Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Terrible


Peppa-minto

Recommended Posts

Peppa-minto Apprentice

So I had my blood work done... came back negative but I was only eating gluten for a couple of weeks so no surprise there. I went back to gluten free anyway. My doc wants to do an endoscopy despite my results but I just started a new job and can't risk being sick at work... although this time on the gluten free diet I'm not finding any relief. I'm taking lactaids with and dairy products because I know I might have temporary lactose intolerance but even that doesn't seem to be helping. My major symptom is just really strange and inconsistent bm. Sometimes they are pale, always piecy, often times there is a long piece of what looks like onion skin or clear lettuce... sorry, I know this is gross. Its just loose all the time and I'm always straining. The worst part is I have interstitial cystitis and whenever I am constipatd it really exacerbates my bladder symptoms. I started taking my medication for ic out of the capsules because I didn't know if the capsules were safe.

I really wanna stay strong until January and if nothing improves go to my doctor again. At least by then my job went be so new.

I just need some advice on things I could be doing to help this process. Should I take fiber supplements and if so which ones are safe? Unfortuanely (or maybe fortunately) I can't tell when I have been "glutened" very easy because my symptoms are so constant...

Any advice would be appreciated!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Teri Lou Apprentice

I know when I was first diagnosed it seemed I was sensitive to EVERYTHING! Have you tried cutting out caffeine, fatty foods, processed foods as well as dairy? After a year I can now do processed and dairy as long as I don't over do, but fatty and caffeine will still aggravate my very sensitive (and obnoxious) stomach. Early on natural foods seemed safest, and cooked veggies and fruits were better tolerated than raw.

Good luck!

  • 1 month later...
mushroom Proficient

Peppa_minto, I am sorry your thread seemed to be rather bypassed by posters. I just wanted to tell you that when you are first new to gluten free often the gluten has had an effect on your pancreas which is not putting out enough enzymes to properly digest your food, which is why you sometimes get undigested food in your stool. Buy a good quality gluten free digestive enzyme that you take with your meals and this should help. Since the gluten may well have given you a leaky gut, a good quality probiotic will help with the healing and many posters have found that taking L-glutamine also helps with healing.

Psyllium fiber supplements are gluten free if you need it to avoid constipation.

Generally capsules are made of gelatin and are safe.

Maybe some of these issues have been answered in other threads, but just in case... :)

shadowicewolf Proficient

You ought to have your liver checked. Stools like that aren't good at all.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,531
    • Most Online (within 30 mins)
      7,748

    Smcc
    Newest Member
    Smcc
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Yarrow Pom works really well with the skin issues I found out.I had to stop so my doterra because dealing with medical celiac circus. I had shingles in Feb 2023. Prayers for healing 
    • cristiana
      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.