regular

I went off the pill in August when my hubby's vasectomy doc confirmed the procedure worked. By September I thought I was losing my mind. My hormones were way out of whack and my gyno said the only thing I needed to know about going off the pill (after 18 years) was to take the last pack completely. Wrong!!! Someone on this board recommended a book that save me emotionally. It's called 'What your doctor may not tell you about Premenopause (not perimenopause) by Dr. John R. Lee. I got it used on amazon for less than $6 with shipping. It was the best $6 I've ever spent. It recommends natural therapies including Natural Progesterone cream, Evening Primrose Oil and OTC vitamins. My mood swings were so dramatic and out of control that my pcp told me St. John's Wort would be good to try too but I'd already started taking them too before I saw her. Luckily everything I was taking is gluten free (St. John's Wort and Primrose Oil even states so on the box/bottle) so I didn't have to change my therapy with the dx of Celiac last month. I would tell anyone if they can avoid HRT they should. It's cheaper to go with the natural remedies as well. Since I've been on the program recommended in the book (and approved by my pcp) I have regular cycles just like when I was on the pill. Unfortunately Dr. Lee is now deceased so his used books may call out quite a price in the future. Good luck to you!

mookie03 Contributor

It's wierd, other than minor bloating, i really have no signs of getting my period at all...in the past when i have gone off the pill i have skipped a few months but always had at least cramps each month.. but i agree, jillian, the change of diet seems to be a part of it...especially since im not the only one with this problem! floridanative- thanks for the advice, thats something i will ask my doc about if she wants to put me back on the pill, b/c i really dont want to!

  • 4 weeks later...
christa Contributor

I went off the pill two years ago and haven't had a period since. I went on progesterone and still didn't have one then I went on clomid and had one. But when I was off it I didn't have one. Who knows

sillyyak Enthusiast

I last had my period in August 2005, when I finished taking the PILL (by my own choice, not doctor ordered). Since August 2005 I have not had a single period or even a single body inkling (cramping) that I am going to get one either. I was diagnosed in November 2005. No doctor can tell me why I have not had my period either but I keep getting asked what "plan to do about kids" (by the doctors). Nice to know they have a plan also! grrr.

  • 4 years later...
Emily22 Newbie

I had a similar experience too. I have not been diagnosed with celiac disease, but I have gluten sensitivity and the past two months that I have been gluten fee I was late 2 weeks in June and it's been 2 weeks this month and I still haven't gotten my period. I went off the pill in late March of 2010, because I was having a lot of problems and I thought that the pill might be causing them, but I was wrong. I was always regular on the pill and not it seems just the opposite.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    2. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748

    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.