Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

When You Have A Reaction, How Do You Cope At Work Or When Driving?


mommyto2kids

Recommended Posts

mommyto2kids Collaborator

I get very frustrated and down when I have a reaction and especially when I don't know what it is. I want to return to work, but am scared out of my mind. Do I warn the principal and other teachers and say occationally I have a reaction and have to go to the restroom due to celiac. Or what should I tell them. I also want to sub but am afraid of if I have to go during class. Should I quietly tell the school secretary, the nice one that if I call and need her to come watch the class for a second, she will know what's up ahead of time. I can't let this condition keep me from living life. What are your thoughts here and how do you do it?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

Does the school have a Dept. Head for teachers or some type of go between person? Maybe a Human Relations Dept. You have to start your conversation somewhere. I wouldn't advise trying to hide the issue or anything. It's just a fact that needs to be dealt with. You can do it. No problem. :)

Link to comment
Share on other sites
~**caselynn**~ Enthusiast

I think that if you're reacting often enough to be worried then it's worth a conversation. I would suggest your direct supervisor, so the two of you can devise a plan for coverage when necessary. Just my two cents :)

Link to comment
Share on other sites
FruitEnthusiast Enthusiast

I want to return to work, but am scared out of my mind. I can't let this condition keep me from living life.

I can SO relate. I've missed lots of days at work, and still haven't been able to work more than half days. I'm always afraid I'll have to go home sick. Social things are out of the question. I never know how I'll feel each day. It is keeping me from living life, so I understand. Luckily my work knows what I am going through and has been understanding, although I do have approved FMLA paperwork from my Dr, that allows me days off due to my condition, so it protects my job whether they like it or not. Are you familiar with that? When you do start working, you are legally entitled to days off due to illness protected by the Family and Medical Leave Act. It's a federal program. Don't know if that helps, but here's a link if you'd like to check it out for future reference: Open Original Shared Link I still have fear and stress about missing work anyway though. It's hard to feel like you can't do the things you need to do. Sorry you're having such a hard time. You're in good company.

Link to comment
Share on other sites
mommyto2kids Collaborator

I posted this same question on my teaching forum and some people just didn't get it. They said there was no way to leave and just to hold it. They don't have celiac do they? :huh: I'm glad I can come here and at least I'm not alone.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,094
    • Most Online (within 30 mins)
      7,748

    Tracym
    Newest Member
    Tracym
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...