Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Proctitis


gfreejz

Recommended Posts

gfreejz Rookie

Hello to all.

Today my boy who is 7 went to the doctor about blood on his stool. He has had bright red blood in his stool about once a week for about a month. He usually has fairly normal movements maybe a little on the hard side. He does well with his Gluten free diet and is in the 92 % for height and weight, which is better than me, I can't gain a pound for nothing. My wife and I have come to realize that dairy, mostly ice cream, makes him have blood in his stool. The Doc said for him to be 100% lactose free and get rechecked in a week to see if resolved. If not he goes to Children's for more tests. He had some blood work done and an x-ray to check for constipation. The doc says its Proctitis. She said to give him a stool softner every day and it should be better in a week. I am self diagnosed gluten/lactose intolerant with family history of Celiac and Chrons. We both have been Gluten free for over a year. Any one here have Proctitis? I've been giving him almond milk and not much lactose other than ice cream now and then. But the doc says he shouldn't have Almond or Soy milk because they have some traces of lactose. Anyone heard of that? I buy the Silk brand Soy or Diamond brand Almond milk and they both say lactose free on the package. This week was the first time trying the Soy milk because he says Almond milk gives him a tummy ache. We both seem to tolerate the Soy just fine, so probly its only the ice cream that is giving him trouble. He does crave ice cream and its hard to say no, up until now. So now its Gluten/lactose free for both and extra fluids. I'm going to ask about probiotics for sure.

Any feedback would be great! Anything I should ask the Doc at his checkup? Thank you all in advance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gatita Enthusiast

I had to look up proctitis... it sounds painful, poor kid.

I can't believe there is lactose in almond milk. I drink it all the time, and I am sure lactose is ONLY found in milk products.

Hope someone else can come along to answer your other concerns.

gfreejz Rookie

Thanks for reply! He is doing 100% better now that he is 100% lactose free.

ravenwoodglass Mentor

Thanks for reply! He is doing 100% better now that he is 100% lactose free.

That's great news. So good to hear he is doing better.

GFinDC Veteran

HI,

I am not so sure it is lactose causing the problem. It is also possible that casein, the protein in cow dairy is the issue. Lactose intolerance usually causes bloating, and diahhrea. Casein is a protein and is more likely to cause an immune reaction. Lactose is just a form of sugar and if you don't have the enzyme (lactase) in your gut to digest it the sugar is eaten by bacteria. The bacteria multiply quickly and make the gas and cause the diahhrea. If it is a casein problem he will not be able to eat any diary. If it is just lactose intolerance he would be able to eat dairy if he took lactaid pills with it. The lactaid pills digest the lactose so the bacteria don't get to eat it. But lactose free milk or lactaid pills won't help with a casein reaction.

Soy is not a good choice for a milk substitute IMHO. Personally I'd take him off all soy. Almond milk, rice milk, or hemp milk would be better choices. There is coconut ice cream available in stores and also sherberts or ices. If you are worried about lactose in a food item the ingredient label should list it. Or if it is not clear you can always call the company and ask them to confirm. Dairy is one of the top 8 food allergens that have to be included in ingredient labels in the USA.

Procitis is not a disease from what I read, rather it is a description of a condition. It seems to me the doctor doesn't know what the cause is if that's all they told you. Procitis would be caused by something.

If the kid is bleeding from eating dairy it is not a great Idea to let them have it as a treat. Whether they want it or not. There are plenty of dairy free substitute treats available. Maybe he will like them better, wouldn't hurt to try. Coconut does cause some people to have diahhrea. Hopefully it won't be a problem.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

    2. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    3. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.