Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Strict While Pregnant?


gfreewife

Recommended Posts

gfreewife Newbie

My husband has Celiac Disease and I do not. I do follow a gluten free diet with him, but at about 95%. I never eat any form of breads or pasta, but if I'm out to lunch without my husband I do not worry about marinades, salad dressings, or sauces. We are thinking about having a baby in a year or so, so my question is: When I become pregnant, and while obviously being unaware of if the baby has Celiac or not, should I be following a gluten free diet at 100%?

I've read many posts from women who actually have celiac and are wondering about diet during pregnancy, but like I said, I don't have it.

Any help is appreciated!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

If you don't have celiac (or a gluten intolerance) I don't think you need to worry about it. If you keep your baby gluten free then you will not be able to get him or her tested for celiac when they get older.

tarnalberry Community Regular

If you are not celiac, you do not need to be gluten free during hte pregnancy. IF the baby appears to have failure to thrive issues or other issues that suggestion digestive trouble, you would want to try going gluten free as it can be passed in breastmilk, but until then, you don't have to change your diet.

AgainstTheGrainIdaho Rookie

That's is a tough question. It's hard to tell if he/she will have that allergy. My guess would be no gluten and just make sure that you are getting enough of the nutrients that gluten grains carry from a better source like Quinoa. If he/she is allergic, it would be better to start off his/her development with everything on the good side and when born you will see pretty quickly whether or not he/she has the same allergy as your husband. From what I've read, the accuracy for testing for the gluten allergy seems very inconsistent and most just figure it out on their own by the way they feel,act, or elimination diets and you too will be able to tell when that child is born by gassiness,fussiness, rashes, sickness and so on. While nursing you'll know by what you eat, just keep a food log and compare to the way he feels within 6 hours of eating, sometimes right away. Also a GREAT gluten-free vitamin for pregnancy is MegaFoods Baby and Me vitamin. You'll get Tons of great nutrients and it's free of Gluten, wheat, corn, Soy, Dairy herbicides and pesticides. All the MegaFoods are free of those too. Good luck :)

domesticactivist Collaborator

Celiac is not an allergy! It is an autoimmune disease! There are not always visible and identifiable symptoms, especially early on.

I have not seen any studies about celiac disease and the diet of the non-celiac mother during pregnancy. Anecdotally, I have heard of effects on sensitive babies/toddlers breastfeeding from mothers who eat gluten. I'd do my best to avoid it, but not beat myself up for a slip here and there. When breastfeeding I'd be more careful, and I'd raise baby to be gluten-free for convenience and just to be on the safe side.

You could do genetic testing to calculate the risk that your child has celiac disease. If the child wants to be able to have gluten later in life, a challenge and testing could be done. That would be better IMO than potentially damaging the child from toddlerhood on just so that testing can be accurate.

As for first foods, breastfeeding is great, then very cooked veggies (start with the orange ones), then meats. It's very easy to make baby food at home while making your own dish and you don't need to worry about all the stuff the processed food has in it.

lovegrov Collaborator

I've never seen any indication that the mother who does not have celiac need stay gluten-free. Even with a parent with celiac, the odds are still strongest that the child will never have it.

richard

gary'sgirl Explorer

From my experience, I would definitely encourage you to try to stay away from gluten while pregnant and breastfeeding. I think the advice that Domesticactivist gave was really good.

I didn't know i had Celiac disease until my third child was 5 months old. I found out because all three of my children had problems since they were 2 or 3 weeks old, and I had been pursuing finding out what was wrong with them (while ignoring my symptoms). I wish we had known about Celiac being in the family before I had kids, because what we all went through was so hard and exhausting. It's really hard to see your child not feeling well and having doctor after doctor tell you that there is nothing that they can find that is wrong - you are probably just exaggerating.

All three of my kids had sleeping problems, it got to the point that at the worst they could not sleep for more than 10 minutes at a time and would wake up screaming like they were in pain. There were many things that were not right and I think that it would have been much better if they had not had any gluten until they were old enough to be able to tell me if something hurt or didn't feel right. there would have been a lot less suffering.

People say that the chances of first degree relatives getting Celiac is not extremely high, but my mother and two of my three sisters have Celiac and the other one thinks she at least has an intolerance to gluten, and all three of my children have Celiac. I think the chances are higher than people really know.

I don't wish to scare you or anything, I just wanted to share my situation and encourage you to consider staying gluten free until your baby would be done nursing because having kids is such a blessing, but going through health problems with them is so hard and (at least for me) can make you feel like you and your children missed out on having a fun and happy baby - and childhood.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Salax Contributor

It can't hurt you or the baby to be gluten free, but technically it isn't necessary either.

We don't NEED wheat in our diets, it's not a required food that we have to eat (obivously B) as Celiac's are aware.

But because it's such a highly GMO'd and problematic food for so many people, I would stay away from it. But thats me. You have to do what you feel comfortable with.

But as the little one gets older, because dad has celiac you want to make sure he is tested as some point, just to be sure. :D Good luck to you and early congrats.

  • 6 months later...
gfadventure Newbie

gfwife, I am in the exact same boat as you. I follow the diet except when we are out in public, or when my husband is out of town. I was asking myself the same thing as you, and my husband and I were just discussing this as well. I have done research and have come to the conclusion that we should stick as close to the 100% gluten-free diet as possible...a little slip here and there should be OK, however. DO NOT slip during breast feeding. The gluten can stay in breast milk for up to THREE MONTHS! There are many reports of newborn babies feeling very ill after ingesting contaminated breast milk. So, if newborns have gluten reactions, why not a fetus in the womb?

New research has emerged claiming that it can affect the baby. Gluten may stunt a baby's normal growth. My husband was born from a non-celiac mother. He had a normal birth weight but was short and still is below average in height...but he wasn't diagnosed until 2 years ago and had 25 years of gluten to stunt his growth! :) The research is still new and I am sure they won't know great details until a couple of years from now. Just keep going how you are. I know for myself, I will try to be as close to 100% gluten free as I can whenever I choose to become pregnant. Some gluten-free foods make me VERY ill and I will have to cheat the diet then, however. I figure, why not make it a safe environment from the start? Good luck and know that there are others out there with you!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Going for upper endoscopy today

    2. - Midwesteaglesfan posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Going for upper endoscopy today

    3. - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,268
    • Most Online (within 30 mins)
      7,748

    Kristine Ryder
    Newest Member
    Kristine Ryder
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
    • Wheatwacked
      Hello @Midwesteaglesfan and welcome. A result greater than 10 U/mL is considered positive. Some labs use 15 as the cutoff, but 34 is in the positive.  The endoscopy and biopsy is looking for damage to your small intestine.  I don't don't think 5 days is enough to repair the damage. This comment is effectly your answer, regardless of your biopsy results.  The endoscopy has been the Gold Standard diagnostic, and most healthcare providers won't diagnose celiac disease until your intestinal lining Marsh Score reaches stage 3. You don't really want to wait for the damage to get worse, especially since only five days mostly gluten free gave you relief.  Yes, migranes is one of the 200 symptoms that may be caused by Celiac Disease. Malabsorption Syndrome is often comorbid with celiac disease.  The western diet is deficient in many vitamins and minerals.  That's why gluten processed foods are fortified.  Gluten free processed foods are not; Vitamin D deficiency is a virtual given.  40 to 60% of the industrial population is deficient in vitamin D, Damage to the intestinal lining from celiac disease can decrease the number of vitamin D receptors.  So now you get no vitamin D from the sun (skin cancer scare) the major source of vitamin D, plus absorbtion from food is poor because of intestinal damage.   Low iodine intake is getting more of a concern because the major source of iodine used to be bread (dough conditioner with iodine was stopped in the US in the 1970s), dairy (lactose intolerance from eating quick pickles with vinegar instead of fermented pickles which supply lactase excreting lactobacillus to improve Lactose intolerance. Commercial Dairies have wheat, barley and rye added to the cow feed. Some say they are sensitive to milk protein, but it is the gluten added to supplement the cow feed to increase milk production that becomes part of the milk protein causing the problem.  And people use less iodized salt.  In the US intake of iodine dropped 50% from 1970 to 1984. Switch to Grass fed only milk and consider supplementing Liquid Iodine drops to your diet.  The omega 6 to omega 3 ratio of commercial milk is 5:1; Organic milk is 3:1 and grass fed milk is 1:1. The typical western diet is around 14:1, optimum for humans is 1:1.  Wheat flour is 22:1 omega 6:3.  Choose vegetables lower in omega 6, it is inflammatory. Eat fermented foods and switch to Grass fed only milk.  Some say they are sensitive to milk protein, but it is the gluten added to supplement the cow feed to increase milk production that becomes part of the milk protein.   
    • Midwesteaglesfan
      At 41 years old I have been fighting fatigue and joint pain for a couple months.  My family doctor kept saying nothing was wrong but I was insistent that I just didn’t feel right.  Finally after running several blood labs, one came back showing inflammation in my body and I was referred to a rheumatologist.  He was extremely thorough and sat with me and my family for a good hour asking questions and listening. He ordered X-rays of all my joints and more bloodwork.  He suspected some sort of reactive inflammatory arthritis.  My TTG (Tissue Transglutaminase) came back at 34. he told me to try going gluten free and out me on Salfasalzin to help the join inflammation.  Over the next couple days going gluten free and doing a lot of research and talking to people with celiacs,  we found that I should have an upper endoscopy for insurance purposes in the future.  I reached back out to my rheumatologist and expressed this concern and he got back to me stating I was correct and resume regular gluten diet and stop the medication until after that scope.     They were able to schedule me in for 2 days later.  I had been gluten free, or as close to it as I could be for about 5 days.  I know I ate some brats with it but wanted to use them up.  My symptoms had gotten slightly better in those 5 days.  I felt less fatigue and joint pain was slightly better(it had gotten really bad) so for these last 2 days I’ve gone crazy with wheat bread, pasta and such.  I’m hoping those 5 days didn’t screw this endoscopy up.  I can’t imagine after a life of gluten, my intestines healed in 5 days and after eating gluten again for these couple days,  my stomach hurts, joint pain is coming back up so I know the inflammation is there.   Hinesight after this diagnosis, I have had chronic migraines since my late teens.  Has that been a lingering symptom of celiacs all these years?  I’ve never really had the stomach issues, for me it came in heavy these last couple months as the fatigue, just always feeling tired and exhausted.  And the joint pain.     So getting in the car for the 2 hour drive to the hospital for this scope now.     Wish me luck!
    • marlene333
      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.