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Are Headaches And Slight Nausea Symptoms Of Celiac?


jenn42

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jenn42 Explorer

My daughter started a couple months ago with headaches and light nausea only in the mornings. I had her tested for Celiac and it came back positive. I put her on somewhat of a gluten-free diet for 12 days and she lost 4 pounds. We went to see a GI yesterday and she's having an endoscopy and biopsy done next week. GI put her back on gluten and she's had no headaches or nausea today. She said she feels really good, better than when she was on gluten-free. This is so confusing. Could the blood tests be wrong?


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mushroom Proficient

Tlhere are very few false positives on the blood testing. Her feeling better back on gluten could be entirely due to her having been going through a withdrawal from gluten, which acts like an opioid on the body; this withdrawal generally lasts for 2-3 weeks. Some people seem to react immediately to gluten reintroduction, for others it takes the antibodies a while to build up again and create havoc. I wouldn't find your daughter's reactions unusual. See how she feels at the end of the week. I just hope the 12 days gluten free has not affected the outcome of the biopsy. While full healing of the intestine takes a while, healing does start immediately upon withdrawal of gluten.

Headaches/migraine are definite neurological symptoms of celiac. Some people I believe get nausea along with headaches, but I am not a headache sufferer so not a good person to ask. Nausea is my principle symptom now when I am glutened, but this is a GI symptom for me.

Katrala Contributor

If she has celiac, the "healing" won't be overnight.

If the blood work was positive, it's likely she has celiac. Unfortunately, "somewhat" gluten-free isn't an option. It sucks, but "100% gluten-free" is the only solution.

heidi g. Contributor

I get migraines and bad headaches either early in the morning or late at night. Im always nauseous. It could also be from not absorbing nutrients properly from damaged villi. That is my main cause of my headaches.

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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