Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

Feeling Terrible

4 posts in this topic

So I had my blood work done... came back negative but I was only eating gluten for a couple of weeks so no surprise there. I went back to gluten free anyway. My doc wants to do an endoscopy despite my results but I just started a new job and can't risk being sick at work... although this time on the gluten free diet I'm not finding any relief. I'm taking lactaids with and dairy products because I know I might have temporary lactose intolerance but even that doesn't seem to be helping. My major symptom is just really strange and inconsistent bm. Sometimes they are pale, always piecy, often times there is a long piece of what looks like onion skin or clear lettuce... sorry, I know this is gross. Its just loose all the time and I'm always straining. The worst part is I have interstitial cystitis and whenever I am constipatd it really exacerbates my bladder symptoms. I started taking my medication for ic out of the capsules because I didn't know if the capsules were safe.

I really wanna stay strong until January and if nothing improves go to my doctor again. At least by then my job went be so new.

I just need some advice on things I could be doing to help this process. Should I take fiber supplements and if so which ones are safe? Unfortuanely (or maybe fortunately) I can't tell when I have been "glutened" very easy because my symptoms are so constant...

Any advice would be appreciated!


Share this post

Link to post
Share on other sites

Ads by Google:

I know when I was first diagnosed it seemed I was sensitive to EVERYTHING! Have you tried cutting out caffeine, fatty foods, processed foods as well as dairy? After a year I can now do processed and dairy as long as I don't over do, but fatty and caffeine will still aggravate my very sensitive (and obnoxious) stomach. Early on natural foods seemed safest, and cooked veggies and fruits were better tolerated than raw.

Good luck!


Share this post

Link to post
Share on other sites

Peppa_minto, I am sorry your thread seemed to be rather bypassed by posters. I just wanted to tell you that when you are first new to gluten free often the gluten has had an effect on your pancreas which is not putting out enough enzymes to properly digest your food, which is why you sometimes get undigested food in your stool. Buy a good quality gluten free digestive enzyme that you take with your meals and this should help. Since the gluten may well have given you a leaky gut, a good quality probiotic will help with the healing and many posters have found that taking L-glutamine also helps with healing.

Psyllium fiber supplements are gluten free if you need it to avoid constipation.

Generally capsules are made of gelatin and are safe.

Maybe some of these issues have been answered in other threads, but just in case... :)


Share this post

Link to post
Share on other sites

You ought to have your liver checked. Stools like that aren't good at all.


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • Hi.  I have been reading your post and thinking about how my pain was around diagnosis.  It was above the belly button, I think where you are describing.  At the time I assumed I had a stomach ulcer.   I had been taking Neurofen for an ear problem and assumed it was the NSAID that had caused my stomach ulcer (which I actually didn't have, when I had an endoscopy a few weeks later my stomach was looking great! My small intestine was not!).   Going back to the pain, it was a burning feeling.   My doctor prescribed Omeprazole but it didn't touch it.   In fact I ended up with bad D. which eventually lead to me having all the tests for Celiac Disease.   I still get that pain if I eat oats (pure oats) that are supposed to be OK for most Celiacs.     I get various pains in different places in my digestive tract from time to time, but that burning pain is something I won't forget. The other thing I had that you mention was that pain between the shoulder blades.  I had that - I felt almost like someone was pushing my shoulders down.  So odd. I get palpitations when I am anemic.    I hope you get some answers soon.  It is pretty tough having to keep going from one doctor to another, but sometimes it is the only way.   
    • I sit in an ice bath after a long training (running or riding).  It speeds my recovery, I swear!  
    • Oh, one last thing..... ICE PACKS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! You'll feel better. Hey, you have a tub? Want to join the polar bear club in the privacy of your own home? Fill that thing with cold water & dump a 5 or 10 lb bag of ice in there. I'm serious.
    • I don't care what she specializes in, you MAKE her do a dh biopsy. I'm not being mean. Please understand that. It's just that I've heard this a thousand times before - no, a thousand one hundred!  Here's another thing ~~~ get her to order a eTG aka TG3 serum (blood test). That is specific for dh.  Oh gosh! Don't you just hate the ones in your ears???!!!!! Nah, we hate ALL of them! I swear though, when those suckers get going in & on your ears it just drives you stark raving mad!!!!! You've convinced me there is more than ample reason to strongly suspect it's dh.  Here's a tip..... the patterning the lab will be looking for is very easily destroyed by scratching so pick you out some prime places that are new & maybe, just maybe you haven't scratched them to smithereens thus far, and make some super thick gauze bandages & place them over those places so even if you reach to scratch (& we know you will! right?) the gauze will remind you & hopefully help to protect it. The biopsy needs to be taken from a clear area adjacent to a fresh lesion. No steroid creams okay? Not till after the biopsy. BTW, if she wants to put you on steroids after the biopsy be warned, 99% of the time there is such a backlash of the rash the moment you go off the steroid that you will wish you were never born. A dx of dh IS a dx of celiac disease & no further testing is needed. Please come back & update us after you see her tomorrow. In the meantime you have my heartfelt sympathy. Take those cold showers & grit your teeth. Hopefully you will soon be able to go gluten free & start getting some relief.   
    • Extremely itchy and keeps me up at night to the point I was taking cold showers at 3am.   Currently my ears, scalp, feet, and chin just will not stop itching, my elbows have the rash and look purple. Eventually the rash will heal and leaves scars that seem to be purplish in color. I have not tried gluten free diet yet.  Waiting for all the testing to stop.  The new allergist i am seeing tomorrow specializes in skin disorders.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member