Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Disney

Duhlina

By Duhlina
in Traveling with Celiac Disease

Recommended Posts

Duhlina Apprentice
Duhlina
Posted

We are going to Disney (Florida) next month! YEAH!!! CANNOT wait! I must admit I'm a little nervous though. I don't like going to new restaurants anymore knowing we will have to grill the waitress or the manager to find out what I can/can't eat. I don't like knowing my usual options are a bun-less burger or a salad. I have done some research (thanks to what I read on these lists) and contacted our hotel and made sure we have a room with a microwave and fridge. I will be bringing some of my own snacks for the trip down so I don't get desperate in an airport. The hotel has sent me the menu for the breakfast items so I know what I can/can't have there and I've printed out the gluten free menus for restaurants in close proximity to our hotel (we are not staying on Disney property, we're staying near the Maingate East).

So, for anyone who has done Disney gluten free - do you have any tips? Any places we should avoid at all costs? Any places we should definitely go to?

Thanks so much in advance!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


samie Contributor
samie
Posted

I have not been to Disney but have heard they are good about keeping the food gluten-free and no cc. Hope you have a great time.

Aly1 Contributor
Aly1
Posted

We went to Disney a couple of months ago and in my experience they were great and very attentive regarding gluten free diets. Whenever you arrive at a food place, start off right away saying you need gluten-free - at one place that resulted in me having my own personal server who liased with the chef. They appeared to be very knowledgeable and attentive. One caveat - I was early on in my gluten-free diet so I am not sure how strong my reactions would have been had they glutened me (I never had noticeable reactions till being gluten-free; but my first case of being officially glutened was about 2 weeks after my Disney trip. But I reacted after being glutened for several days).

I guess this post can't really assuage your fears, just to let you know that by all appearances, Disney seemed great in this regard. Good luck!

mamaw Community Regular
mamaw
Posted

We have been to Disney several times with great experiences. You need to do the leg-work before hand...By not knowing where to eat or which places you will be wasting time searching & looking for places where as if it was already completed you can be spending more time enjoying the park...

I suggest the meal plan as it saves big bucks...

Disney also has a speciality diet plan so call them & ask for them to e-mail it to you or by now it may already be on the disney site...

For lunch we ate cave man style with the smoked turkey legs, gfpizza, burgers, fries.....

Dinners we loved the Boma,The Floridan, well just so many to choosefrom that offer gluten-free...Mickey & Minnie breakfastwas fun for the kids...

Hoop De Do show was fun with a gluten-free menu. But again we booked gluten-free in advance & each morning we called the restaurant to remind them 6 gluten-free people would be there at the confirmation time we made in advance..

When you go for a quick lunch go before or after the lunch crowd. And don't wait in the regular line for gluten-free... go up to an empty slot & ask to speak to the manager. He/she will take your gluten-free order & prepare it elsewhere from the reg.food.. The ones in your party who aren't gluten-free need to get int the reg.line & order. This way your food will come out at about the same time as the reg. food.. If not your gluten folks will have finished their meal & want to go & you will be waitng on the gluten-free...

We were never hungry with the meal plan &had four course for dinners....1daily quick meal ( lunch) & 2 snacks daily. We carried no extra food with us... The kids were stuffed & so were the adults..

We didn't even use all the quick lunch or snacks so we bought gfsnacks to bring home so we wasted no money with the meal plan...

hth

CHARBEEGOOD Newbie
CHARBEEGOOD
Posted

We are going to Disney (Florida) next month! YEAH!!! CANNOT wait! I must admit I'm a little nervous though. I don't like going to new restaurants anymore knowing we will have to grill the waitress or the manager to find out what I can/can't eat. I don't like knowing my usual options are a bun-less burger or a salad. I have done some research (thanks to what I read on these lists) and contacted our hotel and made sure we have a room with a microwave and fridge. I will be bringing some of my own snacks for the trip down so I don't get desperate in an airport. The hotel has sent me the menu for the breakfast items so I know what I can/can't have there and I've printed out the gluten free menus for restaurants in close proximity to our hotel (we are not staying on Disney property, we're staying near the Maingate East).

So, for anyone who has done Disney gluten free - do you have any tips? Any places we should avoid at all costs? Any places we should definitely go to?

Thanks so much in advance!!!

If you have made reservations for dining on Disney property you can make a note on your reservation(s) regarding your allergy...Disney has gluten-free breads, pasta, desserts, snacks! I find it easier to eat at the "sit down" locations but I have additional allergies besides gluten.

Go to Disney's web site Open Original Shared Link

It should help put your mind at easy. At Disney you can start making dining reservations about 180 days in advance. You can make them over the phone or via the internet.

Hope it helps!

Char

Duhlina Apprentice
Duhlina
Posted
  • Author

I forgot one of my clients works for Disney and the last time I was at her house I noticed several gluten free cookbooks in the kitchen, so I emailed her and asked if she had any suggestions.

She sent me this website and OMG, it is FANTASTIC. I'm printing everything out as we speak! I feel like I hit the jackpot!!!

Open Original Shared Link

CeliacAndCfsCrusader Apprentice
CeliacAndCfsCrusader
Posted

Hi- I'm happy to say that my one and only Disney experience (Hawaii, Aulani Resort) was a smashing success.

I made an online reservation for the Character Breakfast (buffet) and then mentioned to my server that I was gluten-free. An actual Chef came out and totally put my mind at ease. He basically asked "what would your dream list be for breakfast this morning?" and I kept it simple (omelette, bacon, potatoes, pancakes and a dessert).

All was delicious and they couldn't have handled it better.

One note: I always make sure that no matter how prepared they are, I always remind them about c/c and shared utensils (especially in a buffet). I specifically asked for "fresh" items be made so that I wouldn't have any chance of c/c (even if the item itself was naturally gluten-free).

Communicate, be polite and be at ease!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      22

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      That is the goal, after all.
    2. Wheatwacked
      - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine. Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years. Doctor recently said to not stop. My 25(OH)D is around 2...
    3. Known1
      - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing your thoughts. I respectfully disagree. You cherry picked a small section from the page. I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on ...
    4. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Here is a link to the spreadsheet I kept to track my nutrition intakes. Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/...
    5. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Hello @catnapt, That's so true. Every person with Celiac Disease has different symptoms. There are over 200 that it mimics. Too many still believe that it is only a childhood disease you outgrow. Or it's psychosomatic or simply a fad. Idiots. It's easy to get angry at all of them. You just have to pick at the answers until you find...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,411
    • Most Online (within 30 mins)
      7,748
    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      That is the goal, after all.  
    • Wheatwacked
      Blood results

      By Wheatwacked · Posted

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Known1 · Posted

      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.