Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Didn't Solve All My Issues


Nadia2009

Recommended Posts

Nadia2009 Enthusiast

Hello Gluten-Free friends,

I haven't been here often lately. I even missed celebrating with you my second anniversary of going gluten free (Sept 21). I have been gluten free for 2 years and 3 months exactly. Yes! Thanks for the congrats :)

About 6 months ago, I had a colonscopy and the results were good according to the GI doctor. I was still having D and hoping my intestins weren't too damaged. I almost got used to to having loose stools of pale color (sorry for talking about this) but I want to know if others have had the same issue. My stools are either mustard yellow color or green yellow to green color.

Eating rice does help me but I am trying my own version of the paleo diet...a modified paleo diet. For the last 3 days, I have been eating vegetable soups with lots of green and roots sweet potatoes parsnips + very little potatoes. I am trying to avoid most grains...rice is probably I will keep using more than others.

I just researched a bit on the topic of stools and learned pale stools mean the bile isnt working properly and that my transit is too fast. Does it mean I am not absorbing nutrients? I like good vitamins and supplements but if I am not absorbing then maybe I shouldn't bother buying them?

Another thing I read is my symptoms could indicate gallstones. I am getting scared.

I am going to see a doctor tomorrow and I am not asking you to give me a diagnostic but I still want to add some other symptoms I am having for the last 2 months. My skin is itchy and sore to touch mostly the skin in the upper body around chest and upper abs. The itching is not so bad and the pain has diminished greatly but from time to time I feel it when I press somewhere. Last but not least, I am experiencing pain in the breast...this problem is also diminishing. It was almost gone I thought but this morning I woke up with that pain.

I was going to visit a naturopathic doctor but I have to wait the holidays are over. And I don't really enjoy seeing MDs (but I will tomorrow) as they dont know anything about health issues I bring to them. It confuses them when I show up with symptoms that are going all directions and not specific to a known disease.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gluten free overseas Apprentice

It would not be a bad idea to have your gallbladder checked out--either for stones or for how it is functioning even if there are no stones. I know a lot of people who were undiagnosed gluten intolerant for years on years have had their gallbladders out--and there is some research that says that food sensitivities can cause gallstones.

I just had my gallbladder out. If you have a good general surgeon, it's low risk. I was back at work in one week. But if it's not necessary, of course don't do it. Explore your options--maybe there is an enzyme you can take to help you with digestion? I don't know, I'm not a doctor. But I think it might be wise to get it checked out. If you've had a lot of gallbladder infections without knowing it, the gallbladder starts to adhere to other tissue, and then it gets to be a real problem surgery-wise (which I just only managed to avoid, mine was doing that... it was kind of a close call). Information is a good thing, look into it.

Take care of yourself!

domesticactivist Collaborator

I get the light yellow stools and have found digestive enzymes help. You might look into gaps as well. It is similar to paleo but includes more probiotic foods and has a set progression of introducing foods, and is all about healing the gut. There are lots of posts here and on my blog about it.

Nadia2009 Enthusiast

It would not be a bad idea to have your gallbladder checked out--either for stones or for how it is functioning even if there are no stones. I know a lot of people who were undiagnosed gluten intolerant for years on years have had their gallbladders out--and there is some research that says that food sensitivities can cause gallstones.

I just had my gallbladder out. If you have a good general surgeon, it's low risk. I was back at work in one week. But if it's not necessary, of course don't do it. Explore your options--maybe there is an enzyme you can take to help you with digestion? I don't know, I'm not a doctor. But I think it might be wise to get it checked out. If you've had a lot of gallbladder infections without knowing it, the gallbladder starts to adhere to other tissue, and then it gets to be a real problem surgery-wise (which I just only managed to avoid, mine was doing that... it was kind of a close call). Information is a good thing, look into it.

Take care of yourself!

Thank you very much gluten-free free overseas.

I just got back from the doctor and he sent me for a GB ultrasound. But as soon as he knew I was gluten intolerant, he told me I should consult a GI and that my case is too complicated...he meant stool and other things. He also said that stool color doesn't mean anything but that doctors look for other signs. It is just too bad I have so many symptoms and it is confusing.

Tell me about your gallbladder...what happens after the romoval? Do you need medications and a certain diet?

Nadia2009 Enthusiast

I get the light yellow stools and have found digestive enzymes help. You might look into gaps as well. It is similar to paleo but includes more probiotic foods and has a set progression of introducing foods, and is all about healing the gut. There are lots of posts here and on my blog about it.

Thanks Domesticactivist,

I will look into the gaps diet. I have never heard of it before but it makes sense to include a diet rich in probiotics. I bought some probiotics int he health food store and after taking 2-3 days I got sick...it was the peak of my fatigue everything even normal tasks was a big effort. I stopped taking the probiotics thinking I will get back to them.

I use apple cider vinegar and it is very helpful...maybe I talked about it above.

Which enzymes helped you?

mushroom Proficient
And I don't really enjoy seeing MDs (but I will tomorrow) as they dont know anything about health issues I bring to them. It confuses them when I show up with symptoms that are going all directions and not specific to a known disease.{/quote]

This is a fine indictment of our medical specialists. They can't walk and chew gum at the same time :rolleyes: Give them more than one symptom and they freak out. I guess nobody ever told them in medical school that things weren't going to be black or white. I have a medical problem that I have a pretty good handle on in my own mind, but the "experts" keep buzzing around the hive and can't seem to get a handle on anything. I have found, (OFTEN), that we have to research and present a scenario to them, present it in a linear form on a piece of paper, with appropriate documentation, and sometimes, somebody will say, yes, that makes sense, and take the matter from there. In fact, I am going through it at the moment :(

gluten free overseas Apprentice

Thank you very much gluten-free free overseas.

I just got back from the doctor and he sent me for a GB ultrasound. But as soon as he knew I was gluten intolerant, he told me I should consult a GI and that my case is too complicated...he meant stool and other things. He also said that stool color doesn't mean anything but that doctors look for other signs. It is just too bad I have so many symptoms and it is confusing.

Tell me about your gallbladder...what happens after the romoval? Do you need medications and a certain diet?

I had very few complications. Everyone is different. I can actually eat MORE things now that my gallbladder is out (I was completely off corn, and now I can eat it again). Some people, it's different; a person I know can't have anything with onions or green peppers now that her gallbladder is out, someone else I know can't eat desserts with cream. I do have a little trouble with real fatty foods like a really greasy hamburger... but I don't really eat that sort of thing anyway. For me, it must have been that my gallbladder wasn't really working hardly at all because my body had adjusted and my liver was picking up the slack because I didn't have any of those issues--I actually just felt a TON better to not have to live with an infected gallbladder all the time.

However, I have heard of cases where people go on a gluten free diet, and their gallbladder recovers. Mine was too far gone for that, but you know, every case is different.

I do not need medicine or anything. I am right as rain after a couple of weeks after surgery. However, I know a person who has had to take an enzyme every day now that her gallbladder is out--I think everyone is different. I was scared about having surgery, but if you have a reputable general surgeon, it's very low risk. You just have to lay around for a couple days and don't lift anything heavy for about 2 weeks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HollyH Apprentice

I just posted a new topic on this, then I saw your post. I'm experiencing a very similar problem to what you are experiencing. I also had a pale stool yesterday, it was light yellow or clay colored. I too went to the internet for answers, and as usual scared myself. The only thing I can think of it that when I went out to eat Friday that I was glutened, or theres another problem. When they say liver I get very nervous.

Could it be that you are inadvertently getting glutened? I'm wondering this about myself. However I am also sore under the ribs so I am wondering if its gallbladder. Do you have any symptoms of reflux? One of the signs is yellow stool. Do post and let us know what the doc says, if they are able to help. That's been one of my biggest struggles with Celiac, finding a competent doc.

  • 2 weeks later...
Nadia2009 Enthusiast

This is a fine indictment of our medical specialists. They can't walk and chew gum at the same time :rolleyes: Give them more than one symptom and they freak out. I guess nobody ever told them in medical school that things weren't going to be black or white. I have a medical problem that I have a pretty good handle on in my own mind, but the "experts" keep buzzing around the hive and can't seem to get a handle on anything. I have found, (OFTEN), that we have to research and present a scenario to them, present it in a linear form on a piece of paper, with appropriate documentation, and sometimes, somebody will say, yes, that makes sense, and take the matter from there. In fact, I am going through it at the moment :(

Nadia2009 Enthusiast

I had very few complications. Everyone is different. I can actually eat MORE things now that my gallbladder is out (I was completely off corn, and now I can eat it again). Some people, it's different; a person I know can't have anything with onions or green peppers now that her gallbladder is out, someone else I know can't eat desserts with cream. I do have a little trouble with real fatty foods like a really greasy hamburger... but I don't really eat that sort of thing anyway. For me, it must have been that my gallbladder wasn't really working hardly at all because my body had adjusted and my liver was picking up the slack because I didn't have any of those issues--I actually just felt a TON better to not have to live with an infected gallbladder all the time.

However, I have heard of cases where people go on a gluten free diet, and their gallbladder recovers. Mine was too far gone for that, but you know, every case is different.

I do not need medicine or anything. I am right as rain after a couple of weeks after surgery. However, I know a person who has had to take an enzyme every day now that her gallbladder is out--I think everyone is different. I was scared about having surgery, but if you have a reputable general surgeon, it's very low risk. You just have to lay around for a couple days and don't lift anything heavy for about 2 weeks.

Thats great you feel better and can eat more things now. But I am wondering why so many people have gallbladder problems now or was it always like that? I just learned my cousin had it out too and another person I know went to the emergency room due to pain this week but she was told she has gallstones.

Nadia2009 Enthusiast

I just posted a new topic on this, then I saw your post. I'm experiencing a very similar problem to what you are experiencing. I also had a pale stool yesterday, it was light yellow or clay colored. I too went to the internet for answers, and as usual scared myself. The only thing I can think of it that when I went out to eat Friday that I was glutened, or theres another problem. When they say liver I get very nervous.

Could it be that you are inadvertently getting glutened? I'm wondering this about myself. However I am also sore under the ribs so I am wondering if its gallbladder. Do you have any symptoms of reflux? One of the signs is yellow stool. Do post and let us know what the doc says, if they are able to help. That's been one of my biggest struggles with Celiac, finding a competent doc.

I do have acid reflux but wasn't ever told I had something like GERD...although I did complain it to the doctor about it many times. Then considered it more like a nuisance than an illness. I just keep a good dental hygiene to avoid more damage my oral health. But are you saying that acid reflux will have to do with the mustard colored rocky stool I have? I watched doctor Oz show "Are your pee and poo normal?" this summer and I discovered I was far from normal.

Wait...I just googled reflux and yellow stools and you may be right! I had reflux for years but working around my diet, taking green teas and apple cider vinegar has helped a lot.

For me, I am sure pale stools aren't due to gluten as it is not a one time issue.

  • 1 month later...
Nadia2009 Enthusiast

I have been pouring posts in the forum these days but forgot about this one. It took me some time but found an MD who also believes in alternative medecine and now I have my results.

I did a saliva, stool and IgG Elisa tests. The later one with US biotek and I am hearing good things about that lab so I am glad I did it.

The doctor suspected adrenal fatigue, parasites, food allergies and heavy metal. I choose to take only 3 tests and left the test for heavy metal for another time.

My adrenal is OK all in normal range except the night one due to some insomnia and lack of melatonin.

For my GI symptoms, I have two things: H pylori and many food allergies. I will come back to them.

I have no parasites that were detected and only traces of candida albicans.

I still don't know if all my symptoms were due to H pylori and allergies but I read another post here from someone with HP complaining about skin sensitivities.

I always know I digested meat better and I did so well with the blood type diet (for 3 months) but I am not enough disciplined and never diet...even the paleo diet, I dropped it after a few weeks. But that I have the test confirmation, I have no choice I guess.

I have no allergy to fruits and veggies other than crannebery. I am allergic to crab that I hate mutually. I show a strong allergy to beans nuts seeds and dairy. I rarely have dairy for the last two years and know it makes me sick. Last ones is a moderate egg yolk and white reaction and strong reaction to amaranth that I dont even know what it looks like.

Funny that this week, I had cheese coffee cream, eggs, nuts and beans and I am all stiff and tired with body aches.

I guess my diet will be meat, rice, sweet potato, greens, a bit of fish but I dont know how much I can cheat on nuts and beans or dairy (not all at the same time)...cashews were not tested but I am guessing they will same reaction than almonds.

  • 4 months later...
Watson Newbie

Hi Nadia. Any change in stool colour since your last post? Or any other news? After quitting gluten (due to intolerance) and then dairy (as part of elimination diet) shortly afterwards, my stools have been much like yours - yellow, clay coloured, yellow/green and always floating. This has been going for 2 months now with other symptoms that are more sporadic - fatigue, light headed, mild nausea. Have you got any of these symptoms too?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    2. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748

    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.