Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Can't Buy A Good Night's Sleep


coffeetime

Recommended Posts

coffeetime Explorer

I'm so tired, most nights I'm awake by 3:30 and either can't go back to sleep or stumble into and out of sleep for the next hour or so till I'm so frustrated I just get up. For about the last 6 months I'm waking up almost everyday with a headache and my the bones in my legs feel like I've slept on concrete all night :( I'm exhausted when I go to bed but almost dread it knowing how I'm going to feel when I wake up. In my attempt to find any form of quality sleep I've replaced my pillows, bought a thick memory foam mattress pad, tried all the good sleep hygiene recommendations I could find, including blackout curtains, and repainting my room "earthy, neutral tones" I've been gluten-free for 2 years and looked for cc but haven't found any. Throughout my life I've never felt fully rested when I woke up, but this is different, mainly from the pain and total mentally exhaustion. I have thought about trying some form of elimination diet but quiet honestly I'm too brain dead at this point to research. Does anyone have any straight forward suggestions I could try? I take multiple vitamins, fish oil, baby aspirin, and a low dose levothyroxin daily. Thanks in advance for any advice.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

feel for ya. Poor sleep is one of my main symptoms when glutened.

You could eliminate the usual susepcts and eee if things improve.

Soy, dairy, nightshades, corn, eggs, nuts.

Keep the out of your diet for a month. Then try adding one at a time for a week befoe evaluating the success or failure. If there are no problems then add the next food for a week.

A better wy to do it is to start with a small set of foods, say 4 or 5 and eat only those for 2 weeks. Then add foods one at a time again, building up your list of safe foods as you go.

You don't want to add foods too quickly as sometimes the reactions can take several days to become noticeable. And also sometimes it can take weeks for reactions to subside.

You shouldn't eat any processed foods on an elimination diet. You need to keep things simple. Processed foods have so many ingredients it is nigh impossible to pick one out that is causing a problem.

A starting list of foods could be bananas, apples, lamb, tea, salt. And you add from there slowly. Your starting list of foods can be anything you want, but should not include any of the common problem foods or the top 8 food allergens. Remember everything counts, including vitamin pills etc. Keep a food diary as you go and note your symptoms / how you are feeling in it each day.

An elimination diet is not about losing weight, so you can have as much of the foods in your plan as you want.

Link to comment
Share on other sites
maximoo Enthusiast

you might want to go for a sleep study. Could be something other than what you eat like sleep apnea.

Link to comment
Share on other sites
love2travel Mentor

I sure feel for you and can relate. I have suffered from horrific insomnia for many years, sometimes not falling asleep at all the entire night, mainly due to chronic pain. There are times I would be willing to give almost anything to sleep as well as my husband does. I sleep well so rarely that I celebrate the times that I do.

Having said that, my chronic pain management doctor recommended for pain that I go on magnesium glycinate (it absorbs very well) 900-1800 mg per day, B12 sublingual, B complex, D3 (gels), Omega 3 (from a fish source), probiotics and Zinc. I do find that the magnesium really decreases my restless leg syndrome and now after about nine months my vitamin levels are smack dab in the middle of the normal range so I am pleased. I recently began taking a daily prescription muscle relaxant (Flexeril) that has saved my life the last week - hopefully the effects will last. I have also been on a prescription sleeping pill (Zopiclone) that I take once a week for many years. Prior to this past week I normally wake up at least 50 times per night because it is so difficult to lie down with this pain. I would get up and walk around as I could not take it. I actually could count on both hands how many great sleeps I have had in the last 20 years since becoming an adult. That is how memorable they were!

I tried eliminating soy, nightshades, etc. but it did nothing for me but it certainly may for you! My chiro suggested eliminating aspartame which I have done.

Perhaps it is time for you to discuss prescriptions with your doctor. As much as I dislike pill pushing it came to the point where I was barely functioning due to pain and insomnia. In order for pain management one must sleep to replenish muscles and everything else.

I really hope that you can determine the culprit because sleep is so incredibly important. Good luck with this! Please keep us updated. :)

Link to comment
Share on other sites
eatmeat4good Enthusiast

The red flag for me is the baby aspirin. You may be sensitive to salicylates or allergic to aspirin and not know it. It can cause fatigue, bone and muscle pain because it can interfere with your calcium and metabolism...but only if you are not able to metabolize it. It also disturbs sleep. I was very sick for a long time and took Ibuprofen for the leg pain and headaches. Years later while googling for symptoms I found that 1 in 100 are allergic or sensitive it aspirin and the symptoms I had were consistent with Chronic Aspirin Poisoning. From my baby aspirin a day and the Ibuprofen for the pain. God...I almost killed myself.

Read about Salicylates and see if you suspect this for yourself or not. It may not be the case for you...but just in case it is...I wanted you to know.

Open Original Shared Link

My sleep improved and bones stopped aching and chronic migraine headaches disappeared when I stopped ingesting aspirin and Ibuprofen.

Link to comment
Share on other sites
love2travel Mentor

The red flag for me is the baby aspirin. You may be sensitive to salicylates or allergic to aspirin and not know it. It can cause fatigue, bone and muscle pain because it can interfere with your calcium and metabolism...but only if you are not able to metabolize it. It also disturbs sleep. I was very sick for a long time and took Ibuprofen for the leg pain and headaches. Years later while googling for symptoms I found that 1 in 100 are allergic or sensitive it aspirin and the symptoms I had were consistent with Chronic Aspirin Poisoning. From my baby aspirin a day and the Ibuprofen for the pain. God...I almost killed myself.

Read about Salicylates and see if you suspect this for yourself or not. It may not be the case for you...but just in case it is...I wanted you to know.

Open Original Shared Link

My sleep improved and bones stopped aching and chronic migraine headaches disappeared when I stopped ingesting aspirin and Ibuprofen.

That is very interesting! I have never been on aspirin of any kind myself but this certainly is great advice for the OP. It would be exciting if this is it as it would be easy to remedy. I sure do hope so! I am very glad that you were able to determine what it was for you. :)

Link to comment
Share on other sites
eatmeat4good Enthusiast

Thanks for saying that Love2Travel. I sometimes think I'm sounding like a whacko when I implicate or suspect salicylates for others. So I appreciate your comment.

I might add that I was diagnosed with fibromyalgia and they told me to take Ibuprofen every 4 hours. I gained an enormous amount of weight, had muscle wasting, fatigue and heart palpitations in addition to disturbed sleep. My point is that it really was not fibromyalgia at all. It was Celiac and Salicylate Sensitivity. Aspirin interferes with protein metabolism and therefore your muscles waste away and it interferes with calcium so your bones waste away. Add that to the Celiac malabsorption and I was a hot mess for a lot of years.

Now I sleep well, have muscle definition and can function all day with no fatigue. Unbelievable relief to me. So I like to share it with others. Thank you for the encouragement.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



love2travel Mentor

Thanks for saying that Love2Travel. I sometimes think I'm sounding like a whacko when I implicate or suspect salicylates for others. So I appreciate your comment.

I might add that I was diagnosed with fibromyalgia and they told me to take Ibuprofen every 4 hours. I gained an enormous amount of weight, had muscle wasting, fatigue and heart palpitations in addition to disturbed sleep. My point is that it really was not fibromyalgia at all. It was Celiac and Salicylate Sensitivity. Aspirin interferes with protein metabolism and therefore your muscles waste away and it interferes with calcium so your bones waste away. Add that to the Celiac malabsorption and I was a hot mess for a lot of years.

Now I sleep well, have muscle definition and can function all day with no fatigue. Unbelievable relief to me. So I like to share it with others. Thank you for the encouragement.

You are definitely NOT a whacko! Not even close. :lol: I was diagnosed with fibromyalgia, too, and wonder about it at times. However, I still have severe chronic pain from an accident four years ago but the last two years (especially this past year) the pain has changed somewhat. It feels like I have been hit by a truck. No, wait - a big ship - at full speed. Every day. It is surprising to me that my body is not black and blue from bruises because that is how I feel. It hurts to put on and wear clothes. When there is a wrinkle in my bed sheets it drives me crazy until I get up and fix it. It is just so darned hard to get all comfy! And of course muscle wasting is happening like mad. I desperately hope that clears up once I am off gluten longer. I have been soooooo strict for nine months with zero improvement (except as I mentioned the magnesium for RLS). Maybe the one year mark will do it! My dietitian said it may take me up to two years for that muscle stuff to improve. Meanwhile, I am walking and doing what I can to help myself.

Man, it makes me happy that you have muscle definition and can function well! Sounds sorta like a miracle. ;) This is such good news and I hope others see this and try it. :)

Link to comment
Share on other sites
coffeetime Explorer

Thanks so much for all the wonderful suggestions especially the elimination plan and the possible link to salicylates. I can't do much about the baby aspirin until I speak to my cardiologist because of the weird heart rhythm I've had to deal with--evidently the baby aspirin will help in the prevention of a stroke? I plan on beginning the elimination diet today in hopes it helps. In some ways that should make my life easier--you don't have to think about what to eat, the list is so short it's easy to narrow down :P If these fail I would possibly consider adding on a med but hope to avoid that if at all possible. Thanks again for all the advice, I guess I should consider it darkness at the end of the tunnel--especially at 3 a.m. LOL Happy New Year Everyone==May we all find peace and healing this year.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,178
    • Most Online (within 30 mins)
      7,748

    juliegeorge101
    Newest Member
    juliegeorge101
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      That's a good idea. It can at least establish the potential for developing celiac disease and can help people decided between a celiac diagnosis and NCGS (Non Celiac Gluten Sensitivity). And it doesn't require a gluten challenge and can be had without a doctor's prescription.
    • awright24
      I have my endoscopy on Thursday, has anyone had the procedure done with a cough? I don't have a continuous cough, but every now and then throughout the day I have sort of coughing episodes. They are a lot better than they were but I called endoscopy and they said to speak to my gp and my gp got back to me and said I need to ask endoscopy if its ok if I have it done still.  Help!
    • MMH13
      Thank you so much, everyone. For the moment my doctor just has me taking iron but hopefully we can reconnect soon. I'm going to look into genetic testing, too. Great advice all around and I appreciate it--and you can bet I'm going off the PPIs!
    • Eldene
      I walk fast for fitness, 4 to 6 km per day. I am also 74 years old. Apart from the Celiac challenge, my lifestyle is healthy. I had a sciatiac nerve pinching under my one foot, with inflamation in my whole shin. It was almost cured, when the other shin started paining and burning. I do stretches, use a natural cooling gel and rest my feet. Can Celiac cause muscle pains/inflamation, or is it just over-excercising?
    • LovintheGFlife
      I recently started shopping at a nearby Trader Joe's store. I was surprised at the number and variety of (healthy) gluten-free options sold there. I must admit their low prices are also quite tempting. However, I am curious as to the labeling on all their packages. While none of their products are certified as gluten-free, many are identified as 'GLUTEN FREE' on the packaging. Are these items safe for celiacs? Has anyone tried Trader Joe's products and have there been any adverse reactions?
×
×
  • Create New...