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A Relative Is Diagnosed Celiac- Won't Go Gluten-Free

29 posts in this topic

My husband got really sick like that before he found out. So sick that he would do anything to feel better. I completely in my mind believe that he would have died within a week if they had not discovered the results of the blood test when they did. He was told to go gluten free before they even confirmed with thd endoscopy. It may take her hitting rock bottom for her to do it unfortunately. Hopefully it won't be too late by that point.

My son also has it. He had no symptoms or at least noticable ones- but after the biopsy we found out the doctor thinks he has had it for at least three years. We only had hom checked because of my husband. We have encouraged other family members to get checked but they won't. My mother in law recently found out that she has a rare form of rectal melanoma, and I can't help but wonder if she too has it( melanoma is a risk with untreated celiac disease). I just think too many people think if they don't feel bad then nothing is wrong.... Trouble is they don't realize that they don't feel that great!


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Since being diagnosed I've told me immediate family they should get tested too. I'm not so worried on my mom's side but I think my dad and brother should get tested because my dad's sisters both have gi problems - one aunt has crohn's and IBS and the other has a whole bunch of food sensitivities - neither has been diagnosed celiac but still. My brother refuses to get tested because he doesn't have any symptoms. I've told him that you can have celiac without symptoms, but he just doesn't want to know. I get it...if you don't feel sick then it's probably way harder to cut out gluten, but I also don't want him to get osteoporosis and cancer :S. I don't think he has it, but it's not hard to get a blood test.


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This might be totally off track... but is there anyway she could be suffering from some other issues in addition to celiac? Such as bulimia? It could explain the vomiting behaviors and if she went gluten free and continued to have symptoms it would mean admitting other issues. 


It's rare, but ignoring medical diagnosis to cover up undesirable or "forbidden" behaviors does happen. For example, Lance Armstrong used his cancer to cover up the high levels of HCG when he was drug tested. Not entirely the same, but it's a high profile example of this type of behavior. 


And again, it may be completely off track and I don't know your family or your situation, it's just a thought.


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If she's diagnosed with it and she's not doing anything about it, you can't be gluten free for her. In my family, me even mentioning to get fully tested results in eye rolling or a burst of anger. I can send trustworthy medical info, but that's about it.


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    • So, now they have found a metal toxicity in my body along with needing to be gluten free.  For the toxicity, I am now taking supplements after and between meals.  This a good thing because it prompts me to actually eat 3 meals a day and in a timely manner and not just a grab on the go item whenever.  The down side is remembering to take the silly things.  I can honestly say how much a pain it is to remember to take the supplements sometimes.  Been on this regimen for about a week now, and I am starting to feel better and all my systems are getting thoroughly cleaned out.  The real test will be in about 3 weeks or so, as it is about this time I become more vulnerable to the neurological symptoms.  I actually did some research on metal toxicity and found something incredible.  The symptoms I had been having all fall under this problem.  This could also have been yet another contributing factor of why I needed to go gluten free. Just a thought.  One thing I did consistently find is that once the toxicity is taken care of, this would not take away any food allergies or gluten issues.  I had gone through a different detox program back in February-March, and the neurological symptoms I have been dealing with was magnified x10 it seemed.  Another praise in this regimen is that I have been virtually symptom free since taking these supplements.  A few episodes but very minor.   
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