Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Strict While Pregnant?


gfreewife

Recommended Posts

gfreewife Newbie

My husband has Celiac Disease and I do not. I do follow a gluten free diet with him, but at about 95%. I never eat any form of breads or pasta, but if I'm out to lunch without my husband I do not worry about marinades, salad dressings, or sauces. We are thinking about having a baby in a year or so, so my question is: When I become pregnant, and while obviously being unaware of if the baby has Celiac or not, should I be following a gluten free diet at 100%?

I've read many posts from women who actually have celiac and are wondering about diet during pregnancy, but like I said, I don't have it.

Any help is appreciated!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

If you don't have celiac (or a gluten intolerance) I don't think you need to worry about it. If you keep your baby gluten free then you will not be able to get him or her tested for celiac when they get older.

tarnalberry Community Regular

If you are not celiac, you do not need to be gluten free during hte pregnancy. IF the baby appears to have failure to thrive issues or other issues that suggestion digestive trouble, you would want to try going gluten free as it can be passed in breastmilk, but until then, you don't have to change your diet.

AgainstTheGrainIdaho Rookie

That's is a tough question. It's hard to tell if he/she will have that allergy. My guess would be no gluten and just make sure that you are getting enough of the nutrients that gluten grains carry from a better source like Quinoa. If he/she is allergic, it would be better to start off his/her development with everything on the good side and when born you will see pretty quickly whether or not he/she has the same allergy as your husband. From what I've read, the accuracy for testing for the gluten allergy seems very inconsistent and most just figure it out on their own by the way they feel,act, or elimination diets and you too will be able to tell when that child is born by gassiness,fussiness, rashes, sickness and so on. While nursing you'll know by what you eat, just keep a food log and compare to the way he feels within 6 hours of eating, sometimes right away. Also a GREAT gluten-free vitamin for pregnancy is MegaFoods Baby and Me vitamin. You'll get Tons of great nutrients and it's free of Gluten, wheat, corn, Soy, Dairy herbicides and pesticides. All the MegaFoods are free of those too. Good luck :)

domesticactivist Collaborator

Celiac is not an allergy! It is an autoimmune disease! There are not always visible and identifiable symptoms, especially early on.

I have not seen any studies about celiac disease and the diet of the non-celiac mother during pregnancy. Anecdotally, I have heard of effects on sensitive babies/toddlers breastfeeding from mothers who eat gluten. I'd do my best to avoid it, but not beat myself up for a slip here and there. When breastfeeding I'd be more careful, and I'd raise baby to be gluten-free for convenience and just to be on the safe side.

You could do genetic testing to calculate the risk that your child has celiac disease. If the child wants to be able to have gluten later in life, a challenge and testing could be done. That would be better IMO than potentially damaging the child from toddlerhood on just so that testing can be accurate.

As for first foods, breastfeeding is great, then very cooked veggies (start with the orange ones), then meats. It's very easy to make baby food at home while making your own dish and you don't need to worry about all the stuff the processed food has in it.

lovegrov Collaborator

I've never seen any indication that the mother who does not have celiac need stay gluten-free. Even with a parent with celiac, the odds are still strongest that the child will never have it.

richard

gary'sgirl Explorer

From my experience, I would definitely encourage you to try to stay away from gluten while pregnant and breastfeeding. I think the advice that Domesticactivist gave was really good.

I didn't know i had Celiac disease until my third child was 5 months old. I found out because all three of my children had problems since they were 2 or 3 weeks old, and I had been pursuing finding out what was wrong with them (while ignoring my symptoms). I wish we had known about Celiac being in the family before I had kids, because what we all went through was so hard and exhausting. It's really hard to see your child not feeling well and having doctor after doctor tell you that there is nothing that they can find that is wrong - you are probably just exaggerating.

All three of my kids had sleeping problems, it got to the point that at the worst they could not sleep for more than 10 minutes at a time and would wake up screaming like they were in pain. There were many things that were not right and I think that it would have been much better if they had not had any gluten until they were old enough to be able to tell me if something hurt or didn't feel right. there would have been a lot less suffering.

People say that the chances of first degree relatives getting Celiac is not extremely high, but my mother and two of my three sisters have Celiac and the other one thinks she at least has an intolerance to gluten, and all three of my children have Celiac. I think the chances are higher than people really know.

I don't wish to scare you or anything, I just wanted to share my situation and encourage you to consider staying gluten free until your baby would be done nursing because having kids is such a blessing, but going through health problems with them is so hard and (at least for me) can make you feel like you and your children missed out on having a fun and happy baby - and childhood.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Salax Contributor

It can't hurt you or the baby to be gluten free, but technically it isn't necessary either.

We don't NEED wheat in our diets, it's not a required food that we have to eat (obivously B) as Celiac's are aware.

But because it's such a highly GMO'd and problematic food for so many people, I would stay away from it. But thats me. You have to do what you feel comfortable with.

But as the little one gets older, because dad has celiac you want to make sure he is tested as some point, just to be sure. :D Good luck to you and early congrats.

  • 6 months later...
gfadventure Newbie

gfwife, I am in the exact same boat as you. I follow the diet except when we are out in public, or when my husband is out of town. I was asking myself the same thing as you, and my husband and I were just discussing this as well. I have done research and have come to the conclusion that we should stick as close to the 100% gluten-free diet as possible...a little slip here and there should be OK, however. DO NOT slip during breast feeding. The gluten can stay in breast milk for up to THREE MONTHS! There are many reports of newborn babies feeling very ill after ingesting contaminated breast milk. So, if newborns have gluten reactions, why not a fetus in the womb?

New research has emerged claiming that it can affect the baby. Gluten may stunt a baby's normal growth. My husband was born from a non-celiac mother. He had a normal birth weight but was short and still is below average in height...but he wasn't diagnosed until 2 years ago and had 25 years of gluten to stunt his growth! :) The research is still new and I am sure they won't know great details until a couple of years from now. Just keep going how you are. I know for myself, I will try to be as close to 100% gluten free as I can whenever I choose to become pregnant. Some gluten-free foods make me VERY ill and I will have to cheat the diet then, however. I figure, why not make it a safe environment from the start? Good luck and know that there are others out there with you!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

    4. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - Lkg5 replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Unexpected gluten exposure risk from cultivated mushrooms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    • Lkg5
      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.