Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


Photo
- - - - -

Can Anyone Tell Me If This Looks Like Dh


  • Please log in to reply

20 replies to this topic

#1 kellbeth

 
kellbeth

    New Community Member

  • Members
  • Pip
  • 9 posts
 

Posted 06 August 2012 - 11:23 AM

http://s1060.photobu...08-04093031.jpg
Posted Image
Posted Image
Posted Image
Posted Image
[IMG]http://i1060.photobucket.com/albums/t457
I started getting these kind of rashes last May. They usually start of as one or more itchy bumps that resemble a bug bite and sometimes they will just go away or explode into this nasty looking stuff. They itch like crazy and take 3 plus weeks to heal. The left elbow however was more like 3 months. It popped back up in April this year and will start to fade and then get inflamed again. At the end of May my body exploded with these rashes on the back of both knees, right forearm, my back and right ankle. I noticed i was super itchy the day before and by the next afternoon i had those bug bite like bumps and the next day lesions. Derm didnt know what it was but thought i must have come in contact with something. She put me on steroids for 15 days. The rashes cleared but the very day i stopped taking them the left elbow popped up again. It is now worse than it has ever been and now have it on the right elbow as well. I also started getting itchy sore blisters on my hand since the steroids.
Side note: when rashes started last year i noticed alot of bloating and indegestion. In January of this year i started getting tingling and numbness and increased headaches.
  • 0

Celiac.com Sponsor:

#2 kellbeth

 
kellbeth

    New Community Member

  • Members
  • Pip
  • 9 posts
 

Posted 06 August 2012 - 12:50 PM

http://s1060.photobucket.com/albums/t457/kellmull/?action=view&current=2012-08-04093031.jpg
Posted Image
Posted Image
Posted Image
Posted Image
[IMG]http://i1060.photobucket.com/albums/t457
I started getting these kind of rashes last May. They usually start of as one or more itchy bumps that resemble a bug bite and sometimes they will just go away or explode into this nasty looking stuff. They itch like crazy and take 3 plus weeks to heal. The left elbow however was more like 3 months. It popped back up in April this year and will start to fade and then get inflamed again. At the end of May my body exploded with these rashes on the back of both knees, right forearm, my back and right ankle. I noticed i was super itchy the day before and by the next afternoon i had those bug bite like bumps and the next day lesions. Derm didnt know what it was but thought i must have come in contact with something. She put me on steroids for 15 days. The rashes cleared but the very day i stopped taking them the left elbow popped up again. It is now worse than it has ever been and now have it on the right elbow as well. I also started getting itchy sore blisters on my hand since the steroids.
Side note: when rashes started last year i noticed alot of bloating and indegestion. In January of this year i started getting tingling and numbness and increased headaches.

Sorry I am new to this :unsure: .....If you click on the link at the very top it will take you to all my rash pics. Not all of them got on my post.
  • 0

#3 Hopeful1950

 
Hopeful1950

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 119 posts
 

Posted 06 August 2012 - 12:53 PM

Your pictures look like DH to me. The fact that it is presenting on your elbows (a location that is mentioned quite often in the medical literature) could be a clue as well as the extreme itchiness and your gut symptoms.

If it is DH, steroids will only provide relief when you are taking them. It comes back with a vengeance as soon as you stop the medication. Almost like it is waiting for the meds to be over so it can pop out again.

There is a skin biopsy that can diagnose DH, but you must be still consuming gluten for the test to even stand a chance of being diagnostic.

I'll defer to the other members of the forum who will chime in with lots of good information for you. They know more than most doctors!

Good luck.
  • 0

#4 itchy

 
itchy

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 203 posts
 

Posted 06 August 2012 - 12:55 PM

Kellbeth, it certainly is plausible that it is DH, especially considering your gastrointestinal symptoms. That said, it isn't as severe or stereotypical as my rash was. Have you compared your rash with the many photos online?

Your rash appears to be intensely itchy, bilaterally symetrical, found often on elbows and and limbs, reddish. Those are all characteristics. Many of us also have hard centred scabby lesions, circled by brilliant red to purple blotches. Most people can't endure the stinging and scratch the lesions, which usually produce blood or a thin bloody fluid. They can take months or years to heal. Bilateral symetry is apparently a characteristic of auto immune diseases like DH, so that would be a good indicator.

But there are several variations that still appear to be DH. Perhaps your rash is a variant, or perhaps it will progress to something even more miserable.

Most of us don't regret going strictly gluten free. For me, I was instantly rewarded by an end to my GI problems, and after three years my DH is almost gone too!!
  • 0

#5 eatmeat4good

 
eatmeat4good

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,699 posts
 

Posted 06 August 2012 - 03:24 PM

The blisters can present as flesh-colored or red/purple and I see both in your photos. You also have the excoriations from scratching which are consistent with DH as well as the welting up of areas where you have scratched. People often report that it is impossible not to scratch and that the scratching causes intense burning sensations. Clusters of blisters appear to be present as well as areas where it is widespread. The knees are a common site for DH. Our DH photo bank may help you. Look at some pictures there. In my opinion, your rash is consistent with DH. It is very similar to the outbreaks I got on my legs, although I most often got the DH rash on my face and forehead, with both the flesh colored blisters and the reddened/purplish ones.

We have had some people post pictures of their rashes lately that are very similar to yours. Although they had not been diagnosed, they had the rash and gastrointestinal problems of long duration. With both of these factors being consistent with Celiac disease, it is a reasonable thing to suspect.

http://www.celiac.co...313#entry816313

Read around the DH forum, view the DH photo bank, and feel free to ask questions.

Thank you very much for posting your pictures.
  • 0
Healing is a matter of time, but it is sometimes also a matter of opportunity.
--Hippocrates

#6 squirmingitch

 
squirmingitch

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,370 posts
 

Posted 06 August 2012 - 03:34 PM

Kell, welcome to the club none of us wanted to belong to! Lately this club seems to be experiencing a population explosion.

Hopeful gave good advice. I would add to that it is nearly impossible to find a derm who will consider dh let alone biopsy for it. If you DO get one who will then they better be experienced in biopsy procedures for dh. If you don't care about getting an official dx then just go gluten free. BUT, if you decide later that you want a dx I warn you that after having been gluten free (gluten-free) & then going back to eating gluten for testing --- almost everyone has MUCH stronger reactions to gluten than before they went gluten-free. AND the false neg. rate on correctly done biopsies of dh run over 30%.
Plus, I will add that going gluten light before testing will likely result in a neg. test. People think they can go gluten-free or gluten light & then "gluten up" the last week or few days or day before the tests --- that won't work. You have to have been fully glutened for at least a couple of months. And if any doc tells you otherwise then RUN as fast as you can b/c you will be wasting your time with that doc.
Celiacs with dh tend to test neg. on the blood panel --- I think b/c the antibodies are in our skin. Also tend to be neg. on the endoscopy b/c dh'ers tend to have patchier damage to the villi -- again b/c the disease is attacking our skin. Oddly enough though we have a slightly higher chance of developing Lymphoma than celiacs without dh.
The bloating & indigestion is what I got & those are the GI issues. The numbness & tingling I also got but then those got much, much worse as time went on & I didn't know it was celiac. Those are the neuro issues along with the headache.

Read threads on this dh forum as well as on the board in general. The dh forum will help you understand dh & what you can do to help relieve or live through the itching. One thing right now though. Get rid of the iodized salt!!!!! No sea salt either! Get plain salt; it will say "this salt does not supply iodine, a necessary nutrient". Iodine makes dh go crazy!!!! We usually have to go low iodine to help it to lay down. I think itchy is the only one I've ever heard who says iodine does not affect his dh. It is medically recognized that iodine makes the dh insane. Here is a link for a low iodine diet:
http://www.thyca.org/rai.htm#diet

Here is a link to get you started with going gluten free:
http://www.celiac.co...ewbie-info-101/

Ask questions anytime. We are here for you. I'm sorry you got this crap. I'm sorry any of us got this crap.Posted Image BUT we are survivors. The gluten-free diet is not bad at all once you get used to it. Seriously!Posted Image
  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#7 itchy

 
itchy

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 203 posts
 

Posted 06 August 2012 - 04:22 PM

Squimingitch, there have been a number of people who have stated they didn't associate iodine with any effect on the DH. Because a number of vocal people say it is so, or even various studies identifying a statistical association doesn't make it so for every individual.

Low iodine diets are a risk for some people. Furthermore, I am proof that DH can be conquered without paying any attention to iodine.

I agree that it is worth experimenting with, but people who don't feel they want to reduce iodine shouldn't feel their situation is hopeless. Iodine is not a causal factor in DH, only an aggravating factor for some people. The cause is gluten.
  • 0

#8 eatmeat4good

 
eatmeat4good

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,699 posts
 

Posted 06 August 2012 - 04:44 PM

Dr. Peter Green writes in his book, Celiac,a Hidden Epidemic, on the topic of Dermatitis Herpetiformis and an Iodine connection. He says there appears to be an intimate connection between DH and iodine.

"Often the dermatitis herpetiformis will not improve- and flare-ups may occur- unless iodine is minimized or eliminated from the diet. This includes iodized salt or salty food (pretzels, chips,etc.-gluten free of course), and different forms of seafood. Sushi may be a real issue due to the high amount of iodine in seaweed. After the dermatitis herpetiformis lesions have resolved, iodine may be reintroduced to the diet."

It is clearly established in the medical literature.
Thyca.com is a low iodine diet not no- iodine.
Some people literally need to limit iodine.
  • 0
Healing is a matter of time, but it is sometimes also a matter of opportunity.
--Hippocrates

#9 squirmingitch

 
squirmingitch

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,370 posts
 

Posted 06 August 2012 - 04:50 PM

Itchy, I did not say she HAS to go low iodine! I said & I quote: "We usually have to go low iodine to get it to lay down". Okay, you say there have been a number of ppl who have stated they didn't associate iodine with any effect on the dh. Fine, I'll take your word for that --- you have been here longer than I & may very well have read ppl saying that. But you have to admit that the # of ppl who have found iodine IS a factor in their dh is far greater than the # of ppl like yourself. Now, I do not feel I would be doing the op any favor w/o throwing the iodine factor out there. The op is a grown adult & can make her own decisions but I would certainly hate for her not to know about iodine & go along being gluten-free & finding no resolution IF iodine were a factor for her but she didn't know about it. Then she's likely to think, "well, I guess gluten wasn't my problem b/c this rash is still making me crazy". AND as far as doing away with iodized salt goes --- that will not hurt anyone. We get enough iodine these days w/o needing it in our salt. Just b/c you have an overwhelming fear of thyroid issues b/c of your family history does not mean that all of us should say mums the word on the iodine issue & never mention it. Got it?
  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#10 squirmingitch

 
squirmingitch

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,370 posts
 

Posted 06 August 2012 - 04:51 PM

Dr. Peter Green writes in his book, Celiac,a Hidden Epidemic, on the topic of Dermatitis Herpetiformis and an Iodine connection. He says there appears to be an intimate connection between DH and iodine.

"Often the dermatitis herpetiformis will not improve- and flare-ups may occur- unless iodine is minimized or eliminated from the diet. This includes iodized salt or salty food (pretzels, chips,etc.-gluten free of course), and different forms of seafood. Sushi may be a real issue due to the high amount of iodine in seaweed. After the dermatitis herpetiformis lesions have resolved, iodine may be reintroduced to the diet.)

It is clearly established in the medical literature.
Thyca.com is a low iodine diet not no- iodine.
Some people literally need to limit iodine.


Thank you eatmeat!
  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#11 itchy

 
itchy

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 203 posts
 

Posted 06 August 2012 - 05:15 PM

Squirmingitch, please go back and reread the thread.

I did not at any point suggest people shouldn't reduce their iodine if that's what works for them.

However I object to the constant statements by some that iodine reduction is absolutely necessary to deal with DH. It's not.

Surely the experience of most people here is that 'experts' don't have all the answers, and that there is a lot of variability of circumstances and physiology that must be taken into account.

As for the level of iodine that people need to be healthy, please understand that I do not consider you an expert. Even.
  • 0

#12 itchy

 
itchy

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 203 posts
 

Posted 06 August 2012 - 05:19 PM

Eatmeatforgood: If you read my comments you will understand that they don't contradict the quotes that you posted. Note the use of 'some'in the quote.
  • 0

#13 squirmingitch

 
squirmingitch

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,370 posts
 

Posted 06 August 2012 - 05:44 PM

Squirmingitch, please go back and reread the thread.

I did not at any point suggest people shouldn't reduce their iodine if that's what works for them.

However I object to the constant statements by some that iodine reduction is absolutely necessary to deal with DH. It's not.

Surely the experience of most people here is that 'experts' don't have all the answers, and that there is a lot of variability of circumstances and physiology that must be taken into account.

As for the level of iodine that people need to be healthy, please understand that I do not consider you an expert. Even.

No one on this thread said iodine reduction is absolutely necessary. And I haven't seen that made as a constant statement.

And I don't consider either one of us an expert.




  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#14 itchy

 
itchy

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 203 posts
 

Posted 06 August 2012 - 06:03 PM

Then we're agreed.

I respect the vast amount of knowledge you bring to this conversation.
  • 0

#15 squirmingitch

 
squirmingitch

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,370 posts
 

Posted 06 August 2012 - 06:34 PM

Agreed itchy!

And I DO appreciate your experience with this beast we battle!
  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 





0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: