Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Since August 10 2012 - Feeling Tired

Canadian

Recommended Posts

Canadian Newbie
Canadian
Posted

Hello all,

I have had chronic rhintis for 5 years or so now and have been taking nasal steroids to deal with it. I wanted to be able to not have to use the nasal sprays so I did a sensitivity test on aug 10 and it came up with gluten as something I had a bad sensitivity too. I cut out gluten and other things right away.

So I tried not using the nasal sprays much while going gluten free so I could gauge what would happen. After about 4 or 5 days I felt absolutely wonderful. My sinuses were quite clear and I did not really have much brain fog which I used to get quite a bit. Although I did have licorice on August 19 which I did not know contained gluten until after I had ate it. I noticed I did not feel so great that night and the next day was really quite bad and I had a lot of brain fog. Since the licorice I have not had any gluten products that I know of and am rarely taking the nasal sprays.

The problem I am facing now is fatigue. For the last week or so, I have slept my normal 7 or 8 hours, but when I wake up in the morning, I feel like I have barely slept at all and I feel fatigued for the whole day. But I assume this is just one type of withdrawal symptom that is possible. I understand that my fatigue is supposed to go away eventually, but it is very difficult to deal with.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

It could be withdrawl but it also could be your body is still fighting the glutening you had. Some of us can take quite a while to go through the full cascade of symptoms that they get. And those symptoms can be different for different people. I was glutened about a month ago and just started feeling normal a couple days ago.

1desperateladysaved Proficient
1desperateladysaved
Posted

One thing I feel about natural remedies like diet: If there is any reaction at all it is good. If you feel good or bad something is happening.

I had about a week of bliss before falling into withdrawl or foggy dizziness of dispair. I don't know if it was withdrawl or contact with gluten and other problem foods.

I was doing something right before I got off gluten. I was on an excellent diet and supplements. I had improved in health the past 5 years. I am only about 4 months grain free. I have had some really great days lately; I have had confusing bad days. I am always trying to figure out what went wrong. I believe my supplements are one of the reasons I am improving. I have 30 years to make up for.

My foggy dizziness left at about 3 months. My last reaction to somethingoranother resulted in no fogginess.

I am not saying that you will have the same results, but there is hope. Hang on for the ride.

I hope you can learn and stay on your diet. I hope you will soon be writing about an awesome day. But if you aren't (yet) hang in there because there is hope. You can write and tell if it seems unfair you are still foggy 3 months.

Lastly, I hope you can enjoy gluten free licorice one day.

Diana

txplowgirl Enthusiast
txplowgirl
Posted

It could be withdrawal or it could be an intolerance. A lot of secondary intolerances pop up when going gluten free.

Dairy causes my sinus's to act up so bad my sinus's swell as well as the roof of my mouth swells and blisters pop up. When that happens I usually have about a week and a half of pure heck.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,050
    • Most Online (within 30 mins)
      7,748
    Rima
    Newest Member
    Rima
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • tiffanygosci
      Celiac support is hard to find

      By tiffanygosci · Posted

      Hi Cristiana! It's so nice to meet you! Thank you for the kind reply I am glad I live in a time where you can connect with others through the Internet. That is a mercy I am grateful for.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.