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Family adjusts habits after celiac diagnosis - Napa Valley Register


Scott Adams

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Scott Adams Grand Master

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Napa Valley Register

For celiac sufferers, the damage gluten causes to the small intestine makes it hard for the body to absorb nutrients. The resulting malnutrition can lead to a wide variety of symptoms and conditions — including gastrointestinal issues, osteoporosis ...

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Takala Enthusiast

:ph34r:

When Gianna was almost two years old, she began experiencing bad stomach aches and other gastrointestinal problems. Doctors were baffled

shadowicewolf Proficient

allergy to me screams hives, throat closings, generally bad things along those lines. Where as an intolerence is more of a tummy troubles, aches, and headaches type of thing :ph34r: I must be the only one to think that way.

mushroom Proficient

Allergy is EpiPen time. Allergy is making my hubs drive himself to the ER when his throat started closing, because I had never had a driver's license at that point, and having them jab his arm as he was walking in :blink:

They are definitely not talking about allergy here, but it does make it sound more dramatic, if... totally WRONG :ph34r:

kittty Contributor

This mother is an idiot.

And while she's giving her kid a handful of Goldfish crackers, why not let her puff on a cigarette too? A little couldn't hurt her, right?

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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