Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Since August 10 2012 - Feeling Tired


Canadian

Recommended Posts

Canadian Newbie

Hello all,

I have had chronic rhintis for 5 years or so now and have been taking nasal steroids to deal with it. I wanted to be able to not have to use the nasal sprays so I did a sensitivity test on aug 10 and it came up with gluten as something I had a bad sensitivity too. I cut out gluten and other things right away.

So I tried not using the nasal sprays much while going gluten free so I could gauge what would happen. After about 4 or 5 days I felt absolutely wonderful. My sinuses were quite clear and I did not really have much brain fog which I used to get quite a bit. Although I did have licorice on August 19 which I did not know contained gluten until after I had ate it. I noticed I did not feel so great that night and the next day was really quite bad and I had a lot of brain fog. Since the licorice I have not had any gluten products that I know of and am rarely taking the nasal sprays.

The problem I am facing now is fatigue. For the last week or so, I have slept my normal 7 or 8 hours, but when I wake up in the morning, I feel like I have barely slept at all and I feel fatigued for the whole day. But I assume this is just one type of withdrawal symptom that is possible. I understand that my fatigue is supposed to go away eventually, but it is very difficult to deal with.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

It could be withdrawl but it also could be your body is still fighting the glutening you had. Some of us can take quite a while to go through the full cascade of symptoms that they get. And those symptoms can be different for different people. I was glutened about a month ago and just started feeling normal a couple days ago.

1desperateladysaved Proficient

One thing I feel about natural remedies like diet: If there is any reaction at all it is good. If you feel good or bad something is happening.

I had about a week of bliss before falling into withdrawl or foggy dizziness of dispair. I don't know if it was withdrawl or contact with gluten and other problem foods.

I was doing something right before I got off gluten. I was on an excellent diet and supplements. I had improved in health the past 5 years. I am only about 4 months grain free. I have had some really great days lately; I have had confusing bad days. I am always trying to figure out what went wrong. I believe my supplements are one of the reasons I am improving. I have 30 years to make up for.

My foggy dizziness left at about 3 months. My last reaction to somethingoranother resulted in no fogginess.

I am not saying that you will have the same results, but there is hope. Hang on for the ride.

I hope you can learn and stay on your diet. I hope you will soon be writing about an awesome day. But if you aren't (yet) hang in there because there is hope. You can write and tell if it seems unfair you are still foggy 3 months.

Lastly, I hope you can enjoy gluten free licorice one day.

Diana

txplowgirl Enthusiast

It could be withdrawal or it could be an intolerance. A lot of secondary intolerances pop up when going gluten free.

Dairy causes my sinus's to act up so bad my sinus's swell as well as the roof of my mouth swells and blisters pop up. When that happens I usually have about a week and a half of pure heck.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    2. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    4. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.