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Pregnant And Worried
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I am so glad I came across this website. I am 16 weeks pregnant. I have never been officially diagnosed with celiac mainly because I don't have must faith in the medical community when it comes to food allergies and because I never really thought I had "celiac" until this pregnancy. I self diagnosed with obvious DH (skin rash), lethargy, fogginess, and severe mucus response with sore throat, headache, etc. I have been gluten-free (I say that mildly because I tend to cheat and pay for it) for a year and a half.

This is my second pregnancy. I first started noticing symptoms after the birth of my first daughter while fighting candida. I had thrush for months and had to completely change my diet. It was during this time that I realized my real problem was gluten.

Now that I am pregnant again, it seems as though I can't tolerate even the slightest bit of gluten. I have been more careful than usual because I have become very sick during this pregnancy due to eating it. I am on the right track now and committed to the lifestyle but I am still very worried about the baby. Could I have done irreversible harm? Is the baby not getting the nutrients it should be? Wondering if I should see some sort of specialist. I am taking a prenantal but haven't been consistent. Any advice would be appreciated.

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Hi and welcome! Women with celiac usually have perfectly healthy babies. The placenta is very aggressive about getting nutrients to your baby.

You might talk to your doctor about testing for B12, vitamin D, and iron as those are most commonly low. Obviously you need to be more consistent with the prenatal and if there are any deficiencies in the blood testing your obstetrician should be able to sort it out.

If you had obvious DH you are definitely celiac. I'm glad to hear you will be gluten-free now. It's much better for you. :)

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Thank you Skylark- I will ask about the testing for vitamin levels. If they are ok, it will ease my mind. As far as the DH, I have had blistery, scaly, extrememly itchy bumps or almost hives on both legs for 3 years or so. It was so bad, I would scratch so hard at night and it would leave scars. I didn't even want to wear shorts or skirts in the summer. When I stopped eating gluten, it healed within a month. Eliminating gluten was such a drastic change for me. I just have to stay commited for myself and the baby.

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That's DH for sure! I hope you can get the testing easily and that things come back OK. I'm sure your baby is doing fine.

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    • So my heart has been doing weird stuff post gluten challenge. Skips beats, arrhythmias, chest pain. It was getting a bit better then worse again in July.   My cardiologist has done 2 stress tests, halter monitor, and we have not caught anything other then harmless pvc's. But I KNOW this is not right for my heart and it has gone wacky out of sync and we never catch it on a damn test. All of my doctor's were connected out of a larger practice, so the GI, cardio, neuro, and primary care can all see the mountains of tests I had and think I am a nutcase the moment I walk through the door. I will admit that I informed the old GI about the DGP test being positive and I sent over some info on the test as they were basically using TTG and old gliadin tests, and they were receptive. But for the most part, I do not trust doctors. I was once told I was in false labor when I actually had 13 gallstones and an infection in my bile duct. I have more horror stories, as we all do. So, my protein and RBC were low in the hospital but all up to good levels now so it is not a vitamin deficiency. My heart has already skipped multiple beats today. The other day, it again went out of rhythm for just 20 seconds or so. I am not drinking coffee or alcohol because of the acidity, so it is not that. I was glutened on August 24th and probably once in July. Does anyone have weird heart issues that vanish eventually? If so, how long does it take? I am an over-thinker, which has its pros and cons. I know we are at an increased risk for CAD which is not really my concern right now. My gut is inflamed, my thyroid is inflamed and my adrenal gland was effected by all of this. I sort of wonder if an exposure to gluten causes some kind of myocarditis, an inflammation that would not be picked up a sonogram per se, and may eventually vanish with a gluten free diet. Has anyone ever had experience with myocarditis? I did a lot of reading on Roemheld syndrome, gastro-cardio syndrome, which is basically a set of cardio symptoms resulting from your gut. Praying it is just that! I just feel like now that I have a diagnosis, I need to rebuild a team of doctors that I feel have my back. This is a sucky disease that can have a lot of ill effects and I need a team I feel is intelligent, supportive and willing to research. I already have a new GI and a great Endocrinologist. I am seriously contemplating a new cardio and neuro as they both talk to me like I am a 12 year-old with "hysterical girl syndrome".
    • I was not officially diagnosed with narcolepsy when I was younger and still haven't.  However, even in my junior high and high school years and on through my college years staying awake was always a struggle for me.  maybe the gluten was a factor back in junior high and just didn't realize it.    There were times in church and other times I would just BAM fall asleep without warning.  Frustrating and somewhat embarrassing to say the least.  Now that I have been off gluten for close to a year now, the "feeling" of needing to sleep is becoming less and less.  Still have periods of sudden sleepiness, but not as often any more.
    • when they first came out, I read the ingredients on them, and they don't seem to contain malt.  But the company, at that time specifically posted on the website that they  are not gluten-free.  So I don't drink them.
    • Rum is naturally gluten free, but in cases where it is flavored, spiced, etc. you have to be careful where they might add a malt in the natural flavorings. I been using Admiral Nelsons coconut rums in cooking for finishing off stir frys, and adding a bit of flavor to caramelized ingredients for a few years now, I have never had issues with those. As for the Morgan, I would be careful with the spiced version as they might use a malt based ingredient in it. I did a bit of research and like you found no conclusive evidence to if it contains gluten or not. The plain rum from them is listed on many and been tested by several groups and has come up gluten free. On a side note if your a celiac or have intestinal damage I would avoid alcohol or drink in moderation. I personally only use it in cooking.
    • Hi, It seems they advertise it as a malt beverage.  Malt is made from barley normally, so it would not be gluten-free.  Unless they specify the malt is corn malt, it is always assumed to be barley malt per FDA labeling regs.  
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