Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lactose And Casein ...


Annie June

Recommended Posts

Annie June Newbie

I'm thinking I have a dairy issue now and I'm trying to sort it out. Can anyone tell me if lactose fee and casein free are the same thing? If they are not, what is the differences. If I'm lactose intolerant can I still have products with casein or the other way around? I'm so tired of feeling icky and when I went gluten free I started feeling ALOT better but there is still something going on and I suspect milk products have something to do with it...

Any advice or links would be greatly appreciated :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Lactose is a milk sugar.

Casein is a milk protein.

Lactaid helps replace the enzyme you'd be lacking to digest lactose.

Casein is a part of milk, and so far they don't make a pill/workaround.

Yes, if you only have a problem with lactose (and lactaid helps) you can take a pill and eat dairy products.

If its casein you have to avoid milk products.

If you are newly gluten-free, the milk problem may or may not be permanent. Sometimes, after the villi repair themselves, you can process milk again.

I'm sure I got something wrong in that explanation....

Open Original Shared Link

dustynbob Newbie

I has actually been found that while there are several different proteins in cow milk (casein) the one that MOST are allergic to are the beta casein, which it appears are newly formed and the inbreeding of dairy cattle seems to have mutated the A2 beta casein "Beta-casein is a naturally produced protein in cows

floral Newbie

I am extemely lactose intolerant and have been since the age of 18 (I'm 53 now). I just switched to Soy Vanilla and it's wonderful. I can have a small amount of shredded Mozzarella and I do well with cream cheese as well. Experiment and see what you can handle and check out all soy cheeses and products and substitute as much as possible. I always say, "cow's milk is for baby cows."

TomC Rookie

I have the same problem. What about whey protein? Is it as common to have a reaction to whey as casein?

  • 3 weeks later...
Pegleg84 Collaborator

I'm also trying to figure out, still, if I'm intolerant to lactose or to casein (leaning toward casein). When I eat milk products (unfortunately, including goat and sheep, though not as bad as cow) I get similar symptoms to glutening, but more of a brain-fog rather than stomach issues.

Lactose intolerance supposedly causes more stomach problems (cramping/bloating/diarrhea/etc), and some people can handle goat/sheep's milk (which has less or a different kind of lactose?)

Something like that

I drink almond milk, since soy also bothers me. I've been avoiding dairy for almost 6 months now, and have generally been feeling better.

Try some lactose-free stuff and see if it makes a difference. If not, go dairy free.

Peggy

GFinDC Veteran

Most hard cheeses are lactose free because the cheese making process eliminates the lactose sugar. The soft cheese are not nessecarily lactose free though.. Things like cheese balls or Velveeta often have lactose.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    2. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    3. - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,801
    • Most Online (within 30 mins)
      7,748

    b r i t t a n y. g r i f f
    Newest Member
    b r i t t a n y. g r i f f
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.